Literature DB >> 26590869

A systematic review of studies evaluating Australian indigenous community development projects: the extent of community participation, their methodological quality and their outcomes.

Mieke Snijder1, Anthony Shakeshaft2, Annemarie Wagemakers3, Anne Stephens4, Bianca Calabria5.   

Abstract

BACKGROUND: Community development is a health promotion approach identified as having great potential to improve Indigenous health, because of its potential for extensive community participation. There has been no systematic examination of the extent of community participation in community development projects and little analysis of their effectiveness. This systematic review aims to identify the extent of community participation in community development projects implemented in Australian Indigenous communities, critically appraise the qualitative and quantitative methods used in their evaluation, and summarise their outcomes.
METHODS: Ten electronic peer-reviewed databases and two electronic grey literature databases were searched for relevant studies published between 1990 and 2015. The level of community participation and the methodological quality of the qualitative and quantitative components of the studies were assessed against standardised criteria.
RESULTS: Thirty one evaluation studies of community development projects were identified. Community participation varied between different phases of project development, generally high during project implementation, but low during the evaluation phase. For the majority of studies, methodological quality was low and the methods were poorly described. Although positive qualitative or quantitative outcomes were reported in all studies, only two studies reported statistically significant outcomes. DISCUSSION: Partnerships between researchers, community members and service providers have great potential to improve methodological quality and community participation when research skills and community knowledge are integrated to design, implement and evaluate community development projects.
CONCLUSION: The methodological quality of studies evaluating Australian Indigenous community development projects is currently too weak to confidently determine the cost-effectiveness of community development projects in improving the health and wellbeing of Indigenous Australians. Higher quality studies evaluating community development projects would strengthen the evidence base.

Entities:  

Mesh:

Year:  2015        PMID: 26590869      PMCID: PMC4655078          DOI: 10.1186/s12889-015-2514-7

Source DB:  PubMed          Journal:  BMC Public Health        ISSN: 1471-2458            Impact factor:   3.295


Background

The health gap between Indigenous and non-Indigenous Australians has been well documented [1-3]. Systematic literature reviews, however, have consistently concluded that evaluations of interventions aimed at reducing this health gap lack methodological rigour [4-12]. In addition to improving the methodological quality of the evidence-base, the need for greater community participation in, and control of, Indigenous health promotion research have been advocated [13-15]. Community participation has long been argued as being an essential factor in successful health promotion initiatives [16-18]. A recent meta-analysis concluded that community participation is effective when used in health promotion projects because it engenders greater community motivation and increases the sustainability of projects [19]. Although the review did not include Indigenous communities, the principle of community participation is highly relevant to Indigenous Australians and has great potential to improve Indigenous health. The history of dispossession and disempowerment experienced by Indigenous people highlights the importance of the full and active participation of community members to develop plausible solutions to the problems they themselves have identified [9, 20–25]. The community development approach strives to empower Indigenous communities to develop and utilise skills that will enable them to more directly address the risk factors that determine their health status [26]. Despite the potential of community development approaches for improving Indigenous health outcomes, there has been no systematic examination of the extent to which they have engendered community participation and little analysis of their effectiveness. The only existing systematic review of Indigenous community development, published in 2007, evaluated 17 projects implemented in Indigenous communities in Australia, Canada, New Zealand and the United States [9]. This review emphasised that high levels of community participation were a critical factor in the success with which community development projects were implemented, however, it did not assess the level of community participation nor systematically assessed the methodological qualities of the studies. This lack of project evaluation has made it difficult to confidently estimate the extent to which community development projects have improved the health and life expectancy of Indigenous People. This systematic review aims to identify the extent of community participation in community development projects implemented in Australian Indigenous communities, critically appraise the qualitative and quantitative methods used in their evaluation, and summarise their outcomes.

Methods

Identification of publications

The peer-reviewed and grey literature were searched to identify studies evaluating Indigenous community development projects in Australia, published between 1990 and 2015. Twenty-five years of community development projects was judged to be sufficient to provide an overview of the most recent projects. Figure 1 summarises the databases searched, the search terms used, the eligibility criteria and the classification process based on the PRISMA flow diagram [27].
Fig. 1

PRISMA flow diagram: systematic search identifying evaluation studies of Australian Indigenous Community Development projects

PRISMA flow diagram: systematic search identifying evaluation studies of Australian Indigenous Community Development projects Ten peer-reviewed databases were searched: Health and Society, Aboriginal and Torres Strait Islander Health Bibliography (ATSIHealth), AIATSIS, APAIS-AIATSIS, FAMILY-ATSIS, ProQuest, Scopus, CINAHL, PsychINFO, and Medline/Pubmed. Two grey literature databases were searched: HealthInfonet and Closing the Gap Clearinghouse. The electronic database search identified 3623 publications and 411 duplicates were removed. Reference lists of the identified publications were scanned which identified an additional 20 publications. Another 11 publications were received from researchers in the field. The resulting 3243 publications were organised in Reference Manager Endnote [28].

Screening and eligibility

The titles and abstracts of the identified 3243 publications were read to determine their eligibility for inclusion against three criteria: 1) relevance to a community development project, including: projects focusing on community ownership, empowerment, local leadership and decision making, adopting a long-term strategy, having a focus on sustainability or having a bottom up approach (i.e. starting from the community) [29, 30]; 2) published between 1990 and 2015; and 3) a primary focus on Indigenous communities in Australia. A total of 231 publications met all three criteria. The full text versions of these 231 publications were sought for detailed review, of which 112 were available and relevant to this review.

Classification

One hundred and twelve publications were classified into four categories derived from previous research reviewing Indigenous health initiatives [4, 10, 31], defined as follows. Measurement research: the development, testing or evaluation of measurement tools. Evaluation research: an evaluation of an Indigenous community development project or policy. Review: including summaries, critical or systematic reviews and/or meta-analysis; and Discussion paper: general discussion of Indigenous community development. Thirty one publications identified as studies evaluating community development projects in Indigenous Australian communities were critically appraised.

