Literature DB >> 16282184

Health-information altruists--a potentially critical resource.

Isaac S Kohane1, Russ B Altman.   

Abstract

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction

Mesh：

Year:  2005        PMID： 16282184     DOI： 10.1056/NEJMsb051220

Source DB:  PubMed          Journal:  N Engl J Med        ISSN： 0028-4793            Impact factor:   91.245


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  41 in total

1.  Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.

Authors:  Amy L McGuire; Melissa Basford; Lynn G Dressler; Stephanie M Fullerton; Barbara A Koenig; Rongling Li; Cathy A McCarty; Erin Ramos; Maureen E Smith; Carol P Somkin; Carol Waudby; Wendy A Wolf; Ellen Wright Clayton
Journal:  Genome Res       Date:  2011-06-01       Impact factor: 9.043

Review 2.  The tension between data sharing and the protection of privacy in genomics research.

Authors:  Jane Kaye
Journal:  Annu Rev Genomics Hum Genet       Date:  2012-03-09       Impact factor: 8.929

3.  Electronic health records, platforms, libraries, and evidence: report on the Association of Academic Health Sciences Libraries symposium's keynote presentation by Kenneth Mandl.

Authors:  James A Curtis
Journal:  J Med Libr Assoc       Date:  2010-07

4.  Never too old for anonymity: a statistical standard for demographic data sharing via the HIPAA Privacy Rule.

Authors:  Bradley Malin; Kathleen Benitez; Daniel Masys
Journal:  J Am Med Inform Assoc       Date:  2011 Jan-Feb       Impact factor: 4.497

5.  Early experiences with personal health records.

Authors:  John D Halamka; Kenneth D Mandl; Paul C Tang
Journal:  J Am Med Inform Assoc       Date:  2007-10-18       Impact factor: 4.497

6.  A self-scaling, distributed information architecture for public health, research, and clinical care.

Authors:  Andrew J McMurry; Clint A Gilbert; Ben Y Reis; Henry C Chueh; Isaac S Kohane; Kenneth D Mandl
Journal:  J Am Med Inform Assoc       Date:  2007-04-25       Impact factor: 4.497

Review 7.  Using electronic health records to drive discovery in disease genomics.

Authors:  Isaac S Kohane
Journal:  Nat Rev Genet       Date:  2011-05-18       Impact factor: 53.242

8.  Building a self-measuring healthcare system with computable metrics, data fusion, and substitutable apps.

Authors:  Kenneth D Mandl; Joshua C Mandel
Journal:  BMJ Outcomes       Date:  2015-04

Review 9.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

Review 10.  Ethical implications of the use of whole genome methods in medical research.

Authors:  Jane Kaye; Paula Boddington; Jantina de Vries; Naomi Hawkins; Karen Melham
Journal:  Eur J Hum Genet       Date:  2009-11-04       Impact factor: 4.246
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