Literature DB >> 35692848

Economical Utilization of Health Information with Learning Healthcare System Data Commons.

Thomas O'Hara, Anil Saldanha, Matthew Trunnell, Robert L Grossman, Bala Hota, Casey Frankenberger.   

Abstract

Finding, accessing, sharing, and analyzing patient data from a clinical setting for collaborative research has continually proven to be a challenge in healthcare organizations. The human and technological architecture required to perform these services exist at the largest academic institutions but are usually under-funded. At smaller, less academically focused healthcare organizations across the United States, where the majority of care is delivered, they are generally absent. Here we propose a solution called the Learning Healthcare System Data Commons where cost is usage-based and the most basic elements are designed to be extensible, allowing it to evolve with the changing landscape of healthcare. Herein we also discuss our reference implementation of this platform tailored specifically for operational sustainability and governance using the data generated in a hospital setting for research, quality, and educational purposes.
Copyright © 2022 by the American Health Information Management Association.

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Mesh:

Year:  2022        PMID: 35692848      PMCID: PMC9123530     

Source DB:  PubMed          Journal:  Perspect Health Inf Manag        ISSN: 1559-4122


  13 in total

1.  Structurally Mapping Healthcare Data to HL7 FHIR through Ontology Alignment.

Authors:  Athanasios Kiourtis; Argyro Mavrogiorgou; Andreas Menychtas; Ilias Maglogiannis; Dimosthenis Kyriazis
Journal:  J Med Syst       Date:  2019-02-05       Impact factor: 4.460

2.  Data Monitoring Committees - Expect the Unexpected.

Authors:  David L DeMets; Susan S Ellenberg
Journal:  N Engl J Med       Date:  2016-10-06       Impact factor: 91.245

3.  HIPAA and the Leak of "Deidentified" EHR Data.

Authors:  Kenneth D Mandl; Eric D Perakslis
Journal:  N Engl J Med       Date:  2021-06-05       Impact factor: 91.245

4.  Applying FAIRness: Redesigning a Biomedical Informatics Research Data Management Pipeline.

Authors:  Marcel Parciak; Theresa Bender; Ulrich Sax; Christian Robert Bauer
Journal:  Methods Inf Med       Date:  2020-04-29       Impact factor: 2.176

5.  A Case for Data Commons: Toward Data Science as a Service.

Authors:  Robert L Grossman; Allison Heath; Mark Murphy; Maria Patterson; Walt Wells
Journal:  Comput Sci Eng       Date:  2016-08-24       Impact factor: 2.080

Review 6.  Data Lakes, Clouds, and Commons: A Review of Platforms for Analyzing and Sharing Genomic Data.

Authors:  Robert L Grossman
Journal:  Trends Genet       Date:  2019-01-25       Impact factor: 11.639

7.  Sustainability considerations for clinical and translational research informatics infrastructure.

Authors:  Jihad S Obeid; Peter Tarczy-Hornoch; Paul A Harris; William K Barnett; Nicholas R Anderson; Peter J Embi; William R Hogan; Douglas S Bell; Leslie D McIntosh; Boyd Knosp; Umberto Tachinardi; James J Cimino; Firas H Wehbe
Journal:  J Clin Transl Sci       Date:  2018-12-05

Review 8.  Artificial Intelligence in Health: New Opportunities, Challenges, and Practical Implications.

Authors:  Annie Y S Lau; Pascal Staccini
Journal:  Yearb Med Inform       Date:  2019-08-16

9.  Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations.

Authors:  Kim M Unertl; Chris L Schaefbauer; Terrance R Campbell; Charles Senteio; Katie A Siek; Suzanne Bakken; Tiffany C Veinot
Journal:  J Am Med Inform Assoc       Date:  2015-07-30       Impact factor: 4.497

10.  Fast Healthcare Interoperability Resources (FHIR) as a Meta Model to Integrate Common Data Models: Development of a Tool and Quantitative Validation Study.

Authors:  Emily Rose Pfaff; James Champion; Robert Louis Bradford; Marshall Clark; Hao Xu; Karamarie Fecho; Ashok Krishnamurthy; Steven Cox; Christopher G Chute; Casey Overby Taylor; Stan Ahalt
Journal:  JMIR Med Inform       Date:  2019-10-16
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