Extent of community participation

Replicating previous analyses [32, 33], the extent of community participation was assessed using Pretty’s participation typology, which describes seven levels of community participation ranging from no participation to self-mobilisation (i.e. completely top-down to completely bottom-up) [32, 34]. Given community participation can vary during the lifetime  of a project, the extent of participation was assessed separately for four phases of project development: diagnosis (identifying a community’s priorities); development (of appropriate strategies to address the priorities); implementation (of the strategies); and evaluation (of the effectiveness of the project) [32, 35, 36]. The level of community participation in the 31 studies were assigned a score between 1 and 7 for each phase of project development. Detailed descriptions of different levels of community participation in relation to scores 1 to 7, and with respect to all four phases, are provided in Table 1 and are summarised as follows: no participation (score 1); passive participation (score 2 – the community was only informed about the project); participation by information (score 3 – information was collected from the community without their participation and without providing feedback); participation by consultation (score 4 – information was collected from the community, feedback was given and further inclusion of community was sought); functional participation (score 5 – community collaboration, but on outsiders’ terms); interactive participation (score 6 – collaboration on mutually defined terms); and self-mobilisation (score 7 – outsider’s work in community on community’s terms). This scoring was independently conducted by two of the authors (MS and AW), which resulted in agreement for 22 studies (71 %). The nine studies on which authors disagreed were blindly reviewed by a third author (ASt). For four studies, the score allocated by the third reviewer was the same as the score allocated by one of the first two reviewers and so that score was used, increasing the agreement rate to 84 % for 26 of the 31 studies. For the five studies where there was no agreement, the scores allocated by the first author (MS) were used.
Table 1

Definitions of the seven levels of community participation in the four phases of project development

Seven levels of community participationFour phases of project development
DiagnosisDevelopmentImplementationEvaluation
1. No participationCompletely top-down, community is not informed about or asked about issues in their community.Top-down, community is not informed about the development of the project.Top-down, community is not informed about the implementation of the project, only about activities they’re involved inTop-down, community receives no information about evaluation.
2. Passive participationOutsiders decide on the issues that need to be addressed, community is informed.Outsiders control development, community is informed, but has no input.Outsiders control the implementation, community is informed, but has no input.Outsiders control the evaluation, community is informed, but has no input.
3. Participation by informationOutsiders have control, community participates by providing information about their community. No feedback to the community and no checking for agreements.Outsiders have control over development, community potentially provides information about what they want, but outsiders don’t necessarily respond to this.Outsiders control implementation, community might provide information useful for implementation, but outsiders don’t necessarily listed to this.Outsiders control evaluation, community provides information through surveys and/or interviews, focus groups. Findings are not shared or checked for accuracy.
4. Participation by consultationOutsiders define problems and consult with community about their agreement, using outsider defined processes.Outsiders consult with community about potential projects to develop, but outsiders make final decision.Community participates in activities decided upon by the outsidersOutsiders define evaluation process, community provides information and might make suggestions for improvement and feedback provided
5. Functional participationOutsiders have predetermined goals and community assists in defining issues within those goals, outsiders make final decisions.Community works together with outsiders to develop projects decided upon by the outsiders.Community and outsiders work towards implementation of projects, based on outsiders’ goals and processes.Community and outsiders work together in evaluation, based on goals as set by the outsiders.
6. Interactive participationOutsiders and community work together to identify the issues in the community and set goals for the project.Outsiders and community work together to develop suitable projects to address the agreed upon goals.Community and outsiders implement the developed projects together, community has control and uses local resources.Evaluation methods are decided upon together and conducted in partnership.
7. Self-mobilisationCompletely bottom-up, community identifies their own issues and sets their own goals, might contact outsiders to assist them where needed.Bottom-up, community makes decisions about project development, apply for funding and potentially contact outsiders where neededCommunity implements projects, contacts outsiders for resources where needed, but remains in control over resources.Community conducts evaluations, potentially contacts outsiders for assistance, but stays in control over evaluation.

Source: adapted from Pretty (1995) and Wagemakers et al. (2008)

Definitions of the seven levels of community participation in the four phases of project development Source: adapted from Pretty (1995) and Wagemakers et al. (2008)

Critical appraisal of methodology

Qualitative methods

The methodological quality of the qualitative study components was assessed by adapting Long and Godfrey’s qualitative study evaluation tool, which was developed to appraise evaluations of health and social care interventions [37]. This tool has 4 sections: 1) phenomenon studied and context; 2) ethics; 3) data collection, analysis and potential research bias; and 4) policy and practical implications. The latter two were used in this review because they relate specifically to evaluation issues. Data collection includes the need for clear descriptions of the data collection process (e.g. recruitment strategies, data collection procedures, specifying the interview questions, methods of recording data and the extent to which the data collection process was tailored to specific communities). Data analysis includes the description of the data analysis, the provision of adequate evidence to support the analysis (including data extracts, triangulations and descriptions of reliability) and whether the findings are interpreted in line with existing theories and literature. Potential researchers’ bias assesses whether the position of the researcher is outlined in the study and its potential influence on the data collection and analysis. The policy and practical implications include an analysis of the populations and settings to which the findings are generalisable, the implications for policy or practice, and the extent to which the methods justify the conclusions.

Quantitative methods

The methodological quality of the quantitative study components was appraised using the Dictionary for Effective Public Health Practice Project Quality Assessment tool for Quantitative studies [38], which was developed to review public health studies and has been used in other systematic reviews in the Australian Indigenous health field [4, 10]. Sections A-F (A - selection bias, B - study design, C - confounders, D - blinding, E - data collection methods, F - withdrawals and drop-out) are rated categorically as strong, moderate or weak. Sections G (intervention integrity) and H (analysis appropriateness) comprise summaries of the relevant information rather than categorical ratings. In addition to sections A-H, this tool advocates a summary rating defined as weak (two or more weak scores are given), moderate (1 weak score is given) or strong (no weak scores are given).

