Literature DB >> 25943372

Who is in control? Clinicians' view on their role in self-management approaches: a qualitative metasynthesis.

Suzie Mudge1, Nicola Kayes1, Kathryn McPherson2.   

Abstract

OBJECTIVE: To explore clinician perceptions of involvement in delivery of self-management approaches.
SETTING: All healthcare settings.
DESIGN: EBSCO, Scopus and AMED databases were searched, in July 2013, for peer-reviewed studies in English reporting original qualitative data concerning perceptions of clinicians regarding their involvement in or integration of a self-management approach. Of 1930 studies identified, 1889 did not meet the inclusion criteria. Full text of 41 studies were reviewed by two independent reviewers; 14 papers were included for metasynthesis. Findings and discussion sections were imported into Nvivo-10 and coded line-by-line. Codes were organised into descriptive themes and cross-checked against original sources to check interpretation, and refined iteratively until findings represented an agreed understanding. Studies were appraised for quality.
RESULTS: Delivering self-management in practice appeared to be a complex process for many clinicians. The issue of 'control' arose in all studies, both in the qualitative data and authors' interpretations. The first theme: Who is in control?--represented ways clinicians talked of exercising control over patients and the control they expected patients to have over their condition. The second theme: Changing clinician views--reflected what appeared to be an essential transformation of practice experienced by some clinicians in the process of integrating self-management approaches into the practice. A range of challenges associated with shifting towards a self-management approach were reflected in the third theme, Overcoming challenges to change. Tensions appeared to exist around forming partnerships with patients. Strategies found helpful in the process of change included: dedicating time to practice reciprocity in communication style, peer support and self-reflection.
CONCLUSIONS: A consistent finding across studies is that 'control' is a key feature of how self-management is viewed by clinicians. They described challenges associated with the paradigm shift required to share or let go of control. Future research should identify whether strategies described by clinicians are key to successful self-management. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.

Entities:  

Keywords:  health occupations; professional practice; self-management

Mesh:

Year:  2015        PMID: 25943372      PMCID: PMC4431068          DOI: 10.1136/bmjopen-2014-007413

Source DB:  PubMed          Journal:  BMJ Open        ISSN: 2044-6055            Impact factor:   2.692


We used robust methodologies to synthesise raw data and interpretations of authors from 14 studies, including a range of disciplines working with patients with differing conditions. Metasynthesis was used to enable a level of interpretation that goes beyond the findings of the individual studies included. Metasyntheses have been criticised due to the perceived risk of synthesising work that comes from varying philosophical or theoretical positions, which may be deemed incompatible. In this instance, none of the included papers were transparent about their philosophical positioning making it difficult to address this explicitly. As such, interpretations should be read with caution. We did, however, remain cognisant of the individual papers’ stated aims and purpose, and papers were read and analysed in that context. This study is novel by its examination of the view of clinicians involved in self-management approaches and the finding that clinicians’ practice is focused on control of patient behaviour. Our study identifies that clinicians may find the shift towards sharing control in healthcare (arguably essential in self-management) a difficult process. Self-management programmes to assist patients to develop self-management skills to manage chronic health conditions have seen a recent rise in popularity.1–4 Much of the appraisal of self-management approaches has centred on efficacy on outcomes with modest results.3–5 The effect may be underestimated due to varied conceptualisations of self-management, a wide range of included self-management programmes and varied perspectives regarding what constitutes a good outcome.6 Effective self-management programmes are vital to respond to the rising numbers of people living and ageing with long-term and chronic health conditions. A number of studies have explored clinicians’ perceptions of what patients need to do differently to successfully self-manage, with little obvious examination of the role clinicians play in delivery and potential implications on patient outcomes.6–8 There is a need for critical examination of the way in which self-management approaches have been developed and delivered to ensure optimal delivery and outcome. The views of clinicians who deliver self-management programmes should provide an insight into the potential challenges or barriers to implementing self-management approaches, and the differences or similarities in these approaches to models of practice. Historically, self-management approaches were developed for patients with chronic health conditions such as asthma and diabetes.9 Later, these have been embraced in a much wider range of health conditions such as epilepsy, arthritis and stroke.1 6 10–12 The aim of this study was to explore the perceptions of clinicians concerning their delivery of a self-management approach in order to inform the development of an intervention; to support clinicians’ attempts to integrate principles of self-management into practice. It is possible that much can be learned from considering older and more established self-management approaches and programmes in order to optimise the development and delivery of self-management principles in clinical practice. We have, therefore, deliberately chosen a wide context of condition groups and healthcare professionals in our metasynthesis.

