Literature DB >> 22089166

Service and wider societal costs of very young children with autism in the UK.

Barbara Barrett1, Sarah Byford, Jessica Sharac, Kristelle Hudry, Kathy Leadbitter, Kathryn Temple, Catherine Aldred, Vicky Slonims, Jonathan Green.   

Abstract

Autism spectrum disorders (ASD) are associated with a substantial economic burden, but there is little evidence of the costs in the early years; the period in which children are increasingly likely to be diagnosed. We describe the services used by 152 children aged 24-60 months with autism, report family out-of-pocket expenses and productivity losses, and explore the relationship between family characteristics and costs. Children received a wide range of hospital and community services including relatively high levels of contact with speech and language therapists and paediatricians. Total service costs varied greatly (mean £430 per month; range £53 to £1,116), with some families receiving little statutory support. Higher costs were associated with increasing age and symptom severity.

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Mesh:

Year:  2012        PMID: 22089166     DOI: 10.1007/s10803-011-1306-x

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  14 in total

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Journal:  J Health Econ       Date:  1999-04       Impact factor: 3.883

2.  Cost-effectiveness of selective serotonin reuptake inhibitors and routine specialist care with and without cognitive behavioural therapy in adolescents with major depression.

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Journal:  Br J Psychiatry       Date:  2007-12       Impact factor: 9.319

Review 3.  Analysis and interpretation of cost data in randomised controlled trials: review of published studies.

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Journal:  BMJ       Date:  1998-10-31

4.  The economic burden of pervasive developmental disorders in a privately insured population.

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Journal:  Manag Care Interface       Date:  2006-08

5.  Access to care for autism-related services.

Authors:  Kathleen C Thomas; Alan R Ellis; Carolyn McLaurin; Julie Daniels; Joseph P Morrissey
Journal:  J Autism Dev Disord       Date:  2007-03-19

6.  The autism diagnostic observation schedule-generic: a standard measure of social and communication deficits associated with the spectrum of autism.

Authors:  C Lord; S Risi; L Lambrecht; E H Cook; B L Leventhal; P C DiLavore; A Pickles; M Rutter
Journal:  J Autism Dev Disord       Date:  2000-06

Review 7.  Practitioner review: Diagnosis of autism spectrum disorder in 2- and 3-year-old children.

Authors:  Tony Charman; Gillian Baird
Journal:  J Child Psychol Psychiatry       Date:  2002-03       Impact factor: 8.982

8.  Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children's Health.

Authors:  Gregory S Liptak; Lauren B Benzoni; Daniel W Mruzek; Karen W Nolan; Melissa A Thingvoll; Christine M Wade; G Edgar Fryer
Journal:  J Dev Behav Pediatr       Date:  2008-06       Impact factor: 2.225

9.  Autism Diagnostic Interview-Revised: a revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders.

Authors:  C Lord; M Rutter; A Le Couteur
Journal:  J Autism Dev Disord       Date:  1994-10

10.  Economic cost of autism in the UK.

Authors:  Martin Knapp; Renée Romeo; Jennifer Beecham
Journal:  Autism       Date:  2009-05
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  29 in total

1.  Service utilization in a sample of preschool children with autism spectrum disorder: A Canadian snapshot.

Authors:  J Volden; E Duku; C Shepherd; S Georgiades; T Bennett; B Di Rezze; P Szatmari; S Bryson; E Fombonne; P Mirenda; W Roberts; I M Smith; T Vaillancourt; C Waddell; L Zwaigenbaum; M Elsabbagh
Journal:  Paediatr Child Health       Date:  2015 Nov-Dec       Impact factor: 2.253

2.  Types of Services and Costs of Programs for Preschoolers with Autism Spectrum Disorder Across Sectors: A Comparison of Two Canadian Provinces.

Authors:  Kate Tsiplova; Wendy J Ungar; Helen E Flanagan; Jeffrey den Otter; Charlotte Waddell; Patricia Murray; Barbara D'Entremont; Natalie Léger; Nancy Garon; Susan Bryson; Isabel M Smith
Journal:  J Autism Dev Disord       Date:  2019-06

3.  Cost-Effectiveness Analysis Comparing Pre-diagnosis Autism Spectrum Disorder (ASD)-Targeted Intervention with Ontario's Autism Intervention Program.

Authors:  Melanie Penner; Meera Rayar; Naazish Bashir; S Wendy Roberts; Rebecca L Hancock-Howard; Peter C Coyte
Journal:  J Autism Dev Disord       Date:  2015-09

4.  Effectiveness of community-based early intervention based on pivotal response treatment.

Authors:  Isabel M Smith; Helen E Flanagan; Nancy Garon; Susan E Bryson
Journal:  J Autism Dev Disord       Date:  2015-06

5.  Variation in socio-economic burden for caring of children with autism spectrum disorder in Oman: caregiver perspectives.

Authors:  Yahya M Al-Farsi; Mostafa I Waly; Marwan M Al-Sharbati; Mohamed Al-Shafaee; Omar Al-Farsi; Samiya Al-Fahdi; Allal Ouhtit; Maha Al-Khaduri; Samir Al-Adawi
Journal:  J Autism Dev Disord       Date:  2013-05

6.  Cost Offset Associated With Early Start Denver Model for Children With Autism.

Authors:  Zuleyha Cidav; Jeff Munson; Annette Estes; Geraldine Dawson; Sally Rogers; David Mandell
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2017-07-04       Impact factor: 8.829

7.  Interventions based on early intensive applied behaviour analysis for autistic children: a systematic review and cost-effectiveness analysis.

Authors:  Mark Rodgers; David Marshall; Mark Simmonds; Ann Le Couteur; Mousumi Biswas; Kath Wright; Dheeraj Rai; Stephen Palmer; Lesley Stewart; Robert Hodgson
Journal:  Health Technol Assess       Date:  2020-07       Impact factor: 4.014

8.  Common approaches to intervention for the support and education of children with autism in the UK: an internet-based parent survey.

Authors:  Louise D Denne; Richard P Hastings; Carl J Hughes
Journal:  Int J Dev Disabil       Date:  2017-01-09

Review 9.  The Economic Costs of Autism Spectrum Disorder: A Literature Review.

Authors:  Nicky Rogge; Juliette Janssen
Journal:  J Autism Dev Disord       Date:  2019-07

10.  Adaptive Behaviour and Cognitive Skills: Stability and Change from 7 Months to 7 Years in Siblings at High Familial Risk of Autism Spectrum Disorder.

Authors:  Erica Salomone; Elizabeth Shephard; Bosiljka Milosavljevic; Mark H Johnson; Tony Charman
Journal:  J Autism Dev Disord       Date:  2018-09
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