Scoring for critical appraisal of methodology

Scores against both the qualitative and quantitative evaluation criteria were allocated by author MS. A random selection of 25 % of studies were assessed by a blinded coder (ASt). There was agreement for 70 % of these studies. Disagreements were resolved in consultation between the two coders.

Outcomes of the studies

The outcomes of the studies evaluating Indigenous community development projects are summarised.

Results

Thirty-one studies evaluating Indigenous community development projects in Australia were identified. Ten (32 %) were published in the peer reviewed literature [39-48]. Table 2 summarises the level of community participation across the four phases of project development for each study. Table 3 summarises the number of studies relevant to each of the seven levels of community participation, separately for the four phases of project development. The highest levels of participation (level 5 to level 7), were found in the Diagnosis phase for ten studies (32 %) [39, 43, 44, 48–54], in the Development phase for 13 studies (42 %) [39–44, 46, 49–52, 54, 55], in the Implementation phase for 17 studies (55 %) [39–44, 46, 48–54, 56–58] and in the Evaluation phase for 7 studies (22 %) [39, 40, 43, 44, 50, 53, 59]. Four studies (13 %) had at least level 5 participation in all phases of the project [39, 43, 44, 50]. The participation of the community was described with insufficient detail to be assessed (unknown category) for ten studies in the Diagnosis phase (32 %) [42, 45, 57, 58, 60–65], seven in the Development phase (23 %) [47, 48, 57, 60, 61, 64, 66], four (12.9 %) in the Implementation phase [47, 61, 63, 66] and two (7 %) in the Evaluation phase [46, 67].
Table 2

Level of community participation in each phase of project development for each study

First author (year)Four phases of project development
DiagnosisDevelopmentImplementationEvaluation
Gauld et al. (2011) [40]1a 2–5b 2–55
Green et al. (2009) [67]444UNK
McMurray (2012) [49]7663
Parker et al. (2006) [48]6UNK54
Murphy et al. (2004) [41]3754
Hunt (2010a) [59]7776
CLC (2012a) [60]UNKUNK43
CLC (2012b) [51]7773/4c
CLC (2012c) [61]UNKUNKUNK3/4
CLC (2012d) [62]UNK334
CLC (2012e) [63]UNK4UNK3
Taylor (2005a) [56]1UNK54
Taylor (2005b) [64]UNKUNK44
Ramsay (2005a) [57]UNKUNK54
Ramsay (2005b) [68]1344
Burchill (2005) [65]UNK344
Higgins (2005) [52]7774
Bromfield (2005) [55]1544
Ramsay (2005c) [66]2UNKUNK4
Tsey (2003) [69]1343
Tsey et al. (2004); [39]5665
Smith (2004) [53]7366
Lee et al. (2008) [42]UNK2–54–54
Tyrrell et al. (2003) [43]6665
Guenther (2011) [58]UNK252
Salisbury (1998) [44]55/65/66
Hunt (2010b) [59]1245
Moran (2003/2004) [45]UNK44–12
McCalman (2005) [54] 7774
Jarvie (2008) [46]155UNK
Shannon et al. (2001) [47]3UNKUNK3

aPossible scores range from 1 to 7: 1 = no participation; 2 = passive participation; 3 = participation by information; 4 = participation by consultation; 5 = functional participation; 6 = interactive participation; 7 = self-mobilisation, UNK = unknown [32, 34]

bParticipation varied within the phase

cParticipation was somewhere in between these levels

Table 3

Number of studies across the levels of community participation and phases of project development

Seven levels of community participationFour phases of project development
DiagnosisDevelopmentImplementationEvaluation
 1. No participation7
 2. Passive participation132
 3. Participation by information236
 4. Participation by consultation151014
Least active involvement sub-total (levels 1–4) 11 11 10 22
 5. Functional participation1484
 6. Interactive participation3453
 7. Self-mobilisation6540
Most active involvement sub-total (levels 5–7) 10 13 17 7
 Unknown10742
 Total31313131

Note: No participation = community did not participate

Passive participation = the community was only informed about the project

Participation by information = information was collected from the community without their participation and without providing feedback.  Participation by consultation = information was collected from the community, feedback was given and further inclusion of community was sought

Functional participation = community collaboration on outsider’s terms

Interactive participation = collaboration on mutually defined terms

Self-mobilisation = outsider’s work in community on community’s terms [32, 34]

Level of community participation in each phase of project development for each study aPossible scores range from 1 to 7: 1 = no participation; 2 = passive participation; 3 = participation by information; 4 = participation by consultation; 5 = functional participation; 6 = interactive participation; 7 = self-mobilisation, UNK = unknown [32, 34] bParticipation varied within the phase cParticipation was somewhere in between these levels Number of studies across the levels of community participation and phases of project development Note: No participation = community did not participate Passive participation = the community was only informed about the project Participation by information = information was collected from the community without their participation and without providing feedback.  Participation by consultation = information was collected from the community, feedback was given and further inclusion of community was sought Functional participation = community collaboration on outsider’s terms Interactive participation = collaboration on mutually defined terms Self-mobilisation = outsider’s work in community on community’s terms [32, 34]

Methods used in studies

Twenty-one studies (67 %) used qualitative methods only [39–41, 48, 49, 51, 52, 55–57, 59–69], two (7 %) used quantitative methods only [46, 47], and eight (26 %) used mixed methods [42–45, 53, 54, 58, 59]. Qualitative data were collected using semi-structured interviews in 24 studies [39, 40, 42, 43, 45, 49–53, 55–58, 60–69], document analysis (n = 15 [42, 49, 51, 52, 55–57, 60–66, 68]), focus groups (n = 9 [39, 40, 43, 45, 48–50, 53, 58]), participant observation (n = 6 [42, 43, 53, 54, 58, 69]) and photovoice [70] (n = 2 [50, 53]). Quantitative data collection methods included surveys in three studies [45, 48, 58], hospital/clinical records (n = 4 [43, 44, 47, 53]), school records (n = 2 [42, 58]), police records (n = 1 [42]), store records (n = 1 [43]) and ABS census data (n = 1 [46]).

