Literature DB >> 27758792

Beyond open data: realising the health benefits of sharing data.

Elizabeth Pisani1, Peter Aaby2, J Gabrielle Breugelmans3, David Carr4, Trish Groves5, Michelle Helinski3, Dorcas Kamuya6, Steven Kern7, Katherine Littler4, Vicki Marsh6, Souleymane Mboup8, Laura Merson9, Osman Sankoh10, Micaela Serafini11, Martin Schneider12, Vreni Schoenenberger13, Philippe J Guerin9.   

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Year:  2016        PMID: 27758792      PMCID: PMC6616027          DOI: 10.1136/bmj.i5295

Source DB:  PubMed          Journal:  BMJ        ISSN: 0959-8138


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  19 in total

Review 1.  The FAIR guiding principles for data stewardship: fair enough?

Authors:  Martin Boeckhout; Gerhard A Zielhuis; Annelien L Bredenoord
Journal:  Eur J Hum Genet       Date:  2018-05-17       Impact factor: 4.246

2.  Dataset decay and the problem of sequential analyses on open datasets.

Authors:  William Hedley Thompson; Jessey Wright; Patrick G Bissett; Russell A Poldrack
Journal:  Elife       Date:  2020-05-19       Impact factor: 8.140

3.  Availability and Use of Shared Data From Cardiometabolic Clinical Trials.

Authors:  Muthiah Vaduganathan; Amulya Nagarur; Arman Qamar; Ravi B Patel; Ann Marie Navar; Eric D Peterson; Deepak L Bhatt; Gregg C Fonarow; Clyde W Yancy; Javed Butler
Journal:  Circulation       Date:  2017-11-13       Impact factor: 29.690

Review 4.  Biological characteristics and biomarkers of novel SARS-CoV-2 facilitated rapid development and implementation of diagnostic tools and surveillance measures.

Authors:  Gajanan Sampatrao Ghodake; Surendra Krushna Shinde; Avinash Ashok Kadam; Rijuta Ganesh Saratale; Ganesh Dattatraya Saratale; Asad Syed; Abdallah M Elgorban; Najat Marraiki; Dae-Young Kim
Journal:  Biosens Bioelectron       Date:  2021-01-04       Impact factor: 10.618

Review 5.  Leveraging external data in the design and analysis of clinical trials in neuro-oncology.

Authors:  Rifaquat Rahman; Steffen Ventz; Jon McDunn; Bill Louv; Irmarie Reyes-Rivera; Mei-Yin C Polley; Fahar Merchant; Lauren E Abrey; Joshua E Allen; Laura K Aguilar; Estuardo Aguilar-Cordova; David Arons; Kirk Tanner; Stephen Bagley; Mustafa Khasraw; Timothy Cloughesy; Patrick Y Wen; Brian M Alexander; Lorenzo Trippa
Journal:  Lancet Oncol       Date:  2021-10       Impact factor: 41.316

6.  Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.

Authors:  Phaik Yeong Cheah; Nattapat Jatupornpimol; Borimas Hanboonkunupakarn; Napat Khirikoekkong; Podjanee Jittamala; Sasithon Pukrittayakamee; Nicholas P J Day; Michael Parker; Susan Bull
Journal:  BMC Med Ethics       Date:  2018-11-07       Impact factor: 2.652

7.  Data management and sharing policy: the first step towards promoting data sharing.

Authors:  Naomi Waithira; Brian Mutinda; Phaik Yeong Cheah
Journal:  BMC Med       Date:  2019-04-17       Impact factor: 8.775

8.  Broadening horizons: the case for capturing function and the role of health informatics in its use.

Authors:  Denis Newman-Griffis; Julia Porcino; Ayah Zirikly; Thanh Thieu; Jonathan Camacho Maldonado; Pei-Shu Ho; Min Ding; Leighton Chan; Elizabeth Rasch
Journal:  BMC Public Health       Date:  2019-10-15       Impact factor: 3.295

9.  Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada.

Authors:  Jack Teng; Colene Bentley; Michael M Burgess; Kieran C O'Doherty; Kimberlyn M McGrail
Journal:  Int J Popul Data Sci       Date:  2019-05-07

10.  Sharing health research data - the role of funders in improving the impact.

Authors:  Robert F Terry; Katherine Littler; Piero L Olliaro
Journal:  F1000Res       Date:  2018-10-15
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