Methods

Methodology

We used metasynthesis as the methodology to synthesise data across multiple studies13 and to offer a level of interpretation that goes beyond the findings of the individual studies included.14 15 Thematic synthesis was the approach used for analysis.15

Data sources

EBSCO, Scopus and AMED databases were searched, in July 2013, using search headings related to self-management, health professional and perception (see online supplementary file 1). Proximity searching, using search terms within five words, was utilised for ‘clinician’ and ‘perception’. The search was limited to qualitative studies. No start date limit was used in the search.

Study selection

Titles and abstracts were screened by SM to identify studies published in English in a peer-reviewed journal that reported an original qualitative study, with data on the reported beliefs, experiences, perceptions or views of clinicians regarding their role or skills involved in the delivery of a self-management approach. Studies were excluded if the data regarding clinician views could not be distinguished from the views of others (eg, patients or carers), or if the phenomenon of interest was not focused on the clinician's role in delivery of the self-management approach (eg, focused on the mode of delivery such as web-based programme or investigating a theoretical model underpinning a self-management approach). Full-text articles were retrieved for all the included studies and these were independently reviewed by SM and NK. Discrepancies regarding eligibility for inclusion were resolved initially by discussion and consensus. If consensus could not be reached, the study was referred to KM for adjudication. Included studies were critically appraised for quality by SM and NK through the use of the Qualitative Findings Critical Appraisal Scale.16 If the research methodology was not explicitly stated, then a generic qualitative methodology was assumed for criteria 2–5 of the scale. Discrepancies were resolved through discussion and consensus. Studies were not excluded from consideration based on the quality appraisal in keeping with the methodology;14 16 however, methodological quality of included papers is reported so that the review findings can be read with that context in mind.

Data extraction and synthesis

Findings and discussion sections of studies were imported into Nvivo-10 and coded line-by-line.15 17 Using this approach, two types of data were produced: (1) raw data reported in included studies, and (2) author interpretations. These were considered as data, and subjected to analysis and interpretation during synthesis. Only meaningful units of data in relation to the study question were coded; for example, demographic data were not coded. More than one code could be assigned to any one unit of text. Codes were then grouped in order to develop descriptive themes. Constant comparison methods were used by analysing subsequent articles in comparison with studies previously coded17 in order to ‘translate’ concepts between studies,15 but keeping very close to the original findings of the included studies. Following this process, analytical themes were generated that went beyond the data of the original studies in order to consider the descriptive themes in relation to the question posed by this metasynthesis.15 This was achieved through discussion (SM and NK), and by repeatedly comparing emerging analytical themes to descriptive themes and moving iteratively between the raw data and analysis. A draft summary of the findings was written by SM and commented on by NK and KM, and subsequently revised in an iterative way until the document represented an agreed understanding of the analytical findings. Resolution of differences of interpretation was achieved through returning to the data in its original context followed by discussion and writing.

Rigour

SM kept a log of reflexive questions within Nvivo, which was reviewed and discussed with NK at intervals. We attempted to manage subjectivity by returning to the context of the original data regularly to check interpretations and through regular debriefing with KM.

Findings

Searching identified 1930 potentially relevant papers, 1817 were excluded after screening of the title and abstract, leaving 41 papers for full-text review. Seventeen papers failed to meet the inclusion criteria (not reporting an original qualitative study, n=3; not reporting on data concerning beliefs, experiences, perceptions or views of health professionals regarding their own involvement in delivery or integration of a self-management approach into practice, n=14). Another 10 papers were excluded (data regarding clinicians’ views could not be isolated from the views of others, n=2; main phenomenon of interest was not focused on the delivery or integration of the self-management approach, n=8). This left 14 papers,18–31 from which the findings and discussion were extracted as data for this metasynthesis. Figure 1 shows the selection process of the included studies. Critical quality appraisal results for each included study are shown in table 1. A total quality score has been noted for ease of comparison across studies; however, these scores should be interpreted with caution as it should not be assumed that each of the quality criteria should be given equal weighting. Generally the studies were of moderately high quality; 13 of the 14 studies met at least 7 of the 10 quality criteria. Key limitations were the lack of explicitly stated philosophical positioning of the research and statements to locate the researchers culturally or theoretically.
Figure 1

Selection of studies.