Methodological quality of studies with a qualitative component

All 29 studies with a qualitative component (including mixed methods studies) provided some description of the evaluation methods used (Table 4). Twelve studies (41 %) gave detailed descriptions of the data collection process, including participant recruitment, focus group procedures and a clear description of which data were recorded [39, 41, 49–51, 53, 58, 60–63, 67]. Four of these twelve studies (14 %) provided the interview questions [51, 58, 60, 67] and one study (4 %) described in detail how the data collection methods were tailored to ensure their cultural appropriateness [49]. The data analysis methods were described in detail in seven studies (24 %) [39, 42, 50, 54, 58, 67, 69]. The potential for researcher bias was described in seven studies (24 %) [39, 44, 45, 49, 53, 58, 69]. Three studies (10 %) did not discuss the implications of their findings [52, 59, 65].
Table 4

Critical appraisal of qualitative components of studies evaluating Indigenous community development projects (n = 29)

First author (year)Data collectionData analysisPotential biasImplications
Qualitative only studies (n = 21)
 Gauld et al. (2011) [40]Little detailNot describedNot describedGeneralised to far northern Queensland communities
 Green et al. (2009) [67]Detailed description, including interview questionsDetailed description and linked to literatureNot describedGeneralised to organisations working with Indigenous communities in Australia and policy
 McMurray (2012) [49]Detailed description of field workNot describedPosition of researcher describedImplications for the funding agency
 Parker et al. (2006) [48]Not describedNot describedNot describedDescribed for health promotion work in Indigenous communities
 Murphy et al. (2004) [41]Detailed descriptionNot describedNot describedAppreciative inquiry methods and culture projects
 CLC (2012a) [60]Detailed descriptionDescription of who did analysis and triangulationNot describedDescribed for organisation
 CLC (2012b) [51]Detailed descriptionDescription of who did analysis and triangulationNot describedDescribed for organisation
 CLC (2012c) [61]Detailed descriptionDescription of who did analysis and triangulationNot describedDescribed for organisation
 CLC (2012d) [62]Detailed descriptionDescription of who did analysis and triangulationNot describedDescribed for organisation
 CLC (2012e) [63]Detailed descriptionDescription of who did analysis and triangulationNot describedDescribed for organisation
 Taylor (2005a) [56]Little detailNot describedNot describedGeneralised to comparable projects
 Taylor (2005b) [64]Little detail, mention of development of evaluation toolNot describedNot describedDescribed for future communities wanting to implement project
 Ramsay (2005a) [57]Little detailNot describedNot describedGeneralised to Indigenous communities with comparable issues
 Ramsay (2005b) [68]Little detailNot describedNot describedDiscussed for working with Indigenous communities
 Burchill (2005) [65]Very little detailNot describedNot describedNot described
 Higgins (2005) [52]Very little detailNot describedNot describedNot described
 Bromfield (2005) [55]Very little detailNot describedNot describedDiscussed for practice
 Ramsay (2005c) [66]Very little detailNot describedNot describedDiscussed for practice
 Tsey (2003) [69]Detailed descriptionDetailed descriptionPosition of researcher is discussedGeneralised to community development projects and practice
 Tsey et al. (2004); [39]Very detailed descriptionDetailed descriptionPosition of researcher discussedDiscussed for practice, policy and researcher
 Hunt (2010b) [59]Not describedNot describedNot describedNot described
Mixed Methods Studies (n = 8)
 Hunt (2010a) [59]Detailed description of fieldworkDescribedResearcher position and bias describedDescribed for organisation’s community development work
 Smith (2004) [53]Very detailed descriptionDescription of who analysed data, but not methodsPosition of researcher discussedGeneralised to other communities, implications for project described
 Lee et al. (2008) [42]Detailed descriptionDescribedNot describedGeneralised to communities with similar problems.
 Tyrrell et al. (2003) [43]Not describedNot describedNot describedDiscussed for practice and results
 Guenther (2011) [58]Detailed descriptionDetailed descriptionPosition of researcher discussedDiscussed for policy and practice
 Salisbury (1998) [44]Little detailNot describedResearcher position discussedGeneralised to health services in Indigenous communities
 Moran (2003/2004) [45]Detailed descriptionDescription of who analysed data, but not methodsResearcher position and bias discussedDiscussed for practice
 McCalman (2005) [54]Very little detailVery little detailNot describedDiscussed for practice
Critical appraisal of qualitative components of studies evaluating Indigenous community development projects (n = 29)

Methodological quality of studies with a quantitative component

The summary ratings for all ten studies with a quantitative component were classified as weak (Table 5). The likely extent of selection bias was unclear for six studies (60 %) because description of the participant and community selection procedures was absent or insufficiently detailed [42–44, 46, 47, 59]. Five studies (50 %) used a cohort design without a control group [43–45, 53, 54], one study (10 %) used a time series design [47] and the evaluation design of the remaining four studies (40 %) was unclear [42, 46, 58, 59]. No study adequately controlled for confounding variables. None of the studies used blinding procedures. Two studies (20 %) used validated outcome measures [45, 58]. No study discussed the validity or reliability of their outcome measures.
Table 5

Critical appraisal of quantitative component of studies evaluating Indigenous community development projects (n = 10)

