Literature DB >> 28991132

A New Lease on Life: Preliminary Needs Assessment for the Development of a Survivorship Program for Young Adult Survivors of Cancer in South Texas.

Susanne Schmidt1, L Aubree Shay2, Harriet V King3, Jordan Buckley3, Leanne Embry4, Helen M Parsons5.   

Abstract

Priorities for young adult survivorship care from the survivors' perspective are not well documented. To address this within our patient population, we conducted a multimethod needs assessment of young adult survivors of pediatric, adolescent, and young adult cancer in South Texas to get a better understanding of the ongoing challenges and priorities for their survivorship needs and related services. Participants were 18 to 39 years at the time of the needs assessment and predominately Hispanic. In an online survey, survivors most commonly cited being concerned about their physical and mental health, long-term treatment effects, recurrence, and health insurance issues. Participants stated that they received critical support from family, friends, and medical staff, but they would like to receive additional support from other cancer survivors through peer mentorship opportunities and survivor retreats/social events.

Entities:  

Mesh:

Year:  2018        PMID: 28991132      PMCID: PMC5866154          DOI: 10.1097/MPH.0000000000000990

Source DB:  PubMed          Journal:  J Pediatr Hematol Oncol        ISSN: 1077-4114            Impact factor:   1.289


  22 in total

1.  Health insurance across vulnerable ages: patterns and disparities from adolescence to the early 30s.

Authors:  Sally H Adams; Paul W Newacheck; M Jane Park; Claire D Brindis; Charles E Irwin
Journal:  Pediatrics       Date:  2007-05       Impact factor: 7.124

2.  Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

Authors:  Paul A Harris; Robert Taylor; Robert Thielke; Jonathon Payne; Nathaniel Gonzalez; Jose G Conde
Journal:  J Biomed Inform       Date:  2008-09-30       Impact factor: 6.317

3.  Starting an adolescent and young adult program: some success stories and some obstacles to overcome.

Authors:  Andrea Ferrari; David Thomas; Anna R K Franklin; Brandon M Hayes-Lattin; Maurizio Mascarin; Winette van der Graaf; Karen H Albritton
Journal:  J Clin Oncol       Date:  2010-05-17       Impact factor: 44.544

4.  Social networks, social support mechanisms, and quality of life after breast cancer diagnosis.

Authors:  Candyce H Kroenke; Marilyn L Kwan; Alfred I Neugut; Isaac J Ergas; Jaime D Wright; Bette J Caan; Dawn Hershman; Lawrence H Kushi
Journal:  Breast Cancer Res Treat       Date:  2013-05-09       Impact factor: 4.872

5.  Recruiting young adult cancer survivors for behavioral research.

Authors:  Carolyn Rabin; Santina Horowitz; Bess Marcus
Journal:  J Clin Psychol Med Settings       Date:  2013-03

6.  Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers?

Authors:  Theresa H M Keegan; Li Tao; Mindy C DeRouen; Xiao-Cheng Wu; Pinki Prasad; Charles F Lynch; Margarett Shnorhavorian; Brad J Zebrack; Roland Chu; Linda C Harlan; Ashley W Smith; Helen M Parsons
Journal:  J Cancer Surviv       Date:  2014-01-10       Impact factor: 4.442

Review 7.  Psychosocial dimensions of cancer in adolescents and young adults.

Authors:  Elana E Evan; Lonnie K Zeltzer
Journal:  Cancer       Date:  2006-10-01       Impact factor: 6.860

Review 8.  Cancer survivorship practices, services, and delivery: a report from the Children's Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees.

Authors:  Debra Eshelman-Kent; Karen E Kinahan; Wendy Hobbie; Wendy Landier; Steve Teal; Debra Friedman; Rajaram Nagarajan; David R Freyer
Journal:  J Cancer Surviv       Date:  2011-09-06       Impact factor: 4.442

9.  Early impact of the Patient Protection and Affordable Care Act on insurance among young adults with cancer: Analysis of the dependent insurance provision.

Authors:  Helen M Parsons; Susanne Schmidt; Laura L Tenner; Heejung Bang; Theresa H M Keegan
Journal:  Cancer       Date:  2016-03-21       Impact factor: 6.860

10.  Young and uninsured: Insurance patterns of recently diagnosed adolescent and young adult cancer survivors in the AYA HOPE study.

Authors:  Helen M Parsons; Susanne Schmidt; Linda C Harlan; Erin E Kent; Charles F Lynch; Ashley W Smith; Theresa H M Keegan
Journal:  Cancer       Date:  2014-06-04       Impact factor: 6.921

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