Table 1

Quality rating of included studies

CriteriaPaper
Costello18Crowe et al19Hunt et al20Jones et al21Lake and Staiger22Macdonald et al23Mikkonen and Hynynen24Norris and Kilbride25Pill et al26Pooley et al27Robinson et al28Roy et al29Visse et al30Walters et al31
 1. There is congruity between the stated philosophical perspective and research methodologyUUUUUUUUUUUUUU
 2. There is congruity between the research methodology and research question or objectivesYYYYYYYYUYYYYY
 3. There is congruity between the research methodology and the methods used to collect dataYYYYYYYYYYYYYY
 4. There is congruity between research methodology and representation and analysis of dataYYYYYYYYUYYYYY
 5. There is congruity between research methodology and interpretation of resultsYYYYYYYYYYYYYY
 6. There is a statement locating the researcher culturally or theoreticallyYNNUNNNYUNNNNN
 7. The influence of the researcher on the research and vice versa is addressedYYYYYYYYNNYYYN
 8. Participants and their voices are adequately representedYYNYYYNYYYYYYY
 9. The research is ethical according to current criteria or, for recent studies, there is evidence of ethical approval by an appropriate bodyYYYYYYYYNYYYNY
10. Conclusions drawn in the research report appear to flow from the analysis or interpretation of the dataYYYYYYYYYYYYYY
Total (number of items with Y response)98788879478877

N, no; U, unclear; Y, yes.

Quality rating of included studies N, no; U, unclear; Y, yes. Selection of studies.

Description of studies

Table 2 provides an overview of each study, including the patient groups targeted by the self-management programmes, the context of the study (country and setting), the aim of the study and the clinicians involved. Overall, 287 clinician participants took part in the included studies. Six of the 14 studies included clinicians of a single discipline, all of whom were nurses.18 23 26 28 29 31 The remaining 8 studies had a mix of disciplines: most commonly nurses (in 10 studies),18 20–23 26–29 31 medical doctors (in 5 studies),19 20 22 27 30 physiotherapists (in 4 studies),19 21 25 30 occupational therapists21 25 and psychologists21 22 (in 2 studies each), and dieticians,27 chiropodists,27 speech language therapists,21 rehabilitation support workers,21 optometrists,27 and physician assistants20 (each in 1 study). The patient groups are shown in table 2. Self-management programmes specifically identified in the studies included Bridges,21 25 Flinders,22 29 Stanford22 and a Chronic Obstructive Pulmonary Disease programme.30 The remainder of studies referred generally to the adoption or integration of self-management principles or programmes into clinical practice, without naming a specific programme or model.
Table 2

