Literature DB >> 26499310

Impacts of COPD on family carers and supportive interventions: a narrative review.

Joana Cruz1,2, Alda Marques2,3, Daniela Figueiredo2,3.   

Abstract

Caring for a relative with chronic disease influences multiple dimensions of family carers' lives. This study aimed to provide an overview of the impacts of chronic obstructive pulmonary disease (COPD) on family carers and identify interventions aimed at supporting them. A narrative review was conducted. Searches were performed in electronic databases using a combination of keywords. Articles were screened for relevance and selected articles were analysed in two groups considering the study aims. Eighteen articles were selected. Fifteen studies evaluated the impacts of COPD on family carers and three studies presented interventions aimed at supporting them. Carers reported negative impacts of caring on physical health, emotional, social, relational and financial/employment life dimensions. Positive aspects of care-giving were reported in four studies and were related to carers' personal growth and satisfaction in being able to do something useful for their relatives. The existing interventions were directed at both patients and carers; however, studies provided limited information on how carers were involved, hindering the interpretation of findings. In conclusion, COPD poses several unique challenges to family carers related to the specificities of the disease. Further research with appropriate intervention studies is needed to promote carers' healthy adjustment to the disease.
© 2015 John Wiley & Sons Ltd.

Entities:  

Keywords:  chronic obstructive pulmonary disease; experience; family members; informal care-giving; support

Mesh:

Year:  2015        PMID: 26499310     DOI: 10.1111/hsc.12292

Source DB:  PubMed          Journal:  Health Soc Care Community        ISSN: 0966-0410


  12 in total

1.  Anxiety, depression and quality of life in chronic obstructive pulmonary disease patients and caregivers: an actor-partner interdependence model analysis.

Authors:  Dhurata Ivziku; Marco Clari; Michela Piredda; Maria Grazia De Marinis; Maria Matarese
Journal:  Qual Life Res       Date:  2018-10-19       Impact factor: 4.147

2.  Six key topics informal carers of patients with breathlessness in advanced disease want to learn about and why: MRC phase I study to inform an educational intervention.

Authors:  Morag Farquhar; Clarissa Penfold; John Benson; Roberta Lovick; Ravi Mahadeva; Sophie Howson; Julie Burkin; Sara Booth; David Gilligan; Christopher Todd; Gail Ewing
Journal:  PLoS One       Date:  2017-05-05       Impact factor: 3.240

Review 3.  Assessing carer needs in chronic obstructive pulmonary disease.

Authors:  Morag Farquhar
Journal:  Chron Respir Dis       Date:  2017-07-07       Impact factor: 2.444

4.  When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences-A qualitative study.

Authors:  Christina Egmose Frandsen; Erik Bo Pedersen; Hanne Agerskov
Journal:  Nurs Open       Date:  2020-04-02

5.  Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review.

Authors:  Kerry Micklewright; Morag Farquhar
Journal:  Palliat Med       Date:  2020-07-16       Impact factor: 4.762

6.  Ten minutes to midnight: a narrative inquiry of people living with dying with advanced copd and their family members.

Authors:  Anita E Molzahn; Laurene Sheilds; Marcy Antonio; Anne Bruce; Kara Schick-Makaroff; Robyn Wiebe
Journal:  Int J Qual Stud Health Well-being       Date:  2021-12

7.  Integrating Home-Based Exercise Training with a Hospital at Home Service for Patients Hospitalised with Acute Exacerbations of COPD: Developing the Model Using Accelerated Experience-Based Co-Design.

Authors:  Ruth E Barker; Lisa J Brighton; Matthew Maddocks; Claire M Nolan; Suhani Patel; Jessica A Walsh; Oliver Polgar; Jenni Wenneberg; Samantha S C Kon; Jadwiga A Wedzicha; William D C Man; Morag Farquhar
Journal:  Int J Chron Obstruct Pulmon Dis       Date:  2021-04-19

8.  Sexual health communication in COPD: The role, contents and design of patient information leaflets.

Authors:  Sandra Esperanza Rubio-Rask; Ingeborg Farver-Vestergaard; Ole Hilberg; Anders Løkke
Journal:  Chron Respir Dis       Date:  2021 Jan-Dec       Impact factor: 2.444

9.  Striving for Confidence and Satisfaction in Everyday Life with Chronic Obstructive Pulmonary Disease: Rationale and Content of the Tele-Rehabilitation Programme >C☺PD-Life>>.

Authors:  Charlotte Simonÿ; Claus Riber; Uffe Bodtger; Regner Birkelund
Journal:  Int J Environ Res Public Health       Date:  2019-09-09       Impact factor: 3.390

10.  Tailored, psychological intervention for anxiety or depression in people with chronic obstructive pulmonary disease (COPD), TANDEM (Tailored intervention for ANxiety and DEpression Management in COPD): protocol for a randomised controlled trial.

Authors:  Ratna Sohanpal; Hilary Pinnock; Liz Steed; Karen Heslop Marshall; Claire Chan; Moira Kelly; Stefan Priebe; C Michael Roberts; Sally Singh; Melanie Smuk; Sarah Saqi-Waseem; Andy Healey; Martin Underwood; Patrick White; Chris Warburton; Stephanie J C Taylor
Journal:  Trials       Date:  2020-01-06       Impact factor: 2.279

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