1st author, yearSelection bias (A)Study design (B)Confounds (C)Blinding (D)Data collection methods (E)Withdrawal & drop-outs (F)Intervention integrity (G)Analysis (H)Summary rating
Mixed method studies (n = 8)
 Smith (2004) [53]ModerateModerateNAWeakWeakModerateCollection of quantitative data stopped before real community action started.Community-level allocation, individual-level analysis. No appropriate analysis of change in child growth over time.Weak
 Lee (2008) [42]a WeakWeakNAModerateWeakModerateMany youth involved in the interventions, no information on consistency, other community initiatives were running simultaneously (including stricter supply controls and rewards linked to school attendance).Community-level allocation and analysis. Statistical methods described in other publication. Dates of data collection (2001–2004) do not line up with dates of intervention (2003–2005), no post-test data.Weak
 Tyrell (2003) [43]a WeakWeakNAModerateWeakModerateNo description of who was exposed to the project and who weren’t, nor of possible external influences on outcomes.Allocation on community and individual level. Evaluation on community, organisational and individual level. No statistical analysis (outcomes as percentages only).Weak
 Guenther (2011) [58]StrongWeakNAWeakWeakN/AAll participants were part of the project; not all participants attended every session; it is likely that the results were influenced by other interventions put on the families.Individual-level allocation and analysis; statistical analyses (frequencies and t-test) were appropriate; analysis performed on actual intervention status.Weak
 Salisbury (1998) [44]a WeakModerateNAWeakWeakModerateNo description of exposure or consistency; no mention of other interventions influencing outcomes; tested for population growth (which didn’t grow)Unit of allocation and analysis are on organizational level. No statistical analysis.Weak
 Hunt (2010b) [59]WeakWeakWeakWeakWeakWeakNo description of exposure or consistency, potential influence of other interventions running in the communities at the same time.Unit of allocation community and organisational level, unit of analysis individual level, no statistical analysis.Weak
 Moran (2003) [45]a ModerateModerateNAWeakModerateWeak92 % of participants reported awareness of town plan. Outcomes may be influenced by the cycle of optimism and pessimism.Unit of allocation is community level, analysis is done on community and individual level. No statistical analysis.Weak
 McCalman (2005) [54]ModerateModerateNANAWeakWeakAll evaluation participants were exposed to intervention; consistency was not measured; outcomes likely influenced by other factors.Project was allocated at organizational level, data were collected on community level, cannot be sure whether changes at community level are caused by changes at the organizational level. No statistical analysisWeak
Quantitative only studies (n = 2)
 Jarvie (2008) [46]a WeakWeakWeakWeakWeakStrongOne community withdraw temporarily, others stayed. There’s a chance that outcomes are influenced by other developments going on at the same timeNo statistical analysis, intervention offered at community level, data gathered at population level.Weak
 Shannon (2001) [47]a WeakModerateN/AWeakWeakModerateNo description of exposure to intervention or consistency in delivery. Outcomes may be influenced by other factorsCommunity-level allocation and analysis. Appropriate statistical analysis.Weak

Note: Appraised using the Dictionary for Effective Public Health Practice Project Quality Assessment tool [38]

a Published in peer-reviewed literature

Critical appraisal of quantitative component of studies evaluating Indigenous community development projects (n = 10) Note: Appraised using the Dictionary for Effective Public Health Practice Project Quality Assessment tool [38] a Published in peer-reviewed literature One study (10 %) described withdrawals and drop outs at the community level [46]. One study (10 %) described withdrawals and drop outs at the participant level [53]. Drop outs at the participant level were not applicable for the six studies (60 %) that used either routinely collected data or a one-off survey [42–44, 47, 54, 58]. Two studies (20 %) did not report drop outs [45, 59]. No study described the fidelity of the project. Three studies (30 %) reported on the exposure of participants to the project [45, 54, 58]. Inferential statistical analyses were reported by four studies (40 %) [42, 47, 53, 58].

Outcomes

A summary of the aims and key outcomes for each study is provided in Table 6. All studies using qualitative methods concluded that community members reported positive project impacts for their community. Two studies (7 %) reported quantitative outcomes that were statistically significant: a reduction in injuries [47] and a reduction in cannabis use among females aged 13–36 and males aged over 16 years [42].
Table 6

Aims and outcomes of studies evaluating Indigenous community development project (n = 31)

