Literature DB >> 26479566

Return of Results from Research Using Newborn Screening Dried Blood Samples.

Michelle Huckaby Lewis1, Aaron J Goldenberg2.   

Abstract

There may be compelling reasons to return to parents a limited subset of results from research conducted using residual newborn screening dried blood samples (DBS). This article explores the circumstances under which research results might be returned, as well as the mechanisms by which state newborn screening programs might facilitate the return of research results. The scope of any responsibility to return results of research conducted using DBS should be assessed in light of the potential impact on the primary mission of state newborn screening programs.
© 2015 American Society of Law, Medicine & Ethics, Inc.

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Year:  2015        PMID: 26479566      PMCID: PMC4617190          DOI: 10.1111/jlme.12299

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  20 in total

1.  Clinical Management of Pediatric Genomic Testing.

Authors:  Ingrid A Holm
Journal:  Curr Genet Med Rep       Date:  2014-12-01

2.  Preliminary investigation of the use of dried-blood spots for the assessment of in utero exposure to environmental pollutants.

Authors:  V W Burse; M R DeGuzman; M P Korver; A R Najam; C C Williams; W H Hannon; B L Therrell
Journal:  Biochem Mol Med       Date:  1997-08

3.  Newborn screening: toward a uniform screening panel and system--executive summary.

Authors: 
Journal:  Pediatrics       Date:  2006-05       Impact factor: 7.124

4.  Feasibility of neonatal dried blood spot retrieval amid evolving state policies (2009-2010): a Children's Oncology Group study.

Authors:  Amy M Linabery; Megan E Slater; Logan G Spector; Andrew F Olshan; Susan K Stork; Michelle A Roesler; Gregory H Reaman; Julie A Ross
Journal:  Paediatr Perinat Epidemiol       Date:  2011-08-10       Impact factor: 3.980

Review 5.  Diagnosis of congenital CMV infection via dried blood spots.

Authors:  Maria Barbi; Sandro Binda; Simona Caroppo
Journal:  Rev Med Virol       Date:  2006 Nov-Dec       Impact factor: 6.989

6.  Incidental findings in pediatric research.

Authors:  Benjamin S Wilfond; Katherine J Carpenter
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

7.  Addressing the ethical challenges in genetic testing and sequencing of children.

Authors:  Ellen Wright Clayton; Laurence B McCullough; Leslie G Biesecker; Steven Joffe; Lainie Friedman Ross; Susan M Wolf
Journal:  Am J Bioeth       Date:  2014       Impact factor: 11.229

8.  Research results: preserving newborn blood samples.

Authors:  Michelle Huckaby Lewis; Michael E Scheurer; Robert C Green; Amy L McGuire
Journal:  Sci Transl Med       Date:  2012-11-07       Impact factor: 17.956

9.  Improving newborn screening for cystic fibrosis using next-generation sequencing technology: a technical feasibility study.

Authors:  Mei W Baker; Anne E Atkins; Suzanne K Cordovado; Miyono Hendrix; Marie C Earley; Philip M Farrell
Journal:  Genet Med       Date:  2015-02-12       Impact factor: 8.822

10.  Clone-specific secondary aberrations are not detected in neonatal blood spots of children with ETV6-RUNX1-positive leukemia.

Authors:  Maria Morak; Claus Meyer; Rolf Marschalek; Georg Mann; Oskar A Haas; Renate Panzer-Grümayer
Journal:  Haematologica       Date:  2013-09       Impact factor: 9.941

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  2 in total

1.  Exposure to Persistent Organic Pollutants and Birth Characteristics: The Upstate KIDS Study.

Authors:  Griffith A Bell; Neil Perkins; Germaine M Buck Louis; Kurunthachalam Kannan; Erin M Bell; Chongjing Gao; Edwina H Yeung
Journal:  Epidemiology       Date:  2019-11       Impact factor: 4.822

2.  Exome/Genome-Wide Testing in Newborn Screening: A Proportionate Path Forward.

Authors:  Vasiliki Rahimzadeh; Jan M Friedman; Guido de Wert; Bartha M Knoppers
Journal:  Front Genet       Date:  2022-07-04       Impact factor: 4.772

  2 in total

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