Literature DB >> 26201037

Guidelines for the Standard Monitoring of Patients With Thalassemia: Report of the Thalassemia Longitudinal Cohort.

Venée N Tubman1, Ellen B Fung, Maria Vogiatzi, Alexis A Thompson, Zora R Rogers, Ellis J Neufeld, Janet L Kwiatkowski.   

Abstract

Chronic transfusion therapy has played a central role in extending life expectancy for patients with hemoglobinopathies such as thalassemia. However, this life-saving therapy is associated with numerous complications that now comprise the bulk of management considerations for patients with thalassemia. This review reports on the experience of the Thalassemia Longitudinal Cohort and reviews available literature to establish guidelines for the management of patients with thalassemia.

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Mesh：

Year:  2015        PMID： 26201037      PMCID： PMC4511957          DOI： 10.1097/MPH.0000000000000307

Source DB:  PubMed          Journal:  J Pediatr Hematol Oncol        ISSN： 1077-4114            Impact factor:   1.289


  67 in total

1.  Myocardial iron loading in transfusion-dependent thalassemia and sickle cell disease.

Authors:  John C Wood; J Michael Tyszka; Susan Carson; Marvin D Nelson; Thomas D Coates
Journal:  Blood       Date:  2003-11-20       Impact factor: 22.113

2.  MRI guided iron assessment and oral chelator use improve iron status in thalassemia major patients.

Authors:  Diana X Nichols-Vinueza; Matthew T White; Andrew J Powell; Puja Banka; Ellis J Neufeld
Journal:  Am J Hematol       Date:  2014-04-10       Impact factor: 10.047

3.  Ocular changes in patients undergoing long-term desferrioxamine treatment.

Authors:  G B Arden; B Wonke; C Kennedy; E R Huehns
Journal:  Br J Ophthalmol       Date:  1984-12       Impact factor: 4.638

4.  Iron chelation with deferasirox in adult and pediatric patients with thalassemia major: efficacy and safety during 5 years' follow-up.

Authors:  M Domenica Cappellini; Mohamed Bejaoui; Leyla Agaoglu; Duran Canatan; Marcello Capra; Alan Cohen; Guillermo Drelichman; Marina Economou; Slaheddine Fattoum; Antonis Kattamis; Yurdanur Kilinc; Silverio Perrotta; Antonio Piga; John B Porter; Louis Griffel; Victor Dong; Joan Clark; Yesim Aydinok
Journal:  Blood       Date:  2011-05-31       Impact factor: 22.113

5.  Blood transfusion and alloimmunization in patients with thalassemia: multicenter study.

Authors:  Azita Azarkeivan; Shahla Ansari; Mohammad Hossein Ahmadi; Bashir Hajibeigy; Mahtab Maghsudlu; Soheila Nasizadeh; Mojgan Shaigan; Abdolmajid Toolabi; Mitra Salahmand
Journal:  Pediatr Hematol Oncol       Date:  2011-09       Impact factor: 1.969

6.  Survival and complications in patients with thalassemia major treated with transfusion and deferoxamine.

Authors:  Caterina Borgna-Pignatti; Simone Rugolotto; Piero De Stefano; Huaqing Zhao; Maria Domenica Cappellini; Giovanni Carlo Del Vecchio; Maria Antonietta Romeo; Gian Luca Forni; Maria Rita Gamberini; Roberta Ghilardi; Antonio Piga; Avital Cnaan
Journal:  Haematologica       Date:  2004-10       Impact factor: 9.941

7.  Costs, quality of life, treatment satisfaction and compliance in patients with beta-thalassemia major undergoing iron chelation therapy: the ITHACA study.

Authors:  Luciana Scalone; Lorenzo G Mantovani; Marieke Krol; Diana Rofail; Simona Ravera; Maria Grazia Bisconte; Caterina Borgna-Pignatti; Zelia Borsellino; Paolo Cianciulli; Domenico Gallisai; Luciano Prossomariti; Ippazio Stefàno; Maria D Cappellini
Journal:  Curr Med Res Opin       Date:  2008-05-27       Impact factor: 2.580

8.  Deferiprone-associated myelotoxicity.

Authors:  F N al-Refaie; B Wonke; A V Hoffbrand
Journal:  Eur J Haematol       Date:  1994-11       Impact factor: 2.997

Review 9.  Update on fertility in thalassaemia major.