First author (year)Project aimOutcomes of study
Gauld et al. (2011) [40]Developing culturally relevant rehabilitation service for adults with acquired brain injury.Experienced increase in knowledge about and access to services for people with acquired brain injuries.
Green et al. (2009) [67]Community empowerment through arts and cultural practiceSocial issues addressed; Non-indigenous staff reported improved understanding Indigenous issues; community members acquiring new skills; experienced increase in supportive relationships and friendships
McMurray (2012) [49]Increase self-determination of women of the communityIncreased networking; improved community governance; increased livelihood opportunities.
Parker et al. (2006) [48]Introduce Indigenous games in schools to increase physical activityProcess evaluation: most people were satisfied with forum, workshops and activities; project is transferred to other communities.
Murphy et al. (2004) [41]Enable indigenous people to identify positively with their cultureYouth experienced acquiring wide range of skills; development of pride and connectedness to community and culture; improved self-esteem.
Hunt (2010a) [59]Encourage healing and harmony for and between (non) Aboriginal people. (Partnership Oxfam and Yorgum)Family issues were addressed; improved parenting skills; less stress; behavioural change; empowerment.
CLC (2012a) [60]Increase community understanding and control of usage of mine royalties to facilitate community developmentIncreased community understanding and perceived and actual community control; increase perceived benefits of project and increase in projects that support the whole community.
CLC (2012b) [51]Use aboriginal royalties to support education and training initiativesPerceived improvements in school performance and increase youth employment; growing capacity and ability of committee. Observed increase in school attendance because of school excursions.
CLC (2012c) [61]Improve quality of dialysis serviceService now strongly contributes to health and wellbeing of family, patients and community
CLC (2012d) [62]Develop community initiatives and plans for commercial enterprisesGood relationships are built with stakeholders; increased perceived community control; creating activities for community.
CLC (2012e) [63]Establishing community development to achieve benefits from income from national parksCommitment to projects that increase community benefits; planning of projects emerged.
Taylor (2005a) [56]Build capacity of Indigenous Health Worker(IHW) to address childhood asthma and educate community about asthma.Increased skill transfer and development of IHW; increased confidence in administering own asthma medication; improved relationships doctors and IHWs
Taylor (2005b) [64]Revitalizing cultural knowledge through traditional games to improve health and build capacity.Youth experienced increased confidence. Revitalized cultural pride. Indigenous and non-Indigenous people drawn together; empowering.
Ramsay (2005a) [57]Increase awareness of nutritional need of children and improve early childhood health.Observed increased awareness nutritional needs, decrease failure to thrive kids and increase in fruits and vegetables in store. Increase confidence in buying healthy food; increase of healthier kids in community. Establishment of community garden.
Ramsay (2005b) [68]Developing and publishing literacy resources to improve literacyPublishing and increased use of picture dictionary as effective tool to teach English as a second language.
Burchill (2005) [65]Revitalizing cultural knowledge through multimedia databases and developing computer skills.Observed improvement of computer and literacy skills; increase in self-pride and pleasure; generations are drawn together.
Higgins (2005) [52]Empower Indigenous youth and strengthen links with their cultureExperienced increase in job offers, improved wellbeing of youth. Reported increase in youth entering higher education; decreased expulsions.
Bromfield (2005) [55]Develop confidence, self-esteem and pride in Indigenous history,Emerging of real career pathways; observed change in children’s confidence and behaviour.
Ramsay (2005c) [66]Identify and assist emerging youth community leadersYouth getting more active in community; youth staying in school longer; observed increase in youth taking employment opportunities
Tsey (2003) [69]Improve physical, mental, emotional and spiritual wellbeing of individuals and families.Experienced improvements in parenting skills and confidence; improved student behaviour.
Tsey et al. (2004); [39]Restore men’s rightful place in the communityProgress towards goal; increase in self-awareness and confidence; taking more responsibility in family life; no improvement in addiction problems.
Smith (2004) [53]Improving child growth and increasing community involvement.Increased understanding between community and staff of health service; increased community action; no improvements of child growth.
Lee et al. (2008) [42]Address youth substance misuse and crime and develop youth activitiesNo changes in school attendance (2003: 55.9 %; 2005: 51.3 %), or youth apprehension (2003: 68; 2005: 75); decline in cannabis use (2001: 80 %; 2004: 74 %, p = .003), statistically significant for females (13–36 years, p = .008) and older males (>16 years, p = .007).
Tyrrell et al. (2003) [43]Improve knowledge about and management of diabetesIncrease in visits to health professionals; improved adherence to diabetes management protocol; 65 % decrease in sugar purchases; increase in fruit (81 %) and vegetable (11 %) purchases; no change in biochemical control.
Guenther (2011) [58]Strengthen and empower families to help children succeed in lifeNon-significant increase in school attendance (48.4 to 53 %; p > .1); improvements in family environment; no improvements in parental involvement in education; children show more respect towards teachers and other children.
Salisbury (1998) [44]Improve development and delivery of Aboriginal and Torres Strait Island Mental Health serviceIncrease in utilization of the service (1994: 73 people; 1997: 770 people using service).
Hunt (2010b) [59]Build financial capacity in Aboriginal communitiesIncreased knowledge, confidence and understanding of financial and money management; increase in employment and re-engagement with education.
Moran (2003/2004) [45]Establishing healthy and sustainable living environmentNew healthy settlement was creating; satisfaction of tenants with new buildings; dissatisfaction with level of involvement
McCalman (2005) [54] Restore men’s rightful place in the communityReduced injury and suicide rate in community; increase in self-esteem and confidence; increase in seeking help instead of going to drugs.
Jarvie (2008) [46]Improve relationship between communities and government and build community capacity.Reduction Indigenous students in lowest literacy bands (2005: 16 %; 2006: 6 %); increase in TAFE enrolments (2001: 1480; 2006: 1718); 32 % increase year 11 and 12 completions; 71 % increase of students finishing certificates and 50 % increase in diplomas; 45 % drop alcohol related hospitalisations, 13 % drop in diabetes-related hospitalisations; decrease in thefts (21.6 %) and breaks (15.8 %) from dwellings.
Shannon et al. (2001) [47]Reduce injuries in the communitySignificant reduction in frequency of injuries before (96; SE = 4.8) and after (65; SE = 3.08) start of the project (Student’s t = 5.07, df = 21, p < 0.001).
Aims and outcomes of studies evaluating Indigenous community development project (n = 31)

Discussion

This study systematically reviewed the peer-reviewed and grey literature on community development projects in Australian Indigenous communities. One hundred and twelve relevant and available publications were identified, 31(28 %) studies were evaluations, 21of these evaluation studies (68 %) were published in grey literature. There were no marked differences observed between evaluations published in the grey and peer-reviewed literature in terms of the detailed descriptions of the qualitative methods used, the quality of the quantitative methods or the reported levels of community participation. This high comparability reflects the generally low quality of all the evaluations published in both the peer-review and the grey literature. It would be an asset to the community development field to increase the publication rate of higher-quality evaluation studies in the peer reviewed literature, especially in open access journals, to utilise peer review as a quality assurance mechanism and to optimise the transparency of study results.

