Janet Robertson1, Chris Hatton2, Eric Emerson3, Susannah Baines2. 1. Centre for Disability Research, Division of Health Research, Lancaster University, LA1 4YT, United Kingdom. Electronic address: j.m.robertson@lancaster.ac.uk. 2. Centre for Disability Research, Division of Health Research, Lancaster University, LA1 4YT, United Kingdom. 3. Centre for Disability Research, Division of Health Research, Lancaster University, LA1 4YT, United Kingdom; Centre for Disability Research and Policy, University of Sydney, Australia.
Abstract
PURPOSE: Epilepsy is highly prevalent in people with intellectual disabilities and mortality is increased in people with epilepsy generally. This review summarises research on the comparative risk of mortality in people with intellectual disabilities and epilepsy compared to the general population, people with intellectual disabilities without epilepsy, and people with epilepsy without intellectual disabilities. METHOD: Studies were identified via electronic searches using Medline, Cinahl and PsycINFO and cross-citations. Information extracted from studies was tabulated and reviewed narratively. RESULTS: Sixteen studies met the inclusion criteria. Epilepsy was associated with increased mortality in people with intellectual disabilities in most studies, particularly in those experiencing recent seizures. Further research is needed to substantiate some of the reported findings. CONCLUSION: Services must be equipped with the skills and information needed to manage this condition in order to minimise the risk of death in people with intellectual disabilities and epilepsy.
PURPOSE:Epilepsy is highly prevalent in people with intellectual disabilities and mortality is increased in people with epilepsy generally. This review summarises research on the comparative risk of mortality in people with intellectual disabilities and epilepsy compared to the general population, people with intellectual disabilities without epilepsy, and people with epilepsy without intellectual disabilities. METHOD: Studies were identified via electronic searches using Medline, Cinahl and PsycINFO and cross-citations. Information extracted from studies was tabulated and reviewed narratively. RESULTS: Sixteen studies met the inclusion criteria. Epilepsy was associated with increased mortality in people with intellectual disabilities in most studies, particularly in those experiencing recent seizures. Further research is needed to substantiate some of the reported findings. CONCLUSION: Services must be equipped with the skills and information needed to manage this condition in order to minimise the risk of death in people with intellectual disabilities and epilepsy.
Authors: Howard Ring; James Howlett; Mark Pennington; Christopher Smith; Marcus Redley; Caroline Murphy; Roxanne Hook; Adam Platt; Nakita Gilbert; Elizabeth Jones; Joanna Kelly; Angela Pullen; Adrian Mander; Cam Donaldson; Simon Rowe; James Wason; Fiona Irvine Journal: Health Technol Assess Date: 2018-02 Impact factor: 4.014
Authors: Silvana E Mengoni; Bob Gates; Georgina Parkes; David Wellsted; Garry Barton; Howard Ring; Mary Ellen Khoo; Deela Monji-Patel; Karin Friedli; Asif Zia; Lisa Irvine; Marie-Anne Durand Journal: BMJ Open Date: 2016-11-10 Impact factor: 2.692
Authors: Silvana E Mengoni; Bob Gates; Georgina Parkes; David Wellsted; Garry Barton; Howard Ring; Mary Ellen Khoo; Deela Monji-Patel; Karin Friedli; Asif Zia; Marie-Anne Durand Journal: Epilepsy Behav Date: 2016-10-11 Impact factor: 2.937