Literature DB >> 26010969

Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form.

Claire Z Kalpakjian, David S Tulsky, Pamela A Kisala, Charles H Bombardier.   

Abstract

OBJECTIVE: To develop an item response theory (IRT) calibrated Grief and Loss item bank as part of the Spinal Cord Injury--Quality of Life (SCI-QOL) measurement system.
DESIGN: A literature review guided framework development of grief/loss. New items were created from focus groups. Items were revised based on expert review and patient feedback and were then field tested. Analyses included confirmatory factor analysis (CFA), graded response IRT modeling and evaluation of differential item functioning (DIF).
SETTING: We tested a 20-item pool at several rehabilitation centers across the United States, including the University of Michigan, Kessler Foundation, Rehabilitation Institute of Chicago, the University of Washington, Craig Hospital and the James J. Peters/Bronx Department of Veterans Affairs hospital. PARTICIPANTS: A total of 717 individuals with SCI answered the grief and loss questions.
RESULTS: The final calibrated item bank resulted in 17 retained items. A unidimensional model was observed (CFI=0.976; RMSEA=0.078) and measurement precision was good (theta range between -1.48 to 2.48). Ten items were flagged for DIF, however, after examination of effect sizes found this to be negligible with little practical impact on score estimates.
CONCLUSIONS: This study indicates that the SCI-QOL Grief and Loss item bank represents a psychometrically robust measurement tool. Short form items are also suggested and computer adaptive tests are available.

Entities:  

Keywords:  Grief; Patient outcomes assessment; Psychometrics; Quality of life; Spinal cord injuries

Mesh:

Year:  2015        PMID: 26010969      PMCID: PMC4445025          DOI: 10.1179/2045772315Y.0000000015

Source DB:  PubMed          Journal:  J Spinal Cord Med        ISSN: 1079-0268            Impact factor:   1.985


  25 in total

1.  Resilience to loss and chronic grief: a prospective study from preloss to 18-months postloss.

Authors:  George A Bonanno; Camille B Wortman; Darrin R Lehman; Roger G Tweed; Michelle Haring; John Sonnega; Deborah Carr; Randolph M Nesse
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2.  Developing a contemporary patient-reported outcomes measure for spinal cord injury.

Authors:  David S Tulsky; Pamela A Kisala; David Victorson; Denise Tate; Allen W Heinemann; Dagmar Amtmann; David Cella
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3.  The neurology quality-of-life measurement initiative.

Authors:  David Cella; Cindy Nowinski; Amy Peterman; David Victorson; Deborah Miller; Jin-Shei Lai; Claudia Moy
Journal:  Arch Phys Med Rehabil       Date:  2011-10       Impact factor: 3.966

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7.  Treatment of complicated grief: a randomized controlled trial.

Authors:  Katherine Shear; Ellen Frank; Patricia R Houck; Charles F Reynolds
Journal:  JAMA       Date:  2005-06-01       Impact factor: 56.272

8.  The development of a clinical outcomes survey research application: Assessment Center.

Authors:  Richard Gershon; Nan E Rothrock; Rachel T Hanrahan; Liz J Jansky; Mark Harniss; William Riley
Journal:  Qual Life Res       Date:  2010-03-21       Impact factor: 4.147

9.  A comparison of posttraumatic stress disorder in veterans with and without spinal cord injury.

Authors:  C L Radnitz; L Hsu; D D Tirch; J Willard; L B Lillian; S Walczak; J Festa; L Perez-Strumolo; C P Broderick; M Binks; I Schlein; N Bockian; L Green; A Cytryn
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10.  Psychological well-being after spinal cord injury: perception of loss and meaning making.

Authors:  Terri A deRoon-Cassini; Ed de St Aubin; Abbey Valvano; James Hastings; Patricia Horn
Journal:  Rehabil Psychol       Date:  2009-08
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  3 in total

1.  Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms.

Authors:  E M J R Brouwers; C B Terwee; L D Roorda; A F Hosman; H van de Meent; R H M A Bartels
Journal:  Eur Spine J       Date:  2022-04-04       Impact factor: 2.721

2.  Measuring pain phenomena after spinal cord injury: Development and psychometric properties of the SCI-QOL Pain Interference and Pain Behavior assessment tools.

Authors:  Matthew L Cohen; Pamela A Kisala; Trevor A Dyson-Hudson; David S Tulsky
Journal:  J Spinal Cord Med       Date:  2017-02-10       Impact factor: 1.985

Review 3.  Mental Health and Spinal Cord Injury: Clinical Considerations for Rehabilitation Providers.

Authors:  Katlin R Schultz; Linda R Mona; Rebecca P Cameron
Journal:  Curr Phys Med Rehabil Rep       Date:  2022-04-28
  3 in total

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