Community participation in community development projects

Community participation was assessed as moderate in most of the studies evaluating Indigenous community development projects (87 %). The wide variation in community participation between projects and project phases, and within project phases, in these Australian Indigenous studies is reflected in the international literature [32, 36]. For half of the studies included in this review, the intent for community participation was clearly described, but the actual level of participation was not reported for at least one of the phases of project development. Documenting the community participation strategies and processes used, including details about how the community was engaged and who in the community participated, would allow the more successful community participation strategies to be identified and replicated in subsequent projects [36]. Although the unique characteristics of each community will lead to variation in their capacity to participate in each phase of a project [36, 71], the extent and nature of community participation can be optimised by careful planning and the utilisation of appropriate frameworks to guide the development, implementation and evaluation of community-based projects. An approach like participatory action research provides practical guidelines to achieve this [72, 73].

Quality of evaluation methodology

In line with previous research [4-12], the methodological quality of the studies identified in this review are poor, or they are difficult to assess because their methods are inadequately described. It is acknowledged that issues specific to Indigenous community-based research can impact on the research quality, including time needed to engage with the community, difficulties with recruiting enough participants, high staff turn-over at service providers and culturally-specific delays (e.g. ceremonies or celebrations) [14]. Careful and flexible planning is therefore needed in community development projects to address these issues to reduce their impact on the quality of the research. The complex interventions framework, for example, provides one mechanism to carefully plan projects to maintain methodological rigour [74, 75]. The methodological quality of qualitative studies could also be improved by using appropriate analysis methods, multiple coders, and describing the extent of potential bias attributable to the researcher [37]. The methodological rigour of both the qualitative and the quantitative studies could further be improved by using measures with demonstrated reliability and validity: only two studies identified by this review reported that they had used such measures [45, 58]. Using reliable and valid measures increases confidence in the accuracy of the study outcomes [76]. Such measures should be validated specifically for the Indigenous population, because of their holistic concept of health and wellbeing [77]. Existing studies show that it is possible to develop reliable and valid measures that are culturally appropriate and acceptable to Indigenous Australians [78-83], but the lack of measurement studies specifically related to community projects identified in this review (one study, see Fig. 1) clearly indicates that more of this measurement research is urgently needed [80]. Only three studies (10 %) reported on intervention integrity, which includes the level of exposure to the project, and the consistency and frequency with which project components were delivered in practice. Studies evaluating community development projects would be improved by routinely including process measures, to allow an examination of the extent to which outcomes are a consequence of the project components, as opposed to reflecting the extent to which the project components were implemented [74]. Eight studies (26 %) evaluated a community development project using a mixed methods design. Increasing the use of mixed methods is likely to optimally improve the effectiveness of future community-based evaluations because they provide a greater range of relevant data [11, 84]: quantitative analysis can provide rigorous methods to evaluate the effectiveness and costs of projects, while qualitative data can capture community members’ experiences [85] and help identify the project elements that are most acceptable to community members [11]. The critical appraisal also identified a lack of detailed reporting of the methodologies used, especially in relation to the qualitative evaluations. Only 41 % of the qualitative studies reported on their data collection process, for example, and only 24 % reported the data analysis methods that were used. Future Indigenous community development evaluations would benefit from more detailed reporting using established guidelines, such as the COREQ criteria for qualitative research [86] or the guidelines recommended by the Equator Network [87]. In addition to improving reporting standards, using these guidelines in the development, implementation and evaluation phases of community development projects would most likely improve the quality of the interventions and their evaluation [37, 38].

Outcomes of indigenous community development projects

There is currently insufficient evidence about the impact of community development projects on health and wellbeing outcomes for Indigenous Australians. Although all reviewed studies reported positive outcomes for the communities, they are not methodologically rigorous enough to support clear conclusions about their cost-effectiveness, and no studies have undertaken an economic analysis to weigh the benefits of community development against its costs. This finding is highly consistent with the conclusions of similar reviews of international Indigenous community development studies, where generally positive outcomes are difficult to interpret because of the relatively poor quality of their evaluation designs and reporting [9, 19, 88]. Published results of community-based evaluations with greater methodological quality are required to provide evidence of cost-effective community development projects [9, 74]. Ideally, future studies would use rigorous evaluation designs, reliable, valid and culturally appropriate measures, economic analysis and a complex intervention framework to balance standardisation and tailoring.

Strengths and limitations

To ensure that qualitative and quantitative study components were assessed against appropriate criteria the Dictionary for Effective Public Health Practice Project Quality Assessment tool [38] was used to assess the methodological quality of quantitative components and an adaptation of the qualitative study appraisal tool, developed by Long and Godfrey [37] was used for the qualitative study components. The methodological quality of the studies and extent of community participation may have been misclassified, however the high level of agreement between blinded coders suggest not. Of the 231 full-text articles sought for detailed review, 40 (17 %) were excluded because the full text version of these papers were unable to be accessed. Excluding these 40 papers is unlikely to have compromised the comprehensiveness of this review for three reasons: 1) they only represent 17 % of the full-text articles; 2) the majority were older studies or reports that were not publically available; and 3) the references lists of identified publications were hand searched and researchers in the field were consulted to identify publications not found by the electronic database search.

Conclusion

This systematic review identified that levels of community participation fluctuate across community development project phases: moderate in the Diagnosis and Development phases, high in the Implementation phase, but low in the Evaluation phase. It also identified that the methodological quality of studies evaluating Australian Indigenous community development projects is too weak to confidently determine the cost-effectiveness of these projects in improving the health and wellbeing of Indigenous Australians. Studies of greater methodological quality are required to accurately assess the impact of community development projects. Partnerships combining researchers’ expertise and community members’ skills and knowledge have great potential to improve methodological quality and community participation in Indigenous community development projects [9, 11, 89].
  31 in total

Review 1.  Randomised controlled trials addressing Australian aboriginal health needs: a systematic review of the literature.

Authors:  P S Morris
Journal:  J Paediatr Child Health       Date:  1999-04       Impact factor: 1.954

Review 2.  A review of collaborative partnerships as a strategy for improving community health.

