Literature DB >> 26583632

Needs and Lifestyle Challenges of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine and Livestrong Foundation Workshop.

Casey L Daniel1, Karen M Emmons2, Karen Fasciano3, Bernard F Fuemmeler4, Wendy Demark-Wahnefried5.   

Abstract

BACKGROUND: Among adolescents and young adults (AYAs) in the United States, cancer is the leading cause of disease-related death. AYA survivors face numerous short- and long-term health and psychosocial issues, as well as increased risk for behavioral and lifestyle challenges, including poor diet, low physical activity (PA), and substance abuse. Many of these behaviors are modifiable, but gaps in care serve as barriers for AYA survivors.
OBJECTIVES: The purpose of this article is to (a) raise awareness of AYAs' increased risk for poor diet, low PA, and substance abuse; (b) examine previous interventions addressing these issues; and (c) provide recommendations for future directions.
METHODS: This article summarizes a workshop coordinated by the Institute of Medicine and the Livestrong Foundation to address AYA survivors' needs and ways to enhance their quality of care.
FINDINGS: Oncology nurses can promote the inclusion of lifestyle behaviors in survivorship care plans of AYA patients and serve as a valuable resource in improving AYA care on a larger scale. In addition, oncology nurse researchers may offer greater understanding of AYA patients' and survivors' needs and best practices by conducting much-needed research with this understudied population.

Entities:  

Keywords:  adolescent; cancer; physical activity; substance abuse; survivor; young adult

Mesh:

Year:  2015        PMID: 26583632      PMCID: PMC4795831          DOI: 10.1188/15.CJON.19-06AP

Source DB:  PubMed          Journal:  Clin J Oncol Nurs        ISSN: 1092-1095            Impact factor:   1.027


  53 in total

1.  Health status of adolescent and young adult cancer survivors.

Authors:  Eric Tai; Natasha Buchanan; Julie Townsend; Temeika Fairley; Angela Moore; Lisa C Richardson
Journal:  Cancer       Date:  2012-06-11       Impact factor: 6.860

Review 2.  Imaging the developing brain: what have we learned about cognitive development?

Authors:  B J Casey; Nim Tottenham; Conor Liston; Sarah Durston
Journal:  Trends Cogn Sci       Date:  2005-03       Impact factor: 20.229

3.  Adolescent survivors: a secondary analysis of a clinical trial targeting behavior change.

Authors:  Cheryl L Cox; Rosemary A McLaughlin; Shesh N Rai; Brenda D Steen; Melissa M Hudson
Journal:  Pediatr Blood Cancer       Date:  2005-08       Impact factor: 3.167

Review 4.  Health behaviours in childhood cancer survivors: a systematic review.

Authors:  Sally-Ann Clarke; Christine Eiser
Journal:  Eur J Cancer       Date:  2007-04-24       Impact factor: 9.162

Review 5.  Lack of exercise is a major cause of chronic diseases.

Authors:  Frank W Booth; Christian K Roberts; Matthew J Laye
Journal:  Compr Physiol       Date:  2012-04       Impact factor: 9.090

6.  Internet-Based Physical Activity Intervention Targeting Young Adult Cancer Survivors.

Authors:  Carolyn Rabin; Shira Dunsiger; Kirsten K Ness; Bess H Marcus
Journal:  J Adolesc Young Adult Oncol       Date:  2011-12       Impact factor: 2.223

7.  Prevalence and predictors of post-traumatic stress symptoms in adolescent and young adult cancer survivors: a 1-year follow-up study.

Authors:  Minyoung Kwak; Brad J Zebrack; Kathleen A Meeske; Leanne Embry; Christine Aguilar; Rebecca Block; Brandon Hayes-Lattin; Yun Li; Melissa Butler; Steven Cole
Journal:  Psychooncology       Date:  2012-11-08       Impact factor: 3.894

8.  Long-term outcomes of adult survivors of childhood cancer.

Authors:  Leslie L Robison; Daniel M Green; Melissa Hudson; Anna T Meadows; Ann C Mertens; Roger J Packer; Charles A Sklar; Louise C Strong; Yutaka Yasui; Lonnie K Zeltzer
Journal:  Cancer       Date:  2005-12-01       Impact factor: 6.921

Review 9.  A systematic review of web-based interventions for patient empowerment and physical activity in chronic diseases: relevance for cancer survivors.