Overview of included studies

PaperPatient groupsCliniciansContextAim of study
Costello18DiabetesNurseUSA—primary careTo explore the roles and strategies implemented by diabetes support group facilitators
Crowe et al19Chronic low back painGPPhysiotherapistNew Zealand—primary careTo explore how healthcare professionals perceived their role in facilitating self-management for people with chronic low back pain
Hunt et al20DiabetesGPNursePhysician assistantUSA—primary careTo gain the perspective of practitioners in diabetes management
Jones et al21StrokeNursePhysiotherapistOccupational therapistSpeech language therapistPsychologistRehabilitation support workerUK—rehabilitationTo explore the understanding and meaning clinicians gave to their experiences of using the Bridges stroke self-management programme
Lake and Staiger22‘Chronic disease’GPNursePsychologist‘Medical specialist’Australia—primary and secondary careTo examine health professional's formal self-management training and their views and experiences on the use of self-management techniques when working with people living with a chronic illness
Macdonald et al23‘Chronic disease’NurseUK—primary careTo explore practice nurse involvement in facilitation of self-management for long-term conditions
Mikkonen and Hynynen24‘Chronic conditions’‘Healthcare professionals’ (not specified)Finland—not specifiedTo describe healthcare professionals’ views about their patient education skills and how to develop them
Norris and Kilbride25StrokePhysiotherapistOccupational therapistUK—rehabilitationExplore the experience of stroke therapists who are trained and currently using the professionally facilitated self-management approach
Pill et al26DiabetesNurseUK—primary careTo explore reasons behind a perplexing observation that an intervention designed to alter professional behaviour in general practice consultations in South Wales was poorly sustained despite initial enthusiasm among the nurses
Pooley et al27DiabetesGPNurseDietitianChiropodistOptometristDiabetologistUK—primary careTo explore the issues health professionals who deliver diabetes care perceive as central to effective management of diabetes
Robinson et al28COPDNurseAustralia—primary careTo explore how the process of participation as a mentor in the project challenged community health nurses’ clinical practice and supported a transformative shift to a more primary healthcare approach
Roy et al29DiabetesAsthmaCoronary artery diseaseBipolar disorderOsteoarthritisNurseNew Zealand—primary careTo understand the experience of the Flinders programme for nurses working with clients with long-term conditions
Visse et al30COPDPhysiotherapistPulmonologistThe Netherlands—not specifiedTo explore therapists’ perceptions of the programme for people with COPD, including components of programme and interaction style
Walters et al31COPDNurseAustralia—primary careTo explore the barriers and enablers of providing self-management support for people with COPD for general practice nurses trained in this role

COPD, chronic obstructive pulmonary disease; GP, general practitioner.

Overview of included studies COPD, chronic obstructive pulmonary disease; GP, general practitioner.

Data synthesis

Three main themes about clinician experience and views of being involved in delivery self-management strategies were developed from the data: Theme (1) Who is in control? The issue of ‘control’ arose in all included studies, both implicitly and explicitly, and formed the basis for the first theme. There appeared to be variability in the way that control was discussed, particularly in relation to who has control. Clinicians talked about ways they exercised control over patients as well as the control they expected patients to have over their condition. Theme (2) Changing clinician views reflected a necessary transformation of practice experienced by a number of clinicians through working to integrate self-management approaches into their practice. Theme (3) Overcoming challenges to change synthesised a range of challenges associated with shifting away from a traditional approach. In particular, a tension appeared to exist around relinquishing control and forming partnerships with patients. However, clinicians reported a range of strategies they found helpful in the process of change. Each of the themes are presented in detail below with supporting evidence in the form of quotes and extracts taken directly from included papers. Direct quotes from participants of included studies are indicated in italics, followed by the reference number and page number. Interpretation from the authors of included studies is indicated by the extract of text in plain font followed by the reference number and page number.

Theme 1: Who is in control?

