J Volden1, E Duku2, C Shepherd1, S Georgiades2, T Bennett2, B Di Rezze2, P Szatmari3, S Bryson4, E Fombonne5, P Mirenda6, W Roberts3, I M Smith4, T Vaillancourt7, C Waddell8, L Zwaigenbaum1, M Elsabbagh9. 1. University of Alberta, Edmonton, Alberta; 2. McMaster University, Hamilton; 3. University of Toronto, Toronto, Ontario; 4. Dalhousie University, Halifax, Nova Scotia; 5. Oregon Health and Sciences University, Portland, Oregon, USA; 6. University of British Columbia, Vancouver, British Columbia; 7. University of Ottawa, Ottawa, Ontario; 8. Simon Fraser University, Burnaby, British Columbia; 9. McGill University, Montreal, Quebec.
Abstract
OBJECTIVE: To describe services received by preschool children diagnosed with autism spectrum disorder (ASD) during the five-year period following their diagnosis. METHOD: An inception cohort of preschoolers diagnosed with ASD from Halifax (Nova Scotia), Montreal (Quebec), Hamilton (Ontario), Edmonton (Alberta) and Vancouver (British Columbia) were invited to participate. Parents/caregivers (n=414) described the services provided to their children at four time points: baseline (T1; within four months of diagnosis; mean age three years); six months later (T2); 12 months later (T3); and at school entry (T4). Data were first coded into 11 service types and subsequently combined into four broader categories (no services, behavioural, developmental and general) for analysis. RESULTS: More than 80% of children at T1, and almost 95% at T4 received some type of service, with a significant number receiving >1 type of service at each assessment point. At T1, the most common service was developmental (eg, speech-language therapy). Subsequently, the most common services were a combination of behavioural and developmental (eg, intensive therapy based on applied behaviour analysis and speech-language therapy). Service provision varied across provinces and over time. DISCUSSION: Although most preschool children with ASD residing in urban centres were able to access specialized services shortly after diagnosis, marked variation in services across provinces remains a concern.
OBJECTIVE: To describe services received by preschool children diagnosed with autism spectrum disorder (ASD) during the five-year period following their diagnosis. METHOD: An inception cohort of preschoolers diagnosed with ASD from Halifax (Nova Scotia), Montreal (Quebec), Hamilton (Ontario), Edmonton (Alberta) and Vancouver (British Columbia) were invited to participate. Parents/caregivers (n=414) described the services provided to their children at four time points: baseline (T1; within four months of diagnosis; mean age three years); six months later (T2); 12 months later (T3); and at school entry (T4). Data were first coded into 11 service types and subsequently combined into four broader categories (no services, behavioural, developmental and general) for analysis. RESULTS: More than 80% of children at T1, and almost 95% at T4 received some type of service, with a significant number receiving >1 type of service at each assessment point. At T1, the most common service was developmental (eg, speech-language therapy). Subsequently, the most common services were a combination of behavioural and developmental (eg, intensive therapy based on applied behaviour analysis and speech-language therapy). Service provision varied across provinces and over time. DISCUSSION: Although most preschool children with ASD residing in urban centres were able to access specialized services shortly after diagnosis, marked variation in services across provinces remains a concern.
Authors: Charlotte Waddell; John N Lavis; Julia Abelson; Jonathan Lomas; Cody A Shepherd; Twylla Bird-Gayson; Mita Giacomini; David R Dan Offord Journal: Soc Sci Med Date: 2005-04-26 Impact factor: 4.634
Authors: Stelios Georgiades; Peter Szatmari; Michael Boyle; Steven Hanna; Eric Duku; Lonnie Zwaigenbaum; Susan Bryson; Eric Fombonne; Joanne Volden; Pat Mirenda; Isabel Smith; Wendy Roberts; Tracy Vaillancourt; Charlotte Waddell; Teresa Bennett; Ann Thompson Journal: J Child Psychol Psychiatry Date: 2012-08-01 Impact factor: 8.982
Authors: Kate Tsiplova; Wendy J Ungar; Helen E Flanagan; Jeffrey den Otter; Charlotte Waddell; Patricia Murray; Barbara D'Entremont; Natalie Léger; Nancy Garon; Susan Bryson; Isabel M Smith Journal: J Autism Dev Disord Date: 2019-06
Authors: Isabel M Smith; Charlotte Waddell; Wendy J Ungar; Jeffrey den Otter; Patricia Murray; Francine Vezina; Barbara D'Entremont; Helen E Flanagan; Nancy Garon Journal: Paediatr Child Health Date: 2020-09-20 Impact factor: 2.253
Authors: Sarah Milosevic; Lucy Brookes-Howell; Elizabeth Randell; Rhys Williams-Thomas; Sue Delport; Monica Busse; David Gillespie; Alka S Ahuja; Anne Marie McKigney; Eleni Glarou; Rachel McNamara Journal: Health Expect Date: 2022-03-18 Impact factor: 3.318
Authors: Stelios Georgiades; Peter A Tait; Paul D McNicholas; Eric Duku; Lonnie Zwaigenbaum; Isabel M Smith; Teresa Bennett; Mayada Elsabbagh; Connor M Kerns; Pat Mirenda; Wendy J Ungar; Tracy Vaillancourt; Joanne Volden; Charlotte Waddell; Anat Zaidman-Zait; Stephen Gentles; Peter Szatmari Journal: J Autism Dev Disord Date: 2021-03-11