Stefan Schneider1, Arthur A Stone2. 1. Dornsife Center for Self-Report Science, Center for Economic and Social Research, University of Southern California, 635 Downey Way, Los Angeles, CA, 90089-3332, USA. schneids@usc.edu. 2. Dornsife Center for Self-Report Science, Center for Economic and Social Research, University of Southern California, 635 Downey Way, Los Angeles, CA, 90089-3332, USA.
Abstract
PURPOSE: Ambulatory and diary methods of self-reported symptoms and well-being have received increasing interest in recent years. These methods are a valuable addition to traditional strategies for the assessment of patient-reported outcomes (PROs) in that they capture patients' recent symptom experiences repeatedly in their natural environments. In this article, we review ways that incorporating diary methods into PRO measurement can facilitate research on quality of life. METHODS: Several diary methods are currently available, and they include "real-time" (Ecological Momentary Assessment) and "near-real-time" (end-of-day assessments, Day Reconstruction Method) formats. We identify the key benefits of these methods for PRO research. RESULTS: (1) In validity testing, diary assessments can serve as a standard for evaluating the ecological validity and for identifying recall biases of PRO instruments with longer-term recall formats. (2) In research and clinical settings, diaries have the ability to closely capture variations and dynamic changes in quality of life that are difficult or not possible to obtain from traditional PRO assessments. (3) In test construction, repeated diary assessments can expand understanding of the measurement characteristics (e.g., reliability, dimensionality) of PROs in that parameters for differences between people can be compared with those for variation within people. CONCLUSIONS: Diary assessment strategies can enrich the repertoire of PRO assessment tools and enhance the measurement of patients' quality of life.
PURPOSE: Ambulatory and diary methods of self-reported symptoms and well-being have received increasing interest in recent years. These methods are a valuable addition to traditional strategies for the assessment of patient-reported outcomes (PROs) in that they capture patients' recent symptom experiences repeatedly in their natural environments. In this article, we review ways that incorporating diary methods into PRO measurement can facilitate research on quality of life. METHODS: Several diary methods are currently available, and they include "real-time" (Ecological Momentary Assessment) and "near-real-time" (end-of-day assessments, Day Reconstruction Method) formats. We identify the key benefits of these methods for PRO research. RESULTS: (1) In validity testing, diary assessments can serve as a standard for evaluating the ecological validity and for identifying recall biases of PRO instruments with longer-term recall formats. (2) In research and clinical settings, diaries have the ability to closely capture variations and dynamic changes in quality of life that are difficult or not possible to obtain from traditional PRO assessments. (3) In test construction, repeated diary assessments can expand understanding of the measurement characteristics (e.g., reliability, dimensionality) of PROs in that parameters for differences between people can be compared with those for variation within people. CONCLUSIONS: Diary assessment strategies can enrich the repertoire of PRO assessment tools and enhance the measurement of patients' quality of life.
Authors: Iris H L Maes; Philippe A E G Delespaul; Madelon L Peters; Mathew P White; Yvette van Horn; Koen Schruers; Lucien Anteunis; Manuela Joore Journal: Value Health Date: 2015-01 Impact factor: 5.725
Authors: Timothy J Trull; Marika B Solhan; Sarah L Tragesser; Seungmin Jahng; Phillip K Wood; Thomas M Piasecki; David Watson Journal: J Abnorm Psychol Date: 2008-08
Authors: Laurie E Steffen; Kevin E Vowles; Bruce W Smith; Gregory N Gan; Martin J Edelman Journal: Health Psychol Date: 2017-11-27 Impact factor: 4.267
Authors: Noelle E Carlozzi; Stephen Schilling; Jenna Freedman; Claire Z Kalpakjian; Anna L Kratz Journal: Qual Life Res Date: 2018-08-02 Impact factor: 4.147
Authors: Kenzie L Preston; Jennifer R Schroeder; William J Kowalczyk; Karran A Phillips; Michelle L Jobes; Megan Dwyer; Massoud Vahabzadeh; Jia-Ling Lin; Mustapha Mezghanni; David H Epstein Journal: Drug Alcohol Depend Date: 2018-10-11 Impact factor: 4.492
Authors: Arthur A Stone; Joan E Broderick; Roberta E Goldman; Doerte U Junghaenel; Alicia Bolton; Marcella May; Stefan Schneider Journal: J Pain Date: 2020-09-15 Impact factor: 5.820
Authors: Stefan Schneider; Doerte U Junghaenel; Joan E Broderick; Masakatsu Ono; Marcella May; Arthur A Stone Journal: J Pain Date: 2020-10-24 Impact factor: 5.820