The first theme Who is in control? incorporates the different ways clinicians talked about control, including ways they exercised authority over patients (clinician control) as well as the perceived choices patients make (patient control) in controlling a disease (disease control). Clinicians exercised authority over patients primarily through education and instruction directing the patient to control the disease through changing their behaviour. Data suggest that clinicians believed their role was to provide the necessary information and clear recommendations to patients. Education is paramount as long as we've imparted…all the knowledge we have…the choice is definitely up to them. (ref. 23, p.195) Motivation was identified by clinicians to be a critical factor in controlling the disease. In general, clinicians appeared to view motivation as essential for successful self-management, as well as a patient attribute and responsibility. Motivation is the number one characteristic the patient needs to have for good control, motivated not to eat that second plate of food, not to watch TV but instead go for a walk. (ref. 20, p.664) Education and instruction appeared to be the key strategies adopted by clinicians to ‘motivate’ patients. Repetition was adopted as a strategy to “get their point across” (ref. 26, p.1496). There was an assumption that these actions would be sufficient for patients to make recommended changes, which in turn would lead to improved health. For example, clinicians made statements such as, “patients should also be able to adopt healthy behaviours” (ref. 23, p.196), and that “if followed, the recommended treatments would be effective” (ref. 20, p.664). As such, responsibility or blame was often attributed to the patient: …it's diet they don't keep to or their lifestyle… (ref. 26, p.1496) [With] some people, you can bang your head against that brick wall until you've knocked yourself out. Some people will come up with excuse after excuse. (ref. 23, p.197) Clinical markers were used as the primary indicator of successful disease control. The implication was of a linear cause-effect belief where if clinical indicators were poor, it was assumed the patient had not been following recommendations correctly. In such cases, it was not uncommon to label the patient as non-compliant. A common notation in medical charts when a patient had failed to lower their glucose levels was that the patient had been noncompliant with dietary recommendations. (ref. 20, p.664) Such labels assumed a simple dichotomy between cooperative versus uncooperative and compliant versus non-compliant; this could not account for nuances or the complexity patients may face living with their condition. In some cases, when education was perceived to have failed, clinician participants reported resorting to strong persuasion or threats in an attempt to exercise control over patients: You have to try and barter with them and say, ‘Unless you come to me, then we are going to have to refer you on’. (ref. 23, p.196) Some patients still have to be scared into doing something about their blood sugars. (ref. 26, p.1495) You will still need to tell some patients that ‘unless you stop smoking you’re going to die’. (ref. 26, p.1495) In this theme, there appeared to be an assumption that clinicians own the control. The use of the word ‘allowed’ in the following quote illustrates this clinician's view that he/she has shifted the control to the patient. He [patient] was happy to have been allowed to do something and felt in control. (ref. 21, p.95) In some instances, clinicians interpreted patients’ passivity as satisfaction with the clinician directing the clinical encounter. They're on your patch and they have to play the role, sick role…but they're very vulnerable but also passive. And we quite like that ‘cos then we can get on with our own agenda. (ref. 25, p.34)

Theme 2: Changing clinician views

Changing clinician views reflects a transformation of practice experienced by some clinicians through integration of self-management approaches into their clinical practice. Data described moving away from an expert and didactic model of interaction to an approach described as a partnership which actively valued patient involvement and expertise. Their interactions moved from the more traditional ‘professionals know best’ approach to a partnership where mutual expertise was recognised and valued. (ref. 29, p.147) It [the intervention method designed to improve patient involvement in their care] has definitely changed my attitude to patient care. I am not so likely to dictate to them now and I think a lot more about involving them and asking how they feel about changing. (ref. 26, p.1495) Clinicians perceived their previous positioning as an expert with a heavy emphasis on education and a reliance on information provision as the sole ingredient needed to drive a change in behaviour. As a consequence, participants reflected on how they previously did too much talking which limited their ability to listen to patients. …I talk too much… (ref. 24, p.401) …shift away from the ‘teaching and telling’ approach… (ref. 28, p.375) It made a difference that I listened to [client] and found out what was important for her. Then we worked with that. (ref. 29, p.144) Key to a changed view was how the clinician perceived the patient. Some clinicians valued the expertise of patients and instead of viewing themselves as the only legitimate source of knowledge now saw that the clinician and the patient each had different kinds of expertise, both of which were important for self-management. Clinicians described a shift in position to where they saw patients as knowing what was important to them; having experienced living with a health condition put patients in a better position than clinicians to determine what would or would not work in the context of their own life. We must look to ourselves as health professionals, look at how to better help them [patients] meet their requirements, rather than what we think they need… (ref. 28, p.375) …towards a relationship in which the professional and the patient are equals and represent different kinds of expertise. (ref. 24, p.403) When therapists described their relationship with clients as a partnership, working together towards a common goal became a priority. We're in this together, we're going to come to solutions together. (ref. 18, p.182) GPNs [general practice nurses] saw their role as collaboratively reviewing action plans and supporting patients to achieve their goals. (ref. 31, p.77) Closely tied up with partnership, was an encouragement or in some cases, more strongly, a facilitation of the active involvement of the patient in the management of their condition. Now we're encouraging people to become more proactive about their health… (ref. 28, p.376) …they endeavoured to alter their therapeutic approach to reflect the need for collaboration and facilitate the leadership of the stroke survivor in their own journey of recovery. (ref. 25, p.35) Integral to this theme was the acknowledgement of the complexity of patients’ lives. The subsequent quote illustrates how clinicians understood the complexity patients grappled with which might lead patients to prioritise other needs above their health needs. Their problems have nothing to do with diabetes but everything to do with diabetes. (ref. 18, p.181) Participants seemed to understand and take into account the disruption, grief and biographical impact that diagnosis of a chronic illness can bring. (ref. 23, p.197) Some clinicians viewed that optimal medical management of a condition might not be congruent with what was important to a particular patient and so some clinicians recalibrated what might constitute a good outcome for their patients. Changing clinician views describes a shift towards clinical practice consistent with a model of person-centred practice and away from the more traditional models of practice. Old values like hierarchy and control are replaced by values as equality and autonomy. (ref. 30, p.370) The social encounter shifts from one with a focus on admonishment and giving/imposing direction, to collaboration and partnership. It is apparent that the latter are perceived as more caring behaviours, a marked shift from the professional nihilism reported in the literature. (ref. 28, p.376) Clinicians who perceived the value in listening to patients and understanding patients’ perspectives found this led to a shift in professional attitude. Clinicians invariably viewed this as a positive change on clinical practice.

