Literature DB >> 27443149

Is there a Role for Genetic Counselors in Prenatal Paternity Testing? - an Assessment Based on Audit of 13 years of Clinical Experience in South Australia.

Kate E Riley1, Hayley Salvemini2, Eric Haan2,3, Lara Fitzgerald2, Kirsty Stallard2, Sarah Borrie2, Electra Pontikinas4, Anne Baxendale2.   

Abstract

The role of genetic counselors in prenatal paternity testing has not been widely studied in the genetic counseling literature. In South Australia, the genetic counselors of the State's public sector clinical genetics service are the primary contact point for women seeking information and testing, also coordinating the testing process. This has provided the opportunity to review all prenatal paternity testing performed in the State over a 13 year period and to consider the role played by the genetic counselor. We explored the reasons why women requested prenatal paternity testing and whether the genetic counselor was an appropriate health professional to facilitate this testing for women. The study had two parts, an audit of the clinical genetics files of 160 women who requested prenatal paternity testing between March 2001 and March 2014, and qualitative interviews of genetic counselors, clinical geneticists, obstetricians and social workers with involvement in this area. The audit determined that in 69.9 % of cases the long-term partner was the father of the pregnancy, for 23.7 % the short-term or other partner was the father and for 6.4 % the paternity results were not known by the genetic counselor. For 45.5 % of women whose long-term partner was excluded as the father, the women chose to have a termination of pregnancy. The results of the qualitative interviews yielded five major themes: accessibility of testing, role of the genetic counselor, social and relationship issues, decision making in pregnancy and emotional issues. We conclude that the genetic counselor is an appropriate health professional to facilitate prenatal paternity testing. Genetic counselors did not view their role as significantly different from a request for prenatal testing for another indication.

Entities:  

Keywords:  Genetic counseling; Paternity; Prenatal diagnosis; Prenatal paternity testing; Role of genetic counselor

Mesh:

Year:  2016        PMID: 27443149     DOI: 10.1007/s10897-016-9994-1

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  23 in total

1.  Non-paternity and genetic counselling.

Authors:  M G Le Roux; O Pascal; M T Andre; O Herbert; A David; J P Moisan
Journal:  Lancet       Date:  1992-09-05       Impact factor: 79.321

2.  Non-paternity and prenatal genetic screening.

Authors:  D J Brock; A E Shrimpton
Journal:  Lancet       Date:  1991-11-02       Impact factor: 79.321

Review 3.  The obstetrician's view: ethical and societal implications of non-invasive prenatal diagnosis.

Authors:  Richard P Smith; Hennie Lombaard; Peter W Soothill
Journal:  Prenat Diagn       Date:  2006-07       Impact factor: 3.050

Review 4.  Ethical aspects arising from non-invasive fetal diagnosis.

Authors:  Ainsley J Newson
Journal:  Semin Fetal Neonatal Med       Date:  2008-04       Impact factor: 3.926

Review 5.  Measuring paternal discrepancy and its public health consequences.

Authors:  Mark A Bellis; Karen Hughes; Sara Hughes; John R Ashton
Journal:  J Epidemiol Community Health       Date:  2005-09       Impact factor: 3.710

6.  Discovering misattributed paternity in genetic counselling: different ethical perspectives in two countries.

Authors:  Pamela Tozzo; Luciana Caenazzo; Michael J Parker
Journal:  J Med Ethics       Date:  2013-02-26       Impact factor: 2.903

Review 7.  Ethical challenges in providing noninvasive prenatal diagnosis.

Authors:  Peter A Benn; Audrey R Chapman
Journal:  Curr Opin Obstet Gynecol       Date:  2010-04       Impact factor: 1.927

8.  Direct to consumer testing in reproductive contexts--should health professionals be concerned?

Authors:  Heather Skirton
Journal:  Life Sci Soc Policy       Date:  2015-04-29

Review 9.  The Psychological Challenges of Replacing Conventional Karyotyping with Genomic SNP Array Analysis in Prenatal Testing.

Authors:  Sam Riedijk; Karin E M Diderich; Sanne L van der Steen; Lutgarde C P Govaerts; Marieke Joosten; Maarten F C M Knapen; Femke A T de Vries; Diane van Opstal; Aad Tibben; Robert-Jan H Galjaard
Journal:  J Clin Med       Date:  2014-07-03       Impact factor: 4.241

10.  Informatics-based, highly accurate, noninvasive prenatal paternity testing.

Authors:  Allison Ryan; Johan Baner; Zachary Demko; Matthew Hill; Styrmir Sigurjonsson; Michael L Baird; Matthew Rabinowitz
Journal:  Genet Med       Date:  2012-12-20       Impact factor: 8.822

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