Literature DB >> 26125079

A New Measure of Research Participant Burden: Brief Report.

Jennifer H Lingler1, Karen L Schmidt, Amanda L Gentry, Lu Hu, Lauren A Terhorst.   

Abstract

Effective conceptualizations of research burden should address indirect burdens related to research duration, intensity, and invasiveness. Introducing the concept of perceived research burden, we developed, tested, and validated a new instrument, the Perceived Research Burden Assessment (PeRBA). Initial psychometric evaluation of PeRBA reveals good internal consistency, evidence of face validity, and acceptable convergent and discriminant validity.

Entities:  

Mesh：

Year:  2014        PMID： 26125079      PMCID： PMC4487419          DOI： 10.1177/1556264614545037

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN： 1556-2646            Impact factor:   1.742


  30 in total

1.  Research evaluation and diagnosis of probable Alzheimer's disease over the last two decades: I.

Authors:  O L Lopez; J T Becker; W Klunk; J Saxton; R L Hamilton; D I Kaufer; R A Sweet; C Cidis Meltzer; S Wisniewski; M I Kamboh; S T DeKosky
Journal:  Neurology       Date:  2000-12-26       Impact factor: 9.910

2.  Willingness to participate in clinical treatment research among older African Americans and Whites.

Authors:  Diane R Brown; Meral Topcu
Journal:  Gerontologist       Date:  2003-02

3.  A new brief instrument for assessing decisional capacity for clinical research.

Authors:  Dilip V Jeste; Barton W Palmer; Paul S Appelbaum; Shahrokh Golshan; Danielle Glorioso; Laura B Dunn; Kathleen Kim; Thomas Meeks; Helena C Kraemer
Journal:  Arch Gen Psychiatry       Date:  2007-08

4.  Respondent burden in clinical research: when are we asking too much of subjects?

Authors:  Connie M Ulrich; Gwenyth R Wallen; Autumn Feister; Christine Grady
Journal:  IRB       Date:  2005 Jul-Aug

5.  Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocols.

Authors:  Janet L Brody; Robert D Annett; David G Scherer; Mandy L Perryman; Keely M W Cofrin
Journal:  J Adolesc Health       Date:  2005-09       Impact factor: 5.012

6.  Ethical aspects of dementia research: informed consent and proxy consent.

Authors:  G A Sachs; C B Stocking; R Stern; D M Cox; G Hougham; R S Sachs
Journal:  Clin Res       Date:  1994-10

7.  African Americans' views on research and the Tuskegee Syphilis Study.

Authors:  V S Freimuth; S C Quinn; S B Thomas; G Cole; E Zook; T Duncan
Journal:  Soc Sci Med       Date:  2001-03       Impact factor: 4.634

8.  Prevalence and classification of mild cognitive impairment in the Cardiovascular Health Study Cognition Study: part 1.

Authors:  Oscar L Lopez; William J Jagust; Steven T DeKosky; James T Becker; Annette Fitzpatrick; Corinne Dulberg; John Breitner; Constantine Lyketsos; Beverly Jones; Claudia Kawas; Michelle Carlson; Lewis H Kuller
Journal:  Arch Neurol       Date:  2003-10

9.  Participation of children in clinical research: factors that influence a parent's decision to consent.

Authors:  Alan R Tait; Terri Voepel-Lewis; Shobha Malviya
Journal:  Anesthesiology       Date:  2003-10       Impact factor: 7.892

10.  What motivates women to take part in clinical and basic science endometriosis research?

Authors:  Sanjay K Agarwal; Sylvia Estrada; Warren G Foster; L Lewis Wall; Doug Brown; Elaine S Revis; Suzanne Rodriguez
Journal:  Bioethics       Date:  2007-06       Impact factor: 1.898
View more
  25 in total

1.  Assessment of Capacity to Consent to Research Among Psychiatric Outpatients: Prevalence and Associated Factors.

Authors:  Inés Morán-Sánchez; Aurelio Luna; Maria D Pérez-Cárceles
Journal:  Psychiatr Q       Date:  2016-03

2.  Targeting Adiposity and Inflammation With Movement to Improve Prognosis in Breast Cancer Survivors (The AIM Trial): Rationale, Design, and Methods.

