Literature DB >> 18282343

Bereaved parents' perspectives on their needs.

Norma Mammone D'Agostino1, Deborah Berlin-Romalis, Vesna Jovcevska, Maru Barrera.   

Abstract

OBJECTIVE: The loss of a child can be traumatic for parents, given the profound bond established with the deceased child. Parental bereavement and the need for bereavement services are not well understood. This study examined parental perspectives regarding bereavement services from a pediatric oncology treating center.
METHODS: A 2-h focus group of seven parents, audiotaped and transcribed verbatim, was conducted by two facilitators using open-ended questions to generate discussion regarding their views of what services were or would be helpful during early bereavement.
RESULTS: Parents perceived flexible and continuous bereavement services from the treating hospital as a necessary transition to community services. Talking to other parents with similar experiences and maintaining contact with staff at the treating hospital were considered critical in their healing after the loss. SIGNIFICANCE OF
RESULTS: Transitional multimodality bereavement services offered by the treating hospital will improve the quality of life of bereaved families.

Entities:  

Mesh:

Year:  2008        PMID: 18282343     DOI: 10.1017/S1478951508000060

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  11 in total

1.  Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?

Authors:  Wendy G Lichtenthal; Geoffrey W Corner; Corinne R Sweeney; Lori Wiener; Kailey E Roberts; Raymond E Baser; Yuelin Li; William Breitbart; David W Kissane; Holly G Prigerson
Journal:  J Clin Oncol       Date:  2015-06-01       Impact factor: 44.544

Review 2.  The central role of meaning in adjustment to the loss of a child to cancer: implications for the development of meaning-centered grief therapy.

Authors:  Wendy G Lichtenthal; William Breitbart
Journal:  Curr Opin Support Palliat Care       Date:  2015-03       Impact factor: 2.302

3.  Bereaved parents and siblings offer advice to health care providers and researchers.

Authors:  Amii C Steele; Julia Kaal; Amanda L Thompson; Maru Barrera; Bruce E Compas; Betty Davies; Diane L Fairclough; Terrah L Foster; Mary Jo Gilmer; Nancy Hogan; Kathryn Vannatta; Cynthia A Gerhardt
Journal:  J Pediatr Hematol Oncol       Date:  2013-05       Impact factor: 1.289

4.  An open trial of meaning-centered grief therapy: Rationale and preliminary evaluation.

Authors:  Wendy G Lichtenthal; Corinne Catarozoli; Melissa Masterson; Elizabeth Slivjak; Elizabeth Schofield; Kailey E Roberts; Robert A Neimeyer; Lori Wiener; Holly G Prigerson; David W Kissane; Yuelin Li; William Breitbart
Journal:  Palliat Support Care       Date:  2019-01-26

5.  Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.

Authors:  Lori Wiener; Abby R Rosenberg; Wendy G Lichtenthal; Julia Tager; Meaghann S Weaver
Journal:  Palliat Support Care       Date:  2018-02-01

Review 6.  Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology.

Authors:  Wendy G Lichtenthal; Corinne R Sweeney; Kailey E Roberts; Geoffrey W Corner; Leigh A Donovan; Holly G Prigerson; Lori Wiener
Journal:  Pediatr Blood Cancer       Date:  2015-12       Impact factor: 3.167

7.  Thank you for your lovely card: ethical considerations in responding to bereaved parents invited in error to participate in childhood cancer survivorship research.

Authors:  Claire E Wakefield; Jordana K McLoone; Leigh A Donovan; Richard J Cohn
Journal:  Med Health Care Philos       Date:  2015-02

8.  Initial development and psychometric testing of an instrument to measure the quality of children's end-of-life care.

Authors:  Kimberley Widger; Ann E Tourangeau; Rose Steele; David L Streiner
Journal:  BMC Palliat Care       Date:  2015-01-13       Impact factor: 3.234

9.  How do parents experience support after the death of their child?

Authors:  Sandra Gijzen; Monique P L'Hoir; Magda M Boere-Boonekamp; Ariana Need
Journal:  BMC Pediatr       Date:  2016-12-07       Impact factor: 2.125

10.  When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care.

Authors:  Karin Zimmermann; Eva Bergstraesser; Sandra Engberg; Anne-Sylvie Ramelet; Katrin Marfurt-Russenberger; Nicolas Von der Weid; Chantal Grandjean; Patricia Fahrni-Nater; Eva Cignacco
Journal:  BMC Palliat Care       Date:  2016-03-09       Impact factor: 3.234

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