Bridgette L Jones1,2,3,4,5, Carrie A Vyhlidal6,7,8,9, Andrea Bradley-Ewing6,8,10, Ashley Sherman6,8,10, Kathy Goggin6,8,9,10. 1. Department of Pediatrics, University of Missouri-Kansas City, 2401 Gillham Rd, Kansas City, MO, 64108, USA. bljones@cmh.edu. 2. Division of Pediatric Pharmacology and Therapeutic Innovation, Children's Mercy Hospitals and Clinics, Kansas City, MO, USA. bljones@cmh.edu. 3. Division of Allergy, Asthma and Clinical Immunology, Children's Mercy Hospitals and Clinics, Kansas City, MO, USA. bljones@cmh.edu. 4. Children's Mercy Hospitals and Clinics, Kansas City, MO, USA. bljones@cmh.edu. 5. Schools of Medicine and Pharmacy, University of Missouri-Kansas City, Kansas City, MO, USA. bljones@cmh.edu. 6. Department of Pediatrics, University of Missouri-Kansas City, 2401 Gillham Rd, Kansas City, MO, 64108, USA. 7. Division of Pediatric Pharmacology and Therapeutic Innovation, Children's Mercy Hospitals and Clinics, Kansas City, MO, USA. 8. Children's Mercy Hospitals and Clinics, Kansas City, MO, USA. 9. Schools of Medicine and Pharmacy, University of Missouri-Kansas City, Kansas City, MO, USA. 10. Division of Health Services and Outcome Research, University of Missouri-Kansas City, Kansas City, MO, USA.
Abstract
BACKGROUND: African Americans are under-represented in research, and there are perceptions of unwillingness among African Americans to participate in research. We explored barriers to African American research participation. METHODS: We conducted a cross-sectional survey to explore knowledge and beliefs regarding medical and genetic research among adults (n = 169) at urban community events. Descriptive data were summarized by frequencies for survey responses. RESULTS: Only 13 % of respondents had ever been approached for research; 93 % of those who had been approached for research had participated. Eighty-six percent of those who had previous research experience indicated willingness to participate again vs. only 30 % among those with no research experience. Seventy-four percent had altruistic views of research; 28 % were concerned about truthfulness of researchers; 52 % feared incidental discoveries. CONCLUSION: African Americans have favorable views of research; however, few are being engaged in studies. Effective interventions to address identified barriers may improve participation and lead to better health outcomes among African Americans.
BACKGROUND: African Americans are under-represented in research, and there are perceptions of unwillingness among African Americans to participate in research. We explored barriers to African American research participation. METHODS: We conducted a cross-sectional survey to explore knowledge and beliefs regarding medical and genetic research among adults (n = 169) at urban community events. Descriptive data were summarized by frequencies for survey responses. RESULTS: Only 13 % of respondents had ever been approached for research; 93 % of those who had been approached for research had participated. Eighty-six percent of those who had previous research experience indicated willingness to participate again vs. only 30 % among those with no research experience. Seventy-four percent had altruistic views of research; 28 % were concerned about truthfulness of researchers; 52 % feared incidental discoveries. CONCLUSION: African Americans have favorable views of research; however, few are being engaged in studies. Effective interventions to address identified barriers may improve participation and lead to better health outcomes among African Americans.
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