Authors:  Dong-Woo Kang; Rebekah L Wilson; Paola Gonzalo-Encabo; Mary K Norris; Marybeth Hans; Meghan Tahbaz; Jackie Dawson; Danny Nguyen; Amber J Normann; Alexandra G Yunker; Nathalie Sami; Hajime Uno; Jennifer A Ligibel; Steven D Mittelman; Christina M Dieli-Conwright
Journal:  Front Oncol       Date:  2022-06-20       Impact factor: 5.738

3.  Willingness to Participate in Clinical Research Among Individuals With Cognitive Impairment.

Authors:  Mengchi Li; Hyejin Kim; Susan M Sereika; Trevor J Nissley; Jennifer H Lingler
Journal:  Res Gerontol Nurs       Date:  2022-02-11       Impact factor: 1.643

4.  Generalizability of pause times in sentence production to distinguish between adult writers.

Authors:  Catherine Meulemans; Sven De Maeyer; Mariëlle Leijten
Journal:  Behav Res Methods       Date:  2021-11-23

5.  A Qualitative Analysis of the Remote Food Photography Method and the Automated Self-Administered 24-hour Dietary Assessment Tool for Assessing Children's Food Intake Reported by Parent Proxy.

Authors:  Traci A Bekelman; Susan L Johnson; Rachel I Steinberg; Corby K Martin; Katherine A Sauder; Sophie Luckett-Cole; Deborah H Glueck; Daniel S Hsia; Dana Dabelea
Journal:  J Acad Nutr Diet       Date:  2021-11-10       Impact factor: 5.234

6.  Psychometric Properties of a Decisional Capacity Screening Tool for Individuals Contemplating Participation in Alzheimer's Disease Research.

Authors:  Jennifer Burgher Seaman; Lauren Terhorst; Amanda Gentry; Amanda Hunsaker; Lisa S Parker; Jennifer Hagerty Lingler
Journal:  J Alzheimers Dis       Date:  2015       Impact factor: 4.472

7.  Development and Preliminary Testing of the Perceived Benefit and Burden Scales for Cancer Clinical Trial Participation.

Authors:  Connie M Ulrich; Qiuping Pearl Zhou; Sarah J Ratcliffe; Kathleen Knafl; Gwenyth R Wallen; Therese S Richmond; Christine Grady
Journal:  J Empir Res Hum Res Ethics       Date:  2018-04-09       Impact factor: 1.742

8.  The Burden of a Remote Trial in a Nursing Home Setting: Qualitative Study.

Authors:  Susie Donnelly; Brenda Reginatto; Oisin Kearns; Marie Mc Carthy; Bill Byrom; Willie Muehlhausen; Brian Caulfield
Journal:  J Med Internet Res       Date:  2018-06-19       Impact factor: 5.428

9.  Trial feasibility and process evaluation of a motivationally-embellished group peer led walking intervention in retirement villages using the RE-AIM framework: the residents in action trial (RiAT).

Authors:  Cecilie Thøgersen-Ntoumani; Eleanor Quested; Stuart J H Biddle; Marlene Kritz; Jenny Olson; Elissa Burton; Ester Cerin; Keith D Hill; Joanne McVeigh; Nikos Ntoumanis
Journal:  Health Psychol Behav Med       Date:  2019-06-17

10.  Improving Electronic Survey Response Rates Among Cancer Center Patients During the COVID-19 Pandemic: Mixed Methods Pilot Study.

Authors:  Shelley S Tworoger; Brian D Gonzalez; Cassandra A Hathaway; Melody N Chavez; Mika Kadono; Dana Ketcher; Dana E Rollison; Erin M Siegel; Anita R Peoples; Cornelia M Ulrich; Frank J Penedo
Journal:  JMIR Cancer       Date:  2021-08-06
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.