J W Middleton1, L Piccenna2, R Lindsay Gruen2,3,4, S Williams5, G Creasey6, S Dunlop7, D Brown8, P E Batchelor9, D J Berlowitz10, S Coates11, J A Dunn12, J B Furness13, M P Galea14, T Geraghty15, B K Kwon16, S Urquhart15, D Yates17, P Bragge2. 1. John Walsh Centre for Rehabilitation Research, The University of Sydney, Sydney, New South Wales, Australia. 2. National Trauma Research Institute, Monash University and The Alfred Hospital, Melbourne, Victoria, Australia. 3. Monash University, Melboume, Victoria, Australia. 4. Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore. 5. The Spinal Cord Injury Network, Sydney, New South Wales, Australia. 6. Department of Neurosurgery, Stanford University School of Medicine, Stanford, CA, USA. 7. Experimental and Regenerative Neuroscience, School of Animal Biology, The University of Western Australia, Perth, Western Australia, Australia. 8. The Spinal Research Institute, Melbourne, Victoria, Australia. 9. Department of Medicine (Austin Health), The University of Melbourne, Melbourne, Victoria, Australia. 10. Institute for Breathing and Sleep, Austin Health, Melbourne, Victoria, Australia. 11. State Rehabilitation Service, Fiona Stanley Hospital, Perth, Western Australia, Australia. 12. Department of Orthopaedic Surgery and Musculoskeletal Medicine, University of Otago, Christchurch, New Zealand. 13. Department of Anatomy and Neuroscience, The University of Melbourne, Melbourne, Victoria, Australia. 14. Department of Medicine (Royal Melbourne Hospital), The University of Melbourne, Melbourne, Victoria, Australia. 15. Queensland Spinal Cord Injuries Service, Princess Alexandra Hospital, Metro South Health, Brisbane, Queensland, Australia. 16. Department of Orthopaedics, University of British Columbia, Vancouver, British Columbia, Canada. 17. Rehabilitation Medicine, Canberra Hospital and Health Services, Garran, Australian Capital Territory, Australia.
Abstract
STUDY DESIGN: Focus Group. OBJECTIVES: To develop a unified, regional spinal cord injury (SCI) research strategy for Australia and New Zealand. SETTING: Australia. METHODS: A 1-day structured stakeholder dialogue was convened in 2013 in Melbourne, Australia, by the National Trauma Research Institute in collaboration with the SCI Network of Australia and New Zealand. Twenty-three experts participated, representing local and international research, clinical, consumer, advocacy, government policy and funding perspectives. Preparatory work synthesised evidence and articulated draft principles and options as a starting point for discussion. RESULTS: A regional SCI research strategy was proposed, whose objectives can be summarised under four themes. (1) Collaborative networks and strategic partnerships to increase efficiency, reduce duplication, build capacity and optimise research funding. (2) Research priority setting and coordination to manage competing studies. (3) Mechanisms for greater consumer engagement in research. (4) Resources and infrastructure to further develop SCI data registries, evaluate research translation and assess alignment of research strategy with stakeholder interests. These are consistent with contemporary international SCI research strategy development activities. CONCLUSION: This first step in a regional SCI research strategy has articulated objectives for further development by the wider SCI research community. The initiative has also reinforced the importance of coordinated, collective action in optimising outcomes following SCI.
STUDY DESIGN: Focus Group. OBJECTIVES: To develop a unified, regional spinal cord injury (SCI) research strategy for Australia and New Zealand. SETTING: Australia. METHODS: A 1-day structured stakeholder dialogue was convened in 2013 in Melbourne, Australia, by the National Trauma Research Institute in collaboration with the SCI Network of Australia and New Zealand. Twenty-three experts participated, representing local and international research, clinical, consumer, advocacy, government policy and funding perspectives. Preparatory work synthesised evidence and articulated draft principles and options as a starting point for discussion. RESULTS: A regional SCI research strategy was proposed, whose objectives can be summarised under four themes. (1) Collaborative networks and strategic partnerships to increase efficiency, reduce duplication, build capacity and optimise research funding. (2) Research priority setting and coordination to manage competing studies. (3) Mechanisms for greater consumer engagement in research. (4) Resources and infrastructure to further develop SCI data registries, evaluate research translation and assess alignment of research strategy with stakeholder interests. These are consistent with contemporary international SCI research strategy development activities. CONCLUSION: This first step in a regional SCI research strategy has articulated objectives for further development by the wider SCI research community. The initiative has also reinforced the importance of coordinated, collective action in optimising outcomes following SCI.
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