Anita E Molzahn1, Laurene Sheilds2, Marcy Antonio3, Anne Bruce4, Kara Schick-Makaroff1, Robyn Wiebe4. 1. Faculty of Nursing, University of Alberta, Edmonton, AB, Canada. 2. School of Nursing, Division of Teaching and Learning Support and Innovation, University of Victoria, Victoria, BC, Canada. 3. School of Nursing and School of Health Information Science, University of Victoria, Victoria, BC, Canada. 4. School of Nursing, University of Victoria, Victoria, BC, Canada.
Abstract
Purpose: To explore how people with end stage chronic obstructive pulmonary disease and their family members describe living in the face of impending death. Methods: A narrative inquiry was undertaken using a social constructionist perspective. Data were collected in 2017-18 in two in-depth interviews, lasting 90 to 120 minutes approximately 3-4 months apart, with a telephone follow-up 2-3 months later. Thematic analysis was conducted including analysis within and across participants. Results: Sixteen people with advanced chronic obstructive pulmonary disease and seven family members participated. For both people with the disease and family members, six key themes/storylines emerged including missing life, being vigilant, hope and realism, avoiding death talk, the scary dying process, and need to prepare. Conclusion: This study highlighted six key storylines about death and dying with advanced chronic obstructive pulmonary disease for people with the illness and their family members. The participants with the illness and their family members held similar perceptions about end of life. More supports are needed for people with advanced chronic obstructive pulmonary disease and their family members in living with their illness while ensuring that they experience a "good death."
Purpose: To explore how people with end stage chronic obstructive pulmonary disease and their family members describe living in the face of impending death. Methods: A narrative inquiry was undertaken using a social constructionist perspective. Data were collected in 2017-18 in two in-depth interviews, lasting 90 to 120 minutes approximately 3-4 months apart, with a telephone follow-up 2-3 months later. Thematic analysis was conducted including analysis within and across participants. Results: Sixteen people with advanced chronic obstructive pulmonary disease and seven family members participated. For both people with the disease and family members, six key themes/storylines emerged including missing life, being vigilant, hope and realism, avoiding death talk, the scary dying process, and need to prepare. Conclusion: This study highlighted six key storylines about death and dying with advanced chronic obstructive pulmonary disease for people with the illness and their family members. The participants with the illness and their family members held similar perceptions about end of life. More supports are needed for people with advanced chronic obstructive pulmonary disease and their family members in living with their illness while ensuring that they experience a "good death."
Authors: Anand S Iyer; James Nicholas Dionne-Odom; Dina M Khateeb; Lanier O'Hare; Rodney O Tucker; Cynthia J Brown; Mark T Dransfield; Marie A Bakitas Journal: J Palliat Med Date: 2019-10-29 Impact factor: 2.947
Authors: Anita E Molzahn; Laurene Sheilds; Anne Bruce; Kara Schick-Makaroff; Marcy Antonio; Alexander M Clark Journal: Eur J Cardiovasc Nurs Date: 2020-04-27 Impact factor: 3.908
Authors: Bridget A Graney; Frederick S Wamboldt; Susan Baird; Tara Churney; Kaitlin Fier; Marjorie Korn; Mark McCormick; Thomas Vierzba; Jeffrey J Swigris Journal: Health Qual Life Outcomes Date: 2017-07-01 Impact factor: 3.186
Authors: Tetyana Kendzerska; Jason W Nickerson; Amy T Hsu; Andrea S Gershon; Robert Talarico; Sunita Mulpuru; Smita Pakhale; Peter Tanuseputro Journal: Int J Chron Obstruct Pulmon Dis Date: 2019-07-31