E M J R Brouwers1, C B Terwee2, L D Roorda3, A F Hosman4, H van de Meent5, R H M A Bartels6. 1. Department of Neurosurgery, Radboud University Medical Center, Geert Grooteplein Zuid 10, 6500 HB, Nijmegen, The Netherlands. eveline.brouwers@radboudumc.nl. 2. Department of Epidemiology and Data Science, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands. 3. Amsterdam Rehabilitation Research Center, Reade, Amsterdam, The Netherlands. 4. Department of Orthopedics, Radboud University Medical Center, Nijmegen, The Netherlands. 5. Department of Rehabilitation Medicine, Radboud University Medical Center, Nijmegen, The Netherlands. 6. Department of Neurosurgery, Radboud University Medical Center, Geert Grooteplein Zuid 10, 6500 HB, Nijmegen, The Netherlands.
Abstract
PURPOSE: A spinal cord injury (SCI) has a large impact on a person's physical, psychological, and social health. Previous studies focused on physical recovery in patients with SCI and assessed their health-related quality of life (HRQOL) with general questionnaires, which often contain irrelevant questions. The SCI-QOL questionnaire was developed to specifically assess the HRQOL of the SCI population. A comprehensive translation and cross-cultural adaptation are required to use this questionnaire in the Netherlands and Flanders, Belgium. METHODS: All 23 short forms of the SCI-QOL for adults were translated from English into Dutch-Flemish using the Functional Assessment of Chronic Illness Therapy translation methodology, with a cognitive debriefing being performed with 10 patients with SCI and 10 persons from the general population. RESULTS: The Dutch-Flemish PROMIS group previously translated 46 of the 207 items in the 23 short forms. Here, we achieved an acceptable translation of the other 161 items. A single Dutch-Flemish translation was obtained for 20 short forms, while separate Dutch and Flemish translations were necessary for the short forms Ambulation, Manual Wheelchair, and Stigma. CONCLUSION: The Dutch-Flemish translation of the SCI-QOL is now available for clinical and research purposes. Future studies should focus on the psychometric properties of this cross-culturally adapted version.
PURPOSE: A spinal cord injury (SCI) has a large impact on a person's physical, psychological, and social health. Previous studies focused on physical recovery in patients with SCI and assessed their health-related quality of life (HRQOL) with general questionnaires, which often contain irrelevant questions. The SCI-QOL questionnaire was developed to specifically assess the HRQOL of the SCI population. A comprehensive translation and cross-cultural adaptation are required to use this questionnaire in the Netherlands and Flanders, Belgium. METHODS: All 23 short forms of the SCI-QOL for adults were translated from English into Dutch-Flemish using the Functional Assessment of Chronic Illness Therapy translation methodology, with a cognitive debriefing being performed with 10 patients with SCI and 10 persons from the general population. RESULTS: The Dutch-Flemish PROMIS group previously translated 46 of the 207 items in the 23 short forms. Here, we achieved an acceptable translation of the other 161 items. A single Dutch-Flemish translation was obtained for 20 short forms, while separate Dutch and Flemish translations were necessary for the short forms Ambulation, Manual Wheelchair, and Stigma. CONCLUSION: The Dutch-Flemish translation of the SCI-QOL is now available for clinical and research purposes. Future studies should focus on the psychometric properties of this cross-culturally adapted version.
Authors: C B Terwee; L D Roorda; H C W de Vet; J Dekker; R Westhovens; J van Leeuwen; D Cella; H Correia; B Arnold; B Perez; M Boers Journal: Qual Life Res Date: 2014-01-09 Impact factor: 4.147
Authors: David S Tulsky; Pamela A Kisala; David Victorson; Denise G Tate; Allen W Heinemann; Susan Charlifue; Steve C Kirshblum; Denise Fyffe; Richard Gershon; Ann M Spungen; Charles H Bombardier; Trevor A Dyson-Hudson; Dagmar Amtmann; Claire Z Kalpakjian; Seung W Choi; Alan M Jette; Martin Forchheimer; David Cella Journal: J Spinal Cord Med Date: 2015-05 Impact factor: 1.985