Literature DB >> 26239724

Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project.

D Stark1, S Bielack2, L Brugieres3, U Dirksen4,5, X Duarte6, S Dunn7, D J Erdelyi8, T Grew9, L Hjorth10, J Jazbec11, E Kabickova12, A Konsoulova13, J R Kowalczyk14, A Lassaletta5, V Laurence15, I Lewis16, A Monrabal17, S Morgan18, G Mountzios19, P R Olsen20, M Renard21, G Saeter22, W T van der Graaf23, A Ferrari24.   

Abstract

Over 14 000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has held a series of scientific meetings, including professionals, patients and caregivers. This group has proposed unanswered research questions and agreed key features of a high-quality service that can improve outcomes for TYA with cancer, including the primacy of collaboration between adult and paediatric services to eliminate the gap in the management of TYA with cancer.
© 2015 John Wiley & Sons Ltd.

Entities:  

Keywords:  adolescents; cancer; teenagers

Mesh:

Year:  2015        PMID: 26239724     DOI: 10.1111/ecc.12365

Source DB:  PubMed          Journal:  Eur J Cancer Care (Engl)        ISSN: 0961-5423            Impact factor:   2.520


  15 in total

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Authors:  Jennifer L Crombie; Ann S LaCasce
Journal:  Br J Haematol       Date:  2018-11-20       Impact factor: 6.998

2.  Joint adolescent-adult early phase clinical trials to improve access to new drugs for adolescents with cancer: proposals from the multi-stakeholder platform-ACCELERATE.

Authors:  N Gaspar; L V Marshall; D Binner; R Herold; R Rousseau; P Blanc; R Capdeville; J Carleer; C Copland; Y Kerloeguen; K Norga; L Pacaud; M-A Sevaux; C Spadoni; J Sterba; F Ligas; T Taube; M Uttenreuther-Fischer; S Chioato; M A O'Connell; B Geoerger; J-Y Blay; J C Soria; S Kaye; B Wulff; L Brugières; G Vassal; A D J Pearson
Journal:  Ann Oncol       Date:  2018-03-01       Impact factor: 32.976

3.  Access to principal treatment centres and survival rates for children and young people with cancer in Yorkshire, UK.

Authors:  Lesley Fairley; Daniel P Stark; Daniel Yeomanson; Sally E Kinsey; Adam W Glaser; Susan V Picton; Linda Evans; Richard G Feltbower
Journal:  BMC Cancer       Date:  2017-03-04       Impact factor: 4.430

4.  Assessing the Quality, Feasibility, and Efficacy of Electronic Patient Platforms Designed to Support Adolescents and Young Adults With Cancer: A Systematic Review Protocol.

Authors:  Gemma Pugh; Lisa McCann
Journal:  JMIR Res Protoc       Date:  2017-01-17

5.  EORTC SPECTA-AYA: A unique molecular profiling platform for adolescents and young adults with cancer in Europe.

Authors:  Teresa de Rojas; Bernd Kasper; Winette Van der Graaf; Stefan M Pfister; Franck Bielle; Teresa Ribalta; Patrick Shenjere; Matthias Preusser; Stefan Fröhling; Vassilis Golfinopoulos; Marie Morfouace; Martin G McCabe
Journal:  Int J Cancer       Date:  2019-09-14       Impact factor: 7.396

6.  Frequent Clinical and Radiological Progression of Optic Pathway/Hypothalamic Pilocytic Astrocytoma in Adolescents and Young Adults.

Authors:  Takuhiro Shoji; Masayuki Kanamori; Ryuta Saito; Yuko Watanabe; Mika Watanabe; Miki Fujimura; Yoshikazu Ogawa; Yukihiko Sonoda; Toshihiro Kumabe; Shigeo Kure; Teiji Tominaga
Journal:  Neurol Med Chir (Tokyo)       Date:  2020-05-14       Impact factor: 1.742

7.  Online support community for adolescents and young adults (AYAs) with cancer: user statistics, evaluation, and content analysis.

Authors:  Suzanne Ej Kaal; Olga Husson; Fleur van Dartel; Karin Hermans; Rosemarie Jansen; Eveliene Manten-Horst; Petra Servaes; Tom H van de Belt; Lucien Jlpg Engelen; Judith B Prins; Suzan Verberne; Winette Ta van der Graaf
Journal:  Patient Prefer Adherence       Date:  2018-12-06       Impact factor: 2.711

8.  Description of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in England.

Authors:  Rachel M Taylor; Lorna A Fern; Julie Barber; Javier Alvarez-Galvez; Richard Feltbower; Stephen Morris; Louise Hooker; Martin G McCabe; Faith Gibson; Rosalind Raine; Dan P Stark; Jeremy S Whelan
Journal:  BMJ Open       Date:  2019-04-20       Impact factor: 2.692

9.  Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer.

Authors:  Rachel M Taylor; Richard G Feltbower; Natasha Aslam; Rosalind Raine; Jeremy S Whelan; Faith Gibson
Journal:  BMJ Open       Date:  2016-05-03       Impact factor: 2.692

10.  The care of adolescents and young adults with cancer: results of the ESMO/SIOPE survey.

Authors:  Emmanouil Saloustros; Daniel P Stark; Kyriaki Michailidou; Giannis Mountzios; Laurence Brugieres; Fedro Alessandro Peccatori; Svetlana Jezdic; Samira Essiaf; Jean-Yves Douillard; Stefan Bielack
Journal:  ESMO Open       Date:  2017-09-08
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