Literature DB >> 33936332

Preschool autism services: A tale of two Canadian provinces and the implications for policy.

Isabel M Smith1,2,3, Charlotte Waddell4, Wendy J Ungar5,6, Jeffrey den Otter7, Patricia Murray8, Francine Vezina9, Barbara D'Entremont10, Helen E Flanagan3, Nancy Garon11.   

Abstract

For children with autism spectrum disorder (ASD), a lifelong neurodevelopmental condition, assessment and treatment services vary widely across Canada-potentially creating inequities. To highlight this, the Preschool Autism Treatment Impact study compared children's services and outcomes in New Brunswick (NB) and Nova Scotia (NS). Diagnostic practices, service delivery models, wait times, and treatment approaches differed, as did children's 1-year outcomes and costs for families and the public sector. Considering NB and NS strengths, we suggest that an optimal system would include: rapid access to high-quality diagnostic and intervention services; adherence to research-informed practice guidelines; interventions to enhance parents' skills and self-efficacy; and measures to minimize financial burdens for families. Our results also suggest that provinces/territories must do more to ensure equitable access to effective services, including sharing and reporting on national comparative data. Canadian children with ASD deserve access to effective and consistent services, no matter where they live.
© The Author(s) 2020. Published by Oxford University Press on behalf of the Canadian Paediatric Society. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  Autism spectrum disorder; Diagnosis; Early intervention; Economic analysis; Policy

Year:  2020        PMID: 33936332      PMCID: PMC8077201          DOI: 10.1093/pch/pxaa097

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


  12 in total

1.  Service utilization in a sample of preschool children with autism spectrum disorder: A Canadian snapshot.

Authors:  J Volden; E Duku; C Shepherd; S Georgiades; T Bennett; B Di Rezze; P Szatmari; S Bryson; E Fombonne; P Mirenda; W Roberts; I M Smith; T Vaillancourt; C Waddell; L Zwaigenbaum; M Elsabbagh
Journal:  Paediatr Child Health       Date:  2015 Nov-Dec       Impact factor: 2.253

2.  Types of Services and Costs of Programs for Preschoolers with Autism Spectrum Disorder Across Sectors: A Comparison of Two Canadian Provinces.

Authors:  Kate Tsiplova; Wendy J Ungar; Helen E Flanagan; Jeffrey den Otter; Charlotte Waddell; Patricia Murray; Barbara D'Entremont; Natalie Léger; Nancy Garon; Susan Bryson; Isabel M Smith
Journal:  J Autism Dev Disord       Date:  2019-06

3.  Effectiveness of community-based early intervention based on pivotal response treatment.

Authors:  Isabel M Smith; Helen E Flanagan; Nancy Garon; Susan E Bryson
Journal:  J Autism Dev Disord       Date:  2015-06

4.  The persistence and stability of psychiatric problems in adolescents with autism spectrum disorders.

Authors:  Emily Simonoff; Catherine R G Jones; Gillian Baird; Andrew Pickles; Francesca Happé; Tony Charman
Journal:  J Child Psychol Psychiatry       Date:  2012-08-31       Impact factor: 8.982

5.  Progress and gaps in Quebec's autism policy: a comprehensive review and thematic analysis.

Authors:  Jinan Zeidan; Keiko Shikako-Thomas; Annahita Ehsan; Antonia Maioni; Mayada Elsabbagh
Journal:  Can J Public Health       Date:  2019-04-23

6.  Developmental functioning and symptom severity influence age of diagnosis in Canadian preschool children with autism.

Authors:  Lonnie Zwaigenbaum; Eric Duku; Eric Fombonne; Peter Szatmari; Isabel M Smith; Susan E Bryson; Pat Mirenda; Tracy Vaillancourt; Joanne Volden; Stelios Georgiades; Wendy Roberts; Teresa Bennett; Mayada Elsabbagh; Charlotte Waddell; Mandy Steiman; Rebecca Simon; Ruth Bruno
Journal:  Paediatr Child Health       Date:  2018-07-02       Impact factor: 2.253

7.  Environmental scan of Canadian and UK policies for autism spectrum disorder diagnostic assessment.

Authors:  Melanie Penner; Evdokia Anagnostou; Lana Y Andoni; Wendy J Ungar
Journal:  Paediatr Child Health       Date:  2018-08-03       Impact factor: 2.253

8.  Project AIM: Autism intervention meta-analysis for studies of young children.

Authors:  Micheal Sandbank; Kristen Bottema-Beutel; Shannon Crowley; Margaret Cassidy; Kacie Dunham; Jacob I Feldman; Jenna Crank; Susanne A Albarran; Sweeya Raj; Prachy Mahbub; Tiffany G Woynaroski
Journal:  Psychol Bull       Date:  2019-11-25       Impact factor: 17.737

9.  A Qualitative Study of Autism Policy in Canada: Seeking Consensus on Children's Services.

Authors:  Cody A Shepherd; Charlotte Waddell
Journal:  J Autism Dev Disord       Date:  2015-11

Review 10.  Predictors of outcomes in autism early intervention: why don't we know more?

Authors:  Giacomo Vivanti; Margot Prior; Katrina Williams; Cheryl Dissanayake
Journal:  Front Pediatr       Date:  2014-06-20       Impact factor: 3.418

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