Authors:  Nicos Skordis; Loizos Petrikkos; Meropi Toumba; Michael Hadjigavriel; Maria Sitarou; Annita Kolnakou; George Skordos; Evi Pangalou; Soteroulla Christou
Journal:  Pediatr Endocrinol Rev       Date:  2004-12

10.  RBC alloimmunization and autoimmunization among transfusion-dependent Arab thalassemia patients.

Authors:  Reem Ameen; Salem Al-Shemmari; Salah Al-Humood; Rafiq I Chowdhury; Ohood Al-Eyaadi; Abdulaziz Al-Bashir
Journal:  Transfusion       Date:  2003-11       Impact factor: 3.157
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  15 in total

Review 1.  Musculoskeletal imaging manifestations of beta-thalassemia.

Authors:  Maryam Hajimoradi; Sara Haseli; Alireza Abadi; Majid Chalian
Journal:  Skeletal Radiol       Date:  2021-02-09       Impact factor: 2.199

2.  Vertebral Bone Density Measurements by DXA are Influenced by Hepatic Iron Overload in Patients with Hemoglobinopathies.

Authors:  Haven M Allard; Lisa Calvelli; Marcela G Weyhmiller; Ginny Gildengorin; Ellen B Fung
Journal:  J Clin Densitom       Date:  2018-07-11       Impact factor: 2.617

3.  Ringed sideroblasts in β-thalassemia.

Authors:  Kim Cattivelli; Dean R Campagna; Klaus Schmitz-Abe; Matthew M Heeney; Hassan M Yaish; Amy E Caruso Brown; Susan Kearney; Kelly Walkovich; Kyriacos Markianos; Mark D Fleming; Ellis J Neufeld
Journal:  Pediatr Blood Cancer       Date:  2016-11-03       Impact factor: 3.167

4.  The effect of zinc deficiency and iron overload on endocrine and exocrine pancreatic function in children with transfusion-dependent thalassemia: a cross-sectional study.

Authors:  Suzan O Mousa; Ebtihal M Abd Alsamia; Hend M Moness; Osama G Mohamed
Journal:  BMC Pediatr       Date:  2021-10-22       Impact factor: 2.125

5.  RANK/RANKL/OPG axis genes relation to cognitive impairment in children with transfusion-dependent thalassemia: a cross-sectional study.

Authors:  Suzan Omar Mousa; Asmaa Hosni Abd El-Hafez; Mostafa Ahmed Abu El-Ela; Mohamed Aboul-Fotouh Mourad; Rasha Nady Saleh; Samira Zain Sayed
Journal:  BMC Pediatr       Date:  2022-07-20       Impact factor: 2.567

6.  EFFECTS OF HOME-CARE TRAINING ON THE SELF-EFFICACY OF PATIENTS WITH BETA THALASSEMIA MAJOR.

Authors:  Mahdieh Poodineh Moghadam; Hajar Nourisancho; Hossein Shahdadi; Sohila Shahraki; Batoul Azarkish; Abbas Balouchi
Journal:  Mater Sociomed       Date:  2016-10-17

7.  International Comparison of Thalassemia Registries: Challenges and Opportunities.

Authors:  Tayebeh Noori; Marjan Ghazisaeedi; Ghasem Miri Aliabad; Yousef Mehdipour; Esmaeil Mehraeen; Rosa Conte; Reza Safdari
Journal:  Acta Inform Med       Date:  2019-03

8.  Effect of quercetin on oxidative stress and liver function in beta-thalassemia major patients receiving desferrioxamine: A double-blind randomized clinical trial.

Authors:  Zohreh Sajadi Hezaveh; Azita Azarkeivan; Leila Janani; Farzad Shidfar
Journal:  J Res Med Sci       Date:  2019-10-25       Impact factor: 1.852

9.  Experience of Uncertainty in Patients with Thalassemia Major: A Qualitative Study.

Authors:  Mehrnaz Ahmadi; Mahin Gheibizadeh; Maryam Rassouli; Abbas Ebadi; Marziyeh Asadizaker; Mojtaba Jahanifar
Journal:  Int J Hematol Oncol Stem Cell Res       Date:  2020-10-01

10.  The hepcidin regulator erythroferrone is a new member of the erythropoiesis-iron-bone circuitry.

Authors:  Melanie Castro-Mollo; Sakshi Gera; Marc Ruiz-Martinez; Maria Feola; Anisa Gumerova; Marina Planoutene; Cara Clementelli; Veena Sangkhae; Carla Casu; Se-Min Kim; Vaughn Ostland; Huiling Han; Elizabeta Nemeth; Robert Fleming; Stefano Rivella; Daria Lizneva; Tony Yuen; Mone Zaidi; Yelena Ginzburg
Journal:  Elife       Date:  2021-05-18       Impact factor: 8.713
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