Literature DB >> 27585604

Latino Families' Experiences With Autism Services: Disparities, Capabilities, and Occupational Justice.

Amber M Angell1,2, Gelya Frank1, Olga Solomon1.   

Abstract

This article examines six cases of publicly funded Applied Behavior Analysis (ABA) therapy for Latino children with autism spectrum disorder (ASD) to contribute to thinking about occupational justice. In this ethnographic study of six Latino families of children with ASD in Los Angeles County, all families were offered ABA for their children, but five families experienced occupational challenges leading them to insist on modifications of ABA or to opt out of the service. We consider in each case (a) how the families' experiences can be understood occupationally, (b) how ABA affected the functionings and capabilities of the children and their families, and (c) how the parents' accounts relate to occupational justice. Applying the capabilities approach can help operationalize the concept of occupational justice as a tool to evaluate social policy across cases.

Entities:  

Keywords:  autism; disparity; occupational justice; services

Year:  2016        PMID: 27585604      PMCID: PMC5332377          DOI: 10.1177/1539449216666062

Source DB:  PubMed          Journal:  OTJR (Thorofare N J)        ISSN: 1539-4492


  9 in total

1.  Applied Behavior Analysis is a Science and, Therefore, Progressive.

Authors:  Justin B Leaf; Ronald Leaf; John McEachin; Mitchell Taubman; Shahla Ala'i-Rosales; Robert K Ross; Tristram Smith; Mary Jane Weiss
Journal:  J Autism Dev Disord       Date:  2016-02

2.  Occupational science: academic innovation in the service of occupational therapy's future.

Authors:  F A Clark; D Parham; M E Carlson; G Frank; J Jackson; D Pierce; R J Wolfe; R Zemke
Journal:  Am J Occup Ther       Date:  1991-04

3.  An introduction to occupational science, a foundation for occupational therapy in the 21st century.

Authors:  E J Yerxa
Journal:  Occup Ther Health Care       Date:  1990

4.  Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use.

Authors:  Katherine E Pickard; Brooke R Ingersoll
Journal:  Autism       Date:  2015-05-06

5.  The social life of health records: understanding families' experiences of autism.

Authors:  Amber M Angell; Olga Solomon
Journal:  Soc Sci Med       Date:  2014-07-08       Impact factor: 4.634

6.  Clinical myths of the cultural "other": implications for Latino patient care.

Authors:  Linda M Hunt; Katherine B de Voogd
Journal:  Acad Med       Date:  2005-10       Impact factor: 6.893

7.  Behavioral treatment and normal educational and intellectual functioning in young autistic children.

Authors:  O I Lovaas
Journal:  J Consult Clin Psychol       Date:  1987-02

8.  Spending by California's Department of Developmental Services for Persons with Autism across Demographic and Expenditure Categories.

Authors:  J Paul Leigh; Scott D Grosse; Diana Cassady; Joy Melnikow; Irva Hertz-Picciotto
Journal:  PLoS One       Date:  2016-03-25       Impact factor: 3.240

Review 9.  Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD).

Authors:  Brian Reichow; Kara Hume; Erin E Barton; Brian A Boyd
Journal:  Cochrane Database Syst Rev       Date:  2018-05-09
  9 in total
  5 in total

1.  Examining unconscious bias embedded in provider language regarding children with autism.

Authors:  Dominique H Como; Lucía I Floríndez; Christine F Tran; Sharon A Cermak; Leah I Stein Duker
Journal:  Nurs Health Sci       Date:  2019-06-25       Impact factor: 1.857

2.  'If I was a different ethnicity, would she treat me the same?': Latino parents' experiences obtaining autism services.

Authors:  Amber M Angell; Olga Solomon
Journal:  Disabil Soc       Date:  2017-07-03

3.  A First Look at Applied Behavior Analysis Service Delivery to Latino American Families Raising a Child With Autism Spectrum Disorder.

Authors:  Rocío Rosales; Alberto Leon; Richard W Serna; Melissa Maslin; Ashley Arevalo; Carol Curtin
Journal:  Behav Anal Pract       Date:  2021-04-19

4.  Understanding parents' concerns about their children with autism taking public school transportation in Los Angeles County.

Authors:  Amber M Angell; Olga Solomon
Journal:  Autism       Date:  2017-02-01

5.  Helping Optimize Language Acquisition (HOLA) Online Parent Training Modules for Latinx Parents of Toddlers at Risk for ASD: Protocol for a Pilot Funded by the Organization for Autism Research.

Authors:  Robin Lynn Dodds
Journal:  JMIR Res Protoc       Date:  2020-12-10
  5 in total

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