Authors:  S T Roussos; S B Fawcett
Journal:  Annu Rev Public Health       Date:  2000       Impact factor: 21.981

3.  Framework for design and evaluation of complex interventions to improve health.

Authors:  M Campbell; R Fitzpatrick; A Haines; A L Kinmonth; P Sandercock; D Spiegelhalter; P Tyrer
Journal:  BMJ       Date:  2000-09-16

4.  Ten principles relevant to health research among Indigenous Australian populations.

Authors:  Lisa M Jamieson; Yin C Paradies; Sandra Eades; Alwin Chong; Louise Maple-Brown; Peter Morris; Ross Bailie; Alan Cass; Kaye Roberts-Thomson; Alex Brown
Journal:  Med J Aust       Date:  2012-07-02       Impact factor: 7.738

Review 5.  Participation by different stakeholders in participatory evaluation of health promotion: a literature review.

Authors:  Martina Nitsch; Karin Waldherr; Enrica Denk; Ursula Griebler; Benjamin Marent; Rudolf Forster
Journal:  Eval Program Plann       Date:  2013-05-09

6.  Photovoice: concept, methodology, and use for participatory needs assessment.

Authors:  C Wang; M A Burris
Journal:  Health Educ Behav       Date:  1997-06

Review 7.  The effectiveness of community engagement in public health interventions for disadvantaged groups: a meta-analysis.

Authors:  Alison O'Mara-Eves; Ginny Brunton; Sandy Oliver; Josephine Kavanagh; Farah Jamal; James Thomas
Journal:  BMC Public Health       Date:  2015-02-12       Impact factor: 3.295

Review 8.  A systematic review of suicide prevention interventions targeting indigenous peoples in Australia, United States, Canada and New Zealand.

Authors:  Anton C Clifford; Christopher M Doran; Komla Tsey
Journal:  BMC Public Health       Date:  2013-05-13       Impact factor: 3.295

Review 9.  Applying what works: a systematic search of the transfer and implementation of promising Indigenous Australian health services and programs.

Authors:  Janya McCalman; Komla Tsey; Anton Clifford; Wendy Earles; Anthony Shakeshaft; Roxanne Bainbridge
Journal:  BMC Public Health       Date:  2012-08-03       Impact factor: 3.295

10.  Identifying Aboriginal-specific AUDIT-C and AUDIT-3 cutoff scores for at-risk, high-risk, and likely dependent drinkers using measures of agreement with the 10-item Alcohol Use Disorders Identification Test.

Authors:  Bianca Calabria; Anton Clifford; Anthony P Shakeshaft; Katherine M Conigrave; Lynette Simpson; Donna Bliss; Julaine Allan
Journal:  Addict Sci Clin Pract       Date:  2014-09-01
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  18 in total

1.  Understanding communication pathways to foster community engagement for health improvement in North West Pakistan.

Authors:  Monique Lhussier; Nicola Lowe; Elizabeth Westaway; Fiona Dykes; Mick McKeown; Akhtar Munir; Saba Tahir; Mukhtiar Zaman
Journal:  BMC Public Health       Date:  2016-07-18       Impact factor: 3.295

2.  The development of a healing model of care for an Indigenous drug and alcohol residential rehabilitation service: a community-based participatory research approach.

Authors:  Alice Munro; Anthony Shakeshaft; Anton Clifford
Journal:  Health Justice       Date:  2017-12-04

3.  Social representations of the health care of the Mbyá-Guarani indigenous population by health workers.

Authors:  Mirian Benites Falkenberg; Helena Eri Shimizu; Ximena Pamela Díaz Bermudez
Journal:  Rev Lat Am Enfermagem       Date:  2017-02-06

4.  The Feasibility of Embedding Data Collection into the Routine Service Delivery of a Multi-Component Program for High-Risk Young People.

Authors:  Alice Knight; Alys Havard; Anthony Shakeshaft; Myfanwy Maple; Mieke Snijder; Bernie Shakeshaft
Journal:  Int J Environ Res Public Health       Date:  2017-02-20       Impact factor: 3.390

5.  Indigenous Youth Peer-Led Health Promotion in Canada, New Zealand, Australia, and the United States: A Systematic Review of the Approaches, Study Designs, and Effectiveness.

Authors:  Daniel Vujcich; Jessica Thomas; Katy Crawford; James Ward
Journal:  Front Public Health       Date:  2018-02-13

Review 6.  Who is research serving? A systematic realist review of circumpolar environment-related Indigenous health literature.

Authors:  Jen Jones; Ashlee Cunsolo; Sherilee L Harper
Journal:  PLoS One       Date:  2018-05-24       Impact factor: 3.240

Review 7.  A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature.

Authors:  F Hoekstra; K J Mrklas; M Khan; R C McKay; M Vis-Dunbar; K M Sibley; T Nguyen; I D Graham; H L Gainforth
Journal:  Health Res Policy Syst       Date:  2020-05-25

8.  Developing an ecological framework of factors associated with substance use and related harms among Aboriginal and Torres Strait Islander people: protocol for a systematic review.

Authors:  Mieke Snijder; Briana Lees; James Ward; Annalee E Stearne; Nicola Clare Newton; Lexine Stapinski
Journal:  BMJ Open       Date:  2019-05-05       Impact factor: 2.692

9.  Substance Use Prevention Programs for Indigenous Adolescents in the United States of America, Canada, Australia and New Zealand: Protocol for a Systematic Review.

Authors:  Mieke Snijder; Lexine Stapinski; Briana Lees; Nicola Newton; Katrina Champion; Catherine Chapman; James Ward; Maree Teesson
Journal:  JMIR Res Protoc       Date:  2018-02-01

10.  What Is the Co-Creation of New Knowledge? A Content Analysis and Proposed Definition for Health Interventions.

Authors:  Tania Pearce; Myfanwy Maple; Anthony Shakeshaft; Sarah Wayland; Kathy McKay
Journal:  Int J Environ Res Public Health       Date:  2020-03-26       Impact factor: 3.390

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