Theme 3: Overcoming challenges to change

The final theme Overcoming challenges to change reflects an articulation of the challenges associated with the paradigm shift that many clinicians experienced when attempting to shift away from a traditional approach. Many of the tensions experienced by clinicians were centred on ideas and/or concepts of sharing or letting go of control. And for some it's difficult to let go of that sort of ‘I'm the physio, I'm the expert. I've got to look at the impairments and make them better, otherwise there are going to be long term implications that this patient doesn't even understand. So it shouldn't be about what they functionally want to do now, it should be me as an expert saying this is what you need to do for the long term.’ (ref. 25, p.36) Reflections on learning centred on the tensions that exist between relinquishing control and encouraging individuals to make choices about goals and influence the direction of therapy. It's hard to get the balance right between encouragement and taking over. (ref. 21, p.96) One of the challenges that many participants perceived was the need for an observed, conscious shift from talking to listening, which was particularly challenging for many clinicians. They described working hard to change their communication style to one that allowed or encouraged the patient the opportunity to talk and express how they felt, in order to avoid making assumptions about the feelings, needs and preferences of patients. So you'd almost have to hold yourself back… (ref. 18, p.183) It makes you realise that (sigh) you've got to give patients a chance to say how I feel today; I think we're not always very good at that, nurses, doctors, carers. (ref. 23, p.196) Clinicians also specifically talked about needing to avoid the temptation to prevent patients from setting what the clinician perceived as unrealistic goals. I struggled to resist the urge to gently suggest that their long term goal of mobilising outside was unrealistic. (ref. 21, p.95) Following the recognition of the challenges associated with a paradigm shift, participants described that the process of shifting from an exclusively or largely biomedically focused paradigm to one that is more person-centred is gradual, in which small changes can be made and built on. Doctors as well as patients have to grow into these new roles and establish new relationships. Empathy, support, listening to the patient's story and dialogical interaction are as important as giving information and asking for consent. (ref. 30, p.371) The need for training, which included an introduction to relevant theory and principles of self-management, interactive activities and application to real-world case vignettes, was recognised across a range of studies. Those that did not receive training “expressed concerns that they were working in the dark” (ref. 22, p.65). Those that did receive training perceived that their practice had changed as a result and were able to reflect that prior to the training they, like their current colleagues, did not recognise any need to change their way of practice. Some clinicians, when exposed to a different way of practice, think that it is similar to the way they have been practicing using “common sense knowledge and skills they had built up over time in their day-to-day work with patients” (ref. 31, p.78). I think that even though we say that we do client centred goal setting, I think that we don't. And I think this is one of the issues with [the approach] is that people say that they do everything that [this approach] does, but it's how you do it. Yeah we'll talk about listening and they'll go ‘Yeah yeah yeah yeah, goal setting's collaborative’. Is it? Is it really? Is it really collaborative? Are you really listening to what they're saying? (ref. 25, p.35) Participants who had received self-management training greatly valued that preparation. In retrospect, the majority did not think that they previously possessed the requisite skills (eg, collaborative communication styles) and attitudes necessary to deliver self-management programmes. What I have found really useful is that the [self-management] packages that are developed for the client population are probably just as helpful to the professional population because we assume a knowledge base around SM [self-management] that is not there. (ref. 22, p.64) They equally articulated how the self-management training and use of the resources facilitated a more inclusive and shared approach to rehabilitation and self-management in the longer term. (ref. 25, p.37) However, participants perceived that training alone was not sufficient to drive a change in the way of practice. These [group discussions] provided an important venue for the nurses to critically reflect on the issues raised and collaboratively strategise creative responses to seemingly intractable problems to achieve simple yet ‘amazing’ outcomes. (ref. 28, p.375) Through reflective practice, core challenges, needs and patient preferences can be better understood. […] Case reflections offered an opportunity for personal reflection on learning. (ref. 21, p.96) Appreciating and acknowledging the importance of reflection is one prerequisite for the paradigm shift from the traditional patient education model towards the patient-centred education. (ref. 24, p.403) Clinicians noted that dedication of time to practice; a deliberate attempt to focus on skills gained such as collaborative goal setting and setting action plans; and support from colleagues were useful in facilitating a change in the practice over time. Furthermore, the training packages that included a self-reflection component (eg, peer support, case reflections, supervision) appeared to facilitate the transformation of clinical practice, especially if engaged in an ongoing basis.