Authors:  Wilma Kuijpers; Wim G Groen; Neil K Aaronson; Wim H van Harten
Journal:  J Med Internet Res       Date:  2013-02-20       Impact factor: 5.428

10.  Smoking among participants in the childhood cancer survivors cohort: the Partnership for Health Study.

Authors:  Karen M Emmons; Rita M Butterfield; Elaine Puleo; Elyse R Park; Ann Mertens; Ellen R Gritz; Maureen Lahti; Fredrick P Li
Journal:  J Clin Oncol       Date:  2003-01-15       Impact factor: 50.717

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  16 in total

1.  Taboo Topics in Adolescent and Young Adult Oncology: Strategies for Managing Challenging but Important Conversations Central to Adolescent and Young Adult Cancer Survivorship.

Authors:  Giselle K Perez; John M Salsman; Kaitlyn Fladeboe; Anne C Kirchhoff; Elyse R Park; Abby R Rosenberg
Journal:  Am Soc Clin Oncol Educ Book       Date:  2020-03

2.  Engagement of young adult cancer survivors within a Facebook-based physical activity intervention.

Authors:  Carmina G Valle; Deborah F Tate
Journal:  Transl Behav Med       Date:  2017-12       Impact factor: 3.046

3.  Early Posttherapy Opioid Prescription, Potential Misuse, and Substance Use Disorder Among Pediatric Cancer Survivors.

Authors:  Xu Ji; Xin Hu; Katharine E Brock; Ann C Mertens; Janet R Cummings; Karen E Effinger
Journal:  J Natl Cancer Inst       Date:  2022-06-13       Impact factor: 11.816

4.  Association between pregnancy intention and preconception health behaviors.

Authors:  Hena Naz Din; David Strong; Savitri Singh-Carlson; Heather L Corliss; Sheri J Hartman; Hala Madanat; H Irene Su
Journal:  Cancer       Date:  2021-10-11       Impact factor: 6.921

5.  Lifestyle advice provision to teenage and young adult cancer patients: the perspective of health professionals in the UK.

Authors:  Gemma Pugh; Rachael Hough; Helen Gravestock; Kate Williams; Abigail Fisher
Journal:  Support Care Cancer       Date:  2017-07-19       Impact factor: 3.603

6.  Mila Blooms: A Mobile Phone Application and Behavioral Intervention for Promoting Physical Activity and a Healthy Diet Among Adolescent Survivors of Childhood Cancer.

Authors:  Bernard F Fuemmeler; Ed Holzwarth; Yaou Sheng; Elizabeth K Do; Carrie A Miller; Julie Blatt; Philip M Rosoff; Truls Østbye
Journal:  Games Health J       Date:  2020-05-08

7.  A New Lease on Life: Preliminary Needs Assessment for the Development of a Survivorship Program for Young Adult Survivors of Cancer in South Texas.

Authors:  Susanne Schmidt; L Aubree Shay; Harriet V King; Jordan Buckley; Leanne Embry; Helen M Parsons
Journal:  J Pediatr Hematol Oncol       Date:  2018-04       Impact factor: 1.289

8.  A comparison of heterosexual and LGBTQ cancer survivors' outlooks on relationships, family building, possible infertility, and patient-doctor fertility risk communication.

Authors:  Andrea M Russell; Kathleen M Galvin; Maya M Harper; Marla L Clayman
Journal:  J Cancer Surviv       Date:  2016-02-18       Impact factor: 4.442

9.  Assessment of psychological distress among Asian adolescents and young adults (AYA) cancer patients using the distress thermometer: a prospective, longitudinal study.

Authors:  Alexandre Chan; Eileen Poon; Wei Lin Goh; Yanxiang Gan; Chia Jie Tan; Kelvin Yeo; Annabelle Chua; Magdalene Chee; Yi Chye Law; Nagavalli Somasundaram; Ravindran Kanesvaran; Quan Sing Ng; Chee Kian Tham; Chee Keong Toh; Soon Thye Lim; Miriam Tao; Tiffany Tang; Richard Quek; Mohamad Farid
Journal:  Support Care Cancer       Date:  2018-04-11       Impact factor: 3.603

10.  Like Prisoners in a War Camp: Adolescents and Young Adult Cancer Survivors' Perspectives of Disconnectedness From Healthcare Providers During Cancer Treatment.

Authors:  Celeste R Phillips; Joan E Haase
Journal:  Cancer Nurs       Date:  2020 Jan/Feb       Impact factor: 2.592

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