Literature DB >> 25952467

The DNA Bank: High-Security Bank Accounts to Protect and Share Your Genetic Identity.

Johan T den Dunnen.   

Abstract

With the cost of genome sequencing decreasing every day, DNA information has the potential of affecting the lives of everyone. Surprisingly, an individual has little knowledge about his own DNA information, can rarely access it, and has hardly any control over its use. This may result in preventable, life-threatening situations, and also significantly inhibits scientific progress. What we urgently need is a "DNA bank," a resource providing a secure personal account where, similar to a financial institution, you can store your DNA sequence. Using this private and secure DNA bank account, you govern your sequence-related business. For any genetic study performed, the data generated must be transferred (paid) to your DNA account. Using your account, you regulate access, knowing for what purpose (informed consent) and only for the genetic data you are willing to share. The DNA account ensures you are in the driver's seat, know what is known, and control what is happening with it.
© 2015 WILEY PERIODICALS, INC.

Keywords:  database; genome sequencing; personalized medicine; variant

Mesh:

Year:  2015        PMID: 25952467     DOI: 10.1002/humu.22810

Source DB:  PubMed          Journal:  Hum Mutat        ISSN: 1059-7794            Impact factor:   4.878


  3 in total

1.  Security controls in an integrated Biobank to protect privacy in data sharing: rationale and study design.

Authors:  Takako Takai-Igarashi; Kengo Kinoshita; Masao Nagasaki; Soichi Ogishima; Naoki Nakamura; Sachiko Nagase; Satoshi Nagaie; Tomo Saito; Fuji Nagami; Naoko Minegishi; Yoichi Suzuki; Kichiya Suzuki; Hiroaki Hashizume; Shinichi Kuriyama; Atsushi Hozawa; Nobuo Yaegashi; Shigeo Kure; Gen Tamiya; Yoshio Kawaguchi; Hiroshi Tanaka; Masayuki Yamamoto
Journal:  BMC Med Inform Decis Mak       Date:  2017-07-06       Impact factor: 2.796

2.  Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe.

Authors:  Shaman Narayanasamy; Varvara Markina; Adrian Thorogood; Adriana Blazkova; Mahsa Shabani; Bartha M Knoppers; Barbara Prainsack; Robert Koesters
Journal:  Front Genet       Date:  2020-05-06       Impact factor: 4.599

3.  Using Personal Genomic Data within Primary Care: A Bioinformatics Approach to Pharmacogenomics.

Authors:  Rick Overkleeft; Judith Tommel; Andrea W M Evers; Johan T den Dunnen; Marco Roos; Marie-José Hoefmans; Walter E Schrader; Jesse J Swen; Mattijs E Numans; Elisa J F Houwink
Journal:  Genes (Basel)       Date:  2020-11-30       Impact factor: 4.096

  3 in total

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