Discussion

The key finding of this metasynthesis is the dominant position control had in many clinicians’ discussion of self-management approaches, which was used in a variety of contexts. Although the word ‘control’ is most widely used in recent self-management literature to describe disease control18 28 and/or patient autonomy and control,21 22 24 this study highlighted a tension between these two constructs and indeed with a third—that of clinician control. Traditional models of practice tend to position the clinician as an expert and as such, puts the clinician in a position of authority over the patient. Data from clinicians with this perspective outlined their attempts to control patient behaviour (aiming to lead to disease control) primarily through education and motivation. Frustration was often expressed by clinicians when this did not lead to the desired or expected outcomes,19 20 23 25 28 and poor control on the part of the patient was indicated as the central cause of this failure.18 20 21 23 25 26 28 These findings provide a critical examination of the role that clinicians play in self-management approaches and may help to propose ways forward in supporting treatment fidelity. Without formal training or regular reflection, self-management approaches may become tools to control (or blame) patients and in doing so may not empower patients to manage their condition.32–34 It is possible that such practices with self-management approaches may limit the effectiveness of self-management strategies and contribute to modest improvement in patient outcomes.4 35 This study set out to contribute to how enhancing patient outcomes might be augmented in an area that influences the success of self-management—ourselves and other clinicians. We used robust methodologies to synthesise raw data from multiple studies and incorporate the interpretations of the authors of those studies. The paper is novel in its focus and the findings have potential to influence future self-management approaches in terms of how we can more actively support clinicians to embed self-management principles into practice. Indeed, the findings of this paper offer some insight into the skills that arguably all clinicians require to enact patient self-activation. Our findings are not able to determine the most effective strategies to support clinician skill acquisition, but do highlight strategies that might be tested. We acknowledge the possible nuances that may exist across disciplines and contexts. Our analysis did not indicate that there would be important differences in the clinicians’ views in this respect, though this could be explored in more depth in future research. Metasyntheses have been criticised due to the perceived risk of synthesising work that comes from varying philosophical or theoretical positions, which may be deemed incompatible.36 In this instance, none of the included papers were transparent about their philosophical positioning making it difficult to address this explicitly and therefore, interpretations should be read with this caution in mind. We did, however, remain cognisant of the individual papers’ stated aims and purpose, and papers were read and analysed in that context. Clinicians who have undergone formal self-management training appeared to wrestle with issues of control. Many clinicians, who recognised their recently changed views and wished to practice in a different way, articulated a tension associated with sharing control with patients.21 33 This tension appeared to relate to discarding the dominant hierarchical model of practice and adopting a person-centred approach. Associated with this change is the complexity of balancing protective aspects of care (eg, ensuring patients avoid adverse health consequences), and elements of patient choice and responsibility. Tensions such as this will most likely be encountered repeatedly during the shift in the mode of practice. It could be that the way we think about the relationship of the different aspects of control might help clinicians reconcile the tensions associated with the theme Who is in control? For clinicians, the wrestling for control (related to a dominant medical model) was largely focused on the patient; it was only through the patient that the clinician attempted to exercise control over the disease. However, in other studies, patients reported a different battle: they described wrestling the disease for control over their life.20 37 38 Disease control could (and arguably should) be thought of as a mutual goal. If it were—it may help clinicians to adjust their position—to ‘relinquish control’ and emphasise collaboration between clinician and patient. This would reposition ourselves as partners, working with rather than working on patients. Clinicians described strategies they found helpful in this transition process. In the first instance, it was important to acknowledge the gradual change needed and by implication, acknowledge the time needed to make changes. Making small changes, such as talking less and listening more, were found helpful (albeit difficult) for clinicians.28 29 Clinicians valued the self-management training received, particularly in collaborative communication styles and the use of resources (eg, the Bridges workbook).21 39 Participants emphasised the need also for dedicated time and deliberate practice of the skills learnt21 31 (eg, collaborative goal setting, action planning). Reflection was also reported to be a very useful technique in making further change, both in this study and others.28 33 40 Clinicians engaged in a range of reflective practices, including seeking/providing informal support to peers,31 written case reflections21 and regular meetings26 with peers or supervisor. Motivational interviewing41 and the use of theatre42 are other strategies proposed to change clinician attitudes and behaviour. These strategies could be investigated further to test whether they can be used more broadly to facilitate a change in the way to practice. In order to make and sustain changes in practice methods, clinicians required an environment that was conducive or open to change, including the support of colleagues.39 In this respect, change is not only necessary at the individual clinician level, but the influence of broader organisational structures43 44 also need to be considered. The findings of this study provide tangible opportunities for clinicians to reflect on the way in which we interact with patients. Beyond the suggested strategies, there is also a need to develop an intervention that integrates the recommended strategies with a theoretical model, and also tests the effect on clinician and ultimately patient behaviour.

