Literature DB >> 27669132

The Limits of Informed Consent for an Overwhelmed Patient: Clinicians' Role in Protecting Patients and Preventing Overwhelm.

Johan Bester1, Cristie M Cole2, Eric Kodish3.   

Abstract

In this paper, we examine the limits of informed consent with particular focus on ways in which various factors can overwhelm decision-making capacity. We introduce overwhelm as a phenomenon commonly experienced by patients in clinical settings and distinguish between emotional overwhelm and informational overload. We argue that in these situations, a clinician's primary duty is prevention of harm and suggest ways in which clinicians can discharge this obligation. To illustrate our argument, we consider the clinical application of genetic sequencing testing, which involves scientific and technical information that can compromise the understanding and decisional capacity of most patients. Finally, we consider and rebut objections that this could lead to paternalism.
© 2016 American Medical Association. All Rights Reserved.

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Mesh:

Year:  2016        PMID: 27669132     DOI: 10.1001/journalofethics.2016.18.9.peer2-1609

Source DB:  PubMed          Journal:  AMA J Ethics


  20 in total

Review 1.  Consent and capacity: issues for paediatric anaesthesia.

Authors:  K McCombe; D G Bogod
Journal:  BJA Educ       Date:  2020-08-27

2.  We All Need a Little TLC: An Argument for an Increased Role of Child Life Services in Patient Care and Medical Education.

Authors:  Rajapillai L I Pillai
Journal:  Hosp Pediatr       Date:  2020-09-04

3.  Understanding Immunotherapy Terminology: An Analysis of Provider-Patient Conversations.

Authors:  Shannon Blee; Bari Rosenberg; Jeffrey M Switchenko; Rachel Hianik; Mary Catherine Thomson; Margie Dixon; Mehmet Asim Bilen; Rebecca D Pentz
Journal:  Immunomedicine       Date:  2021-09-02

4.  Variation among DNA banking consent forms: points for clinicians to bank on.

Authors:  Samuel J Huang; Laura M Amendola; Darci L Sternen
Journal:  J Community Genet       Date:  2022-07-14

5.  Quality versus quantity in end-of-life choices of cancer patients and support persons: a discrete choice experiment.

Authors:  Amy Waller; Rob Sanson-Fisher; Scott D Brown; Laura Wall; Justin Walsh
Journal:  Support Care Cancer       Date:  2018-05-03       Impact factor: 3.603

6.  Diagnostic and Therapeutic Misconception: Parental Expectations and Perspectives Regarding Genetic Testing for Developmental Disorders.

Authors:  Isabelle Tremblay; Steffany Grondin; Anne-Marie Laberge; Dominique Cousineau; Lionel Carmant; Anita Rowan; Annie Janvier
Journal:  J Autism Dev Disord       Date:  2019-01

7.  How acceptable is paternalism? A survey-based study of clinician and nonclinician opinions on paternalistic decision making.

Authors:  Kunal Bailoor; Thomas Valley; Chithra Perumalswami; Andrew G Shuman; Raymond DeVries; Darin B Zahuranec
Journal:  AJOB Empir Bioeth       Date:  2018-05-03

8.  Digital tools in the informed consent process: a systematic review.

Authors:  Francesco Gesualdo; Margherita Daverio; Laura Palazzani; Dimitris Dimitriou; Javier Diez-Domingo; Jaime Fons-Martinez; Sally Jackson; Pascal Vignally; Caterina Rizzo; Alberto Eugenio Tozzi
Journal:  BMC Med Ethics       Date:  2021-02-27       Impact factor: 2.652

Review 9.  Informed Consent in the Genomics Era.

Authors:  Shannon Rego; Megan E Grove; Mildred K Cho; Kelly E Ormond
Journal:  Cold Spring Harb Perspect Med       Date:  2020-08-03       Impact factor: 5.159

10.  Variation among Consent Forms for Clinical Whole Exome Sequencing.

Authors:  Sara A Fowler; Carol J Saunders; Mark A Hoffman
Journal:  J Genet Couns       Date:  2017-07-08       Impact factor: 2.537

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