Literature DB >> 26142373

Embodied Knowledge and Making Sense of Prenatal Diagnosis.

A Lippman1.   

Abstract

Open-ended, qualitative interviews with women to whom amniocentesis was offered were analyzed to understand how women made sense of these tests. We found that women, whether tested or not, negotiated with biomedical information. They transformed it through identifiable processes, then wove it with their own instincts and beliefs and with their personal experiences, thereby creating "embodied" knowledge on which their decisions were based. Women who were and were not tested may have differed from each other when categorized on the basis of a final, binary choice, but they were more alike than unalike in reaching this point. The apparent importance of embodied knowledge suggests the critical role of the listening activities of the genetic counselor and of awareness of the validity and importance of women's complementary ways of knowing and doing in understanding the uses and meanings of prenatal genetic testing.

Entities:  

Year:  1999        PMID: 26142373     DOI: 10.1023/A:1022901131305

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  20 in total

1.  Nuance, complexity, and context: qualitative methods in genetic counseling research.

Authors:  Diane Beeson
Journal:  J Genet Couns       Date:  1997-03       Impact factor: 2.537

2.  Mother matters: a fresh look at prenatal genetic testing.

Authors:  Abby Lippman
Journal:  Issues Reprod Genet Eng       Date:  1992

3.  "Respect for autonomy" in genetic counseling: an analysis and a proposal.

Authors:  Mary Terrell White
Journal:  J Genet Couns       Date:  1997-09       Impact factor: 2.537

4.  "I can feel it -- my baby is healthy": women's experiences with prenatal diagnosis in Switzerland.

Authors:  Monika Leuzinger; Bigna Rambert
Journal:  Reprod Genet Eng       Date:  1988

Review 5.  Prenatal diagnosis: can what counts be counted?

Authors:  A Lippman
Journal:  Women Health       Date:  1992

Review 6.  Probabilities and health risks: a qualitative approach.

Authors:  B Heyman; M Henriksen; K Maughan
Journal:  Soc Sci Med       Date:  1998-11       Impact factor: 4.634

7.  The social production of authoritative knowledge in pregnancy and childbirth.

Authors:  R Davis-Floyd; C Sargent
Journal:  Med Anthropol Q       Date:  1996-06

8.  Views of what's wrong: diagnosis and patients' concepts of illness.

Authors:  L M Hunt; B Jordan; S Irwin
Journal:  Soc Sci Med       Date:  1989       Impact factor: 4.634

9.  Racial-ethnic differences in prenatal diagnostic test use and outcomes: preferences, socioeconomics, or patient knowledge?

Authors:  M Kuppermann; E Gates; A E Washington
Journal:  Obstet Gynecol       Date:  1996-05       Impact factor: 7.661

10.  Decision making during the prenatal diagnostic procedure. A questionnaire and interview study of 211 women participating in prenatal diagnosis.

Authors:  B Sjögren; N Uddenberg
Journal:  Prenat Diagn       Date:  1988-05       Impact factor: 3.050

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  16 in total

1.  Perceived relevance of genetic carrier screening: observations of the role of health-related life experiences and stage of life in decision making.

Authors:  Alison D Archibald; Belinda J McClaren
Journal:  J Community Genet       Date:  2011-11-17

2.  Authoritative knowledge, the technological imperative and women's responses to prenatal diagnostic technologies.

Authors:  Judith L M McCoyd
Journal:  Cult Med Psychiatry       Date:  2010-12

3.  "Don't Want No Risk and Don't Want No Problems": Public Understandings of the Risks and Benefits of Non-Invasive Prenatal Testing in the United States.

Authors:  Megan Allyse; Lauren Carter Sayres; Taylor Goodspeed; Marsha Michie; Mildred K Cho
Journal:  AJOB Empir Bioeth       Date:  2015

4.  Grounded theory in genetic counseling research: an interpretive perspective.

Authors:  Robin E Grubs; Maria Piantanida
Journal:  J Genet Couns       Date:  2010-02-02       Impact factor: 2.537

5.  Expert Knowledge Influences Decision-Making for Couples Receiving Positive Prenatal Chromosomal Microarray Testing Results.

Authors:  M A Rubel; A Werner-Lin; F K Barg; B A Bernhardt
Journal:  Cult Med Psychiatry       Date:  2017-09

6.  A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome.

Authors:  Amy R Reed; Kathryn L Berrier
Journal:  J Genet Couns       Date:  2016-12-29       Impact factor: 2.537

Review 7.  A systematic review of decision support needs of parents making child health decisions.

Authors:  Cath Jackson; Francine M Cheater; Innes Reid
Journal:  Health Expect       Date:  2008-09       Impact factor: 3.377

8.  Exploring informed choice in the context of prenatal testing: findings from a qualitative study.

Authors:  Beth K Potter; Natasha O'Reilly; Holly Etchegary; Heather Howley; Ian D Graham; Mark Walker; Doug Coyle; Yelena Chorny; Mario Cappelli; Isabelle Boland; Brenda J Wilson
Journal:  Health Expect       Date:  2008-09-16       Impact factor: 3.377

9.  A qualitative description of receiving a diagnosis of clefting in the prenatal or postnatal period.

Authors:  Rachel Nusbaum; Robin E Grubs; Joseph E Losee; Carla Weidman; Matthew D Ford; Mary L Marazita
Journal:  J Genet Couns       Date:  2008-05-15       Impact factor: 2.537

10.  Adolescent carrier testing in practice: the impact of legal rulings and problems with "gillick competence".

Authors:  Paula Boddington; Maggie Gregory
Journal:  J Genet Couns       Date:  2008-08-29       Impact factor: 2.537

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