Conclusion

Self-management approaches are increasingly identified as important for personal health and well-being, and potentially crucial for management of long-term conditions. Our study highlights that strategies may be required to assist clinicians to draw on self-management approaches and use them for ‘enabling’ new forms of practice methods. Data indicated that clinicians face a number of challenges associated with the paradigm shift that is required for clinicians to share or let go of control. Clinicians found that specific skills and strategies, such as dedicating time to practice reciprocity in communication style, peer support and self-reflection, were helpful to begin a shift in the ways to practice.
  37 in total

1.  Motivational interviewing: a novel intervention for translating rehabilitation research into practice.

Authors:  Shalini Lal; Nicol Korner-Bitensky
Journal:  Disabil Rehabil       Date:  2012-09-20       Impact factor: 3.033

Review 2.  Self-management programmes for people post stroke: a systematic review.

Authors:  Sheila Lennon; Suzanne McKenna; Fiona Jones
Journal:  Clin Rehabil       Date:  2013-03-29       Impact factor: 3.477

3.  'Getting the balance between encouragement and taking over': reflections on using a new stroke self-management programme.

Authors:  Fiona Jones; Elizabeth Livingstone; Louise Hawkes
Journal:  Physiother Res Int       Date:  2012-07-05

4.  Self-management and adherence with exercise-based falls prevention programmes: a qualitative study to explore the views and experiences of older people and physiotherapists.

Authors:  Lisa Robinson; Julia L Newton; Diana Jones; Pamela Dawson
Journal:  Disabil Rehabil       Date:  2013-05-28       Impact factor: 3.033

5.  Are physiotherapists comfortable with person-centred practice? An autoethnographic insight.

Authors:  Suzie Mudge; Caroline Stretton; Nicola Kayes
Journal:  Disabil Rehabil       Date:  2013-05-28       Impact factor: 3.033

6.  Behaviour change and social blinkers? The role of sociology in trials of self-management behaviour in chronic conditions.

Authors:  Bie Nio Ong; Anne Rogers; Anne Kennedy; Peter Bower; Tom Sanders; Andrew Morden; Sudeh Cheraghi-Sohi; Jane C Richardson; Fiