Literature DB >> 27830253

Clinical Research Informatics for Big Data and Precision Medicine.

C Weng1, M G Kahn.   

Abstract

OBJECTIVES: To reflect on the notable events and significant developments in Clinical Research Informatics (CRI) in the year of 2015 and discuss near-term trends impacting CRI.
METHODS: We selected key publications that highlight not only important recent advances in CRI but also notable events likely to have significant impact on CRI activities over the next few years or longer, and consulted the discussions in relevant scientific communities and an online living textbook for modern clinical trials. We also related the new concepts with old problems to improve the continuity of CRI research.
RESULTS: The highlights in CRI in 2015 include the growing adoption of electronic health records (EHR), the rapid development of regional, national, and global clinical data research networks for using EHR data to integrate scalable clinical research with clinical care and generate robust medical evidence. Data quality, integration, and fusion, data access by researchers, study transparency, results reproducibility, and infrastructure sustainability are persistent challenges.
CONCLUSION: The advances in Big Data Analytics and Internet technologies together with the engagement of citizens in sciences are shaping the global clinical research enterprise, which is getting more open and increasingly stakeholder-centered, where stakeholders include patients, clinicians, researchers, and sponsors.

Entities:  

Keywords:  Evidence-based medicine; data bank; data quality; electronic health records; individualized medicine; learning health system; patient selection

Mesh:

Year:  2016        PMID: 27830253      PMCID: PMC5171548          DOI: 10.15265/IY-2016-019

Source DB:  PubMed          Journal:  Yearb Med Inform        ISSN: 0943-4747


  110 in total

Review 1.  Phases of biomarker development for early detection of cancer.

Authors:  M S Pepe; R Etzioni; Z Feng; J D Potter; M L Thompson; M Thornquist; M Winget; Y Yasui
Journal:  J Natl Cancer Inst       Date:  2001-07-18       Impact factor: 13.506

2.  Twitter Streams Fuel Big Data Approaches to Health Forecasting.

Authors:  Bridget M Kuehn
Journal:  JAMA       Date:  2015-11-17       Impact factor: 56.272

3.  Translational and clinical science--time for a new vision.

Authors:  Elias A Zerhouni
Journal:  N Engl J Med       Date:  2005-10-12       Impact factor: 91.245

4.  A distribution-based method for assessing the differences between clinical trial target populations and patient populations in electronic health records.

Authors:  C Weng; Y Li; P Ryan; Y Zhang; F Liu; J Gao; J T Bigger; G Hripcsak
Journal:  Appl Clin Inform       Date:  2014-05-07       Impact factor: 2.342

5.  In the Aftermath of the National Children's Study.

Authors:  James M Perrin; Sarosh P Batlivala; Tina L Cheng
Journal:  JAMA Pediatr       Date:  2015-06       Impact factor: 16.193

6.  A journal's role in resource sharing and reproducibility.

Authors:  Lucila Ohno-Machado
Journal:  J Am Med Inform Assoc       Date:  2015-05       Impact factor: 4.497

7.  Putting a value on the avoidance of false positive results when screening for inherited metabolic disease in the newborn.

Authors:  Simon Dixon; Phil Shackley; Jim Bonham; Rachel Ibbotson
Journal:  J Inherit Metab Dis       Date:  2011-05-27       Impact factor: 4.982

8.  Incidental swimming with millstones.

Authors:  Stephen F Kingsmore
Journal:  Sci Transl Med       Date:  2013-07-17       Impact factor: 17.956

9.  Secondary Use of EHR: Data Quality Issues and Informatics Opportunities.

Authors:  Taxiarchis Botsis; Gunnar Hartvigsen; Fei Chen; Chunhua Weng
Journal:  Summit Transl Bioinform       Date:  2010-03-01

10.  Developing a data infrastructure for a learning health system: the PORTAL network.

Authors:  Elizabeth A McGlynn; Tracy A Lieu; Mary L Durham; Alan Bauck; Reesa Laws; Alan S Go; Jersey Chen; Heather Spencer Feigelson; Douglas A Corley; Deborah Rohm Young; Andrew F Nelson; Arthur J Davidson; Leo S Morales; Michael G Kahn
Journal:  J Am Med Inform Assoc       Date:  2014-05-12       Impact factor: 4.497

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  7 in total

Review 1.  Clinical Research Informatics: Supporting the Research Study Lifecycle.

Authors:  S B Johnson
Journal:  Yearb Med Inform       Date:  2017-09-11

Review 2.  Update on Data Reuse in Health Care.

Authors:  C Safran
Journal:  Yearb Med Inform       Date:  2017-09-11

3.  Creation of a Multicenter Pediatric Inpatient Data Repository Derived from Electronic Health Records.

Authors:  Christoph P Hornik; Andrew M Atz; Catherine Bendel; Francis Chan; Kevin Downes; Robert Grundmeier; Ben Fogel; Debbie Gipson; Matthew Laughon; Michael Miller; Michael Smith; Chad Livingston; Cindy Kluchar; Anne Heath; Chanda Jarrett; Brian McKerlie; Hetalkumar Patel; Christina Hunter
Journal:  Appl Clin Inform       Date:  2019-05-08       Impact factor: 2.342

4.  Economical Utilization of Health Information with Learning Healthcare System Data Commons.

Authors:  Thomas O'Hara; Anil Saldanha; Matthew Trunnell; Robert L Grossman; Bala Hota; Casey Frankenberger
Journal:  Perspect Health Inf Manag       Date:  2022-03-15

5.  The utility of multivariate outlier detection techniques for data quality evaluation in large studies: an application within the ONDRI project.

Authors:  Kelly M Sunderland; Derek Beaton; Julia Fraser; Donna Kwan; Paula M McLaughlin; Manuel Montero-Odasso; Alicia J Peltsch; Frederico Pieruccini-Faria; Demetrios J Sahlas; Richard H Swartz; Stephen C Strother; Malcolm A Binns
Journal:  BMC Med Res Methodol       Date:  2019-05-15       Impact factor: 4.615

Review 6.  Preventing pediatric chronic postsurgical pain: Time for increased rigor.

Authors:  Christine B Sieberg; Keerthana Deepti Karunakaran; Barry Kussman; David Borsook
Journal:  Can J Pain       Date:  2022-04-28

Review 7.  Towards the Use of Big Data in Healthcare: A Literature Review.

Authors:  Grazia Dicuonzo; Graziana Galeone; Matilda Shini; Antonella Massari
Journal:  Healthcare (Basel)       Date:  2022-07-01
  7 in total

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