Literature DB >> 27677443

Care Consistency With Documented Care Preferences: Methodologic Considerations for Implementing the "Measuring What Matters" Quality Indicator.

Kathleen T Unroe1, Susan E Hickman2, Alexia M Torke3.   

Abstract

A basic tenet of palliative care is discerning patient treatment preferences and then honoring these preferences, reflected by the inclusion of "Care Consistency With Documented Care Preferences" as one of 10 "Measuring What Matters quality" indicators. Measuring What Matters indicators are intended to serve as a foundation for quality measurement in health care settings. However, there are a number of logistic and practical issues to be considered in the application of this quality indicator to clinical practice. In this brief methodologic report, we describe how care consistency with documented care preferences has been measured in research on patients near the end of life. Furthermore, we outline methodologic challenges in using this indicator in both research and practice, such as documentation, specificity and relevance, preference stability, and measuring nonevents. Recommendations to strengthen the accuracy of measurement of this important quality marker in health care settings include consistent recording of preferences in the medical record, considerations for selection of treatment preferences for tracking, establishing a protocol for review of preferences, and adoption of a consistent measurement approach.
Copyright © 2016 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Measuring What Matters; Quality; measurement; treatment preferences

Mesh:

Year:  2016        PMID: 27677443      PMCID: PMC5586497          DOI: 10.1016/j.jpainsymman.2016.04.015

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  28 in total

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Authors:  Rebecca Dresser
Journal:  Tex Law Rev       Date:  2003-06

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Authors:  Angelo E Volandes; Gary H Brandeis; Aretha Delight Davis; Michael K Paasche-Orlow; Muriel R Gillick; Yuchiao Chang; Elizabeth S Walker-Corkery; Eileen Mann; Susan L Mitchell
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3.  The Optimizing Patient Transfers, Impacting Medical Quality, andImproving Symptoms:Transforming Institutional Care approach: preliminary data from the implementation of a Centers for Medicare and Medicaid Services nursing facility demonstration project.

Authors:  Kathleen T Unroe; Arif Nazir; Laura R Holtz; Helen Maurer; Ellen Miller; Susan E Hickman; Michael A La Mantia; Merih Bennett; Greg Arling; Greg A Sachs
Journal:  J Am Geriatr Soc       Date:  2014-12-23       Impact factor: 5.562

4.  The effect of do-not-resuscitate orders on physician decision-making.

Authors:  Mary Catherine Beach; R Sean Morrison
Journal:  J Am Geriatr Soc       Date:  2002-12       Impact factor: 5.562

Review 5.  Stability of end-of-life preferences: a systematic review of the evidence.

Authors:  Catherine L Auriemma; Christina A Nguyen; Rachel Bronheim; Saida Kent; Shrivatsa Nadiger; Dustin Pardo; Scott D Halpern
Journal:  JAMA Intern Med       Date:  2014-07       Impact factor: 21.873

6.  Negotiating cross-cultural issues at the end of life: "You got to go where he lives".

Authors:  M Kagawa-Singer; L J Blackhall
Journal:  JAMA       Date:  2001-12-19       Impact factor: 56.272

7.  The POLST program: a retrospective review of the demographics of use and outcomes in one community where advance directives are prevalent.

Authors:  Bernard J Hammes; Brenda L Rooney; Jacob D Gundrum; Susan E Hickman; Nickijo Hager
Journal:  J Palliat Med       Date:  2012-01-10       Impact factor: 2.947

8.  The consistency between treatments provided to nursing facility residents and orders on the physician orders for life-sustaining treatment form.

