Literature DB >> 31512922

Surveillance studies involving HIV testing are needed: Will at-risk youth participate?

Aaliyah Gray1, Kathryn Macapagal2, Brian Mustanski2, Celia B Fisher1.   

Abstract

OBJECTIVE: Adolescent males who have sex with males (AMSMs) account for high numbers of new HIV diagnoses. To date, surveillance data have been limited to diagnosed cases of HIV, resulting in an underestimation of risk and burden among AMSMs unwilling or unable to access HIV testing. This study identified facilitators and barriers to AMSMs' participation in future surveillance studies involving HIV testing.
METHOD: AMSMs (n = 198) aged 14 to 17 years participated. The majority identified as non-Hispanic White or Latinx, had a least 1 male sex partner, and self-reported HIV negative. Participants read an online survey beginning with a vignette describing a hypothetical HIV surveillance study requiring HIV testing. They then completed questions assessing likelihood to participate, perceived research benefits and risks, attitudes toward HIV risk, prior HIV health services, and parental awareness of sexual orientation.
RESULTS: Approximately 40% indicated strong willingness to participate. Willingness was positively related to perceived HIV risk, free access to HIV testing, counseling and referral if testing positive, confidentiality protections, and lack of access to a trusted physician. Having to tell others if one tested positive for HIV and requirements for guardian permission were significant participation barriers.
CONCLUSIONS: Inclusion of HIV testing in surveillance studies is essential for accurate estimation of HIV incidence and prevalence among AMSMs. Successful recruitment of sexual minority youth into sexual health surveillance research will require procedures tailored to youth's health care needs and concerns, including adequate HIV counseling, referral to treatment if seropositive, and attention to concerns regarding guardian permission. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

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Year:  2019        PMID: 31512922      PMCID: PMC6901740          DOI: 10.1037/hea0000804

Source DB:  PubMed          Journal:  Health Psychol        ISSN: 0278-6133            Impact factor:   4.267


  27 in total

1.  Sexual and Gender Minority Adolescents' Views On HIV Research Participation and Parental Permission: A Mixed-Methods Study.

Authors:  Brian Mustanski; Ryan Coventry; Kathryn Macapagal; Miriam R Arbeit; Celia B Fisher
Journal:  Perspect Sex Reprod Health       Date:  2017-04-26

2.  Sex and gender in the US health surveillance system: a call to action.

Authors:  Kerith J Conron; Stewart J Landers; Sari L Reisner; Randall L Sell
Journal:  Am J Public Health       Date:  2014-04-17       Impact factor: 9.308

3.  A profile of North Carolina lesbian, gay, and bisexual health disparities, 2011.

Authors:  Derrick D Matthews; Joseph G L Lee
Journal:  Am J Public Health       Date:  2014-04-17       Impact factor: 9.308

4.  Integrating HIV Surveillance and Field Services: Data Quality and Care Continuum in King County, Washington, 2010-2015.

Authors:  Julia E Hood; David A Katz; Amy B Bennett; Susan E Buskin; Julia C Dombrowski; Stephen E Hawes; Matthew R Golden
Journal:  Am J Public Health       Date:  2017-10-19       Impact factor: 9.308

5.  Differences in Healthcare Access, Use, and Experiences Within a Community Sample of Racially Diverse Lesbian, Gay, Bisexual, Transgender, and Questioning Emerging Adults.

Authors:  Kathryn Macapagal; Ramona Bhatia; George J Greene
Journal:  LGBT Health       Date:  2016-10-11       Impact factor: 4.151

6.  Patient-Provider Communication Barriers and Facilitators to HIV and STI Preventive Services for Adolescent MSM.

Authors:  Celia B Fisher; Adam L Fried; Kathryn Macapagal; Brian Mustanski
Journal:  AIDS Behav       Date:  2018-10

7.  Self-Consent for HIV Prevention Research Involving Sexual and Gender Minority Youth: Reducing Barriers Through Evidence-Based Ethics.

Authors:  Celia B Fisher; Miriam R Arbeit; Melissa S Dumont; Kathryn Macapagal; Brian Mustanski
Journal:  J Empir Res Hum Res Ethics       Date:  2016-03-07       Impact factor: 1.742

8.  HIV Rates Are Increasing in Gay/Bisexual Teens: IRB Barriers to Research Must Be Resolved to Bend the Curve.

Authors:  Brian Mustanski; Celia B Fisher
Journal:  Am J Prev Med       Date:  2016-04-06       Impact factor: 5.043

9.  Young People and HIV: A Call to Action.

Authors:  Linda J Koenig; Deborah Hoyer; David W Purcell; Stephanie Zaza; Jonathan Mermin
Journal:  Am J Public Health       Date:  2016-01-21       Impact factor: 9.308

10.  "Free Testing and PrEP without Outing Myself to Parents:" Motivation to participate in oral and injectable PrEP clinical trials among adolescent men who have sex with men.

Authors:  Celia B Fisher; Adam L Fried; Leah Ibrahim Puri; Kathryn Macapagal; Brian Mustanski
Journal:  PLoS One       Date:  2018-07-25       Impact factor: 3.240

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  2 in total

1.  Associations between HIV Testing and Consent Policies among Sexually Active Adolescents: Differences by Sexual Behavior.

Authors:  Gregory Phillips; Xinzi Wang; Megan M Ruprecht; Reno Stephens; Diogo Costa; Lauren B Beach; Patrick Janulis
Journal:  AIDS Care       Date:  2021-10-20

Review 2.  HIV-Related Stigma Research as a Priority at the National Institutes of Health.

Authors:  Gregory L Greenwood; Amber Wilson; Geetha P Bansal; Christopher Barnhart; Elizabeth Barr; Rick Berzon; Cheryl Anne Boyce; William Elwood; Joyonna Gamble-George; Mary Glenshaw; Rebecca Henry; Hiroko Iida; Richard A Jenkins; Sonia Lee; Arianne Malekzadeh; Kathryn Morris; Peter Perrin; Elise Rice; Meryl Sufian; Darien Weatherspoon; Miya Whitaker; Makeda Williams; Sheryl Zwerski; Paul Gaist
Journal:  AIDS Behav       Date:  2021-04-22
  2 in total

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