Authors:  Susan E Hickman; Christine A Nelson; Alvin H Moss; Susan W Tolle; Nancy A Perrin; Bernard J Hammes
Journal:  J Am Geriatr Soc       Date:  2011-10-22       Impact factor: 5.562

9.  Changes in orders limiting care and the use of less aggressive care in a nursing home population.

Authors:  J Holtzman; A M Pheley; N Lurie
Journal:  J Am Geriatr Soc       Date:  1994-03       Impact factor: 5.562

10.  Patient involvement in decisions to limit treatment: the crucial role of agreement between physician and patient.

Authors:  Eva C Winkler; Stella Reiter-Theil; Dorothee Lange-Riess; Nina Schmahl-Menges; Wolfgang Hiddemann
Journal:  J Clin Oncol       Date:  2009-03-23       Impact factor: 44.544

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  19 in total

1.  Concordance between Goals of Care and Treatment Decisions for Persons with Dementia.

Authors:  Natalie C Ernecoff; Sheryl Zimmerman; Susan L Mitchell; Mi-Kyung Song; Feng-Chang Lin; Kathryn L Wessell; Laura C Hanson
Journal:  J Palliat Med       Date:  2018-06-29       Impact factor: 2.947

2.  Preferences for home- and community-based long-term care services in Germany: a discrete choice experiment.

Authors:  T Lehnert; O H Günther; A Hajek; S G Riedel-Heller; H H König
Journal:  Eur J Health Econ       Date:  2018-04-06

3.  Using Electronic Health Records for Quality Measurement and Accountability in Care of the Seriously Ill: Opportunities and Challenges.

Authors:  J Randall Curtis; Seelwan Sathitratanacheewin; Helene Starks; Robert Y Lee; Erin K Kross; Lois Downey; James Sibley; William Lober; Elizabeth T Loggers; James A Fausto; Charlotta Lindvall; Ruth A Engelberg
Journal:  J Palliat Med       Date:  2017-11-28       Impact factor: 2.947

Review 4.  Shifting Paradigms: Advance Care Planning for Pain Management in Older Adults With Dementia.

Authors:  Staja Star Booker; Rashida D Booker
Journal:  Gerontologist       Date:  2018-05-08

5.  Factors That Impact Family Perception of Goal-Concordant Care at the End of Life.

Authors:  Lindsay Haines; Omari-Khalid Rahman; Justin J Sanders; Kimberly Johnson; Amy Kelley
Journal:  J Palliat Med       Date:  2019-02-12       Impact factor: 2.947

6.  Inter-Rater Agreement of Intensivists Evaluating the Goal Concordance of Preference-Sensitive ICU Interventions.

Authors:  Alison E Turnbull; Sarina K Sahetya; Elizabeth Colantuoni; Josephine Kweku; Roozbeh Nikooie; J Randall Curtis
Journal:  J Pain Symptom Manage       Date:  2018-06-12       Impact factor: 3.612

7.  Feasibility and Limitations of Quality Measurement of Hospital-Based Palliative Care.

Authors:  Sarah L Gebauer; Nicole G Weiskopf
Journal:  J Palliat Med       Date:  2017-08-22       Impact factor: 2.947

8.  Patient-Reported Receipt of Goal-Concordant Care Among Seriously Ill Outpatients-Prevalence and Associated Factors.

Authors:  Matthew E Modes; Susan R Heckbert; Ruth A Engelberg; Elizabeth L Nielsen; J Randall Curtis; Erin K Kross
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9.  Outcomes That Define Successful Advance Care Planning: A Delphi Panel Consensus.

Authors:  Rebecca L Sudore; Daren K Heyland; Hillary D Lum; Judith A C Rietjens; Ida J Korfage; Christine S Ritchie; Laura C Hanson; Diane E Meier; Steven Z Pantilat; Karl Lorenz; Michelle Howard; Michael J Green; Jessica E Simon; Mariko A Feuz; John J You
Journal:  J Pain Symptom Manage       Date:  2017-09-01       Impact factor: 3.612

10.  Concordance Between Proxy Level of Care Preference and Advance Directives Among Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial.

Authors:  Simon M Cohen; Angelo E Volandes; Michele L Shaffer; Laura C Hanson; Daniel Habtemariam; Susan L Mitchell
Journal:  J Pain Symptom Manage       Date:  2018-09-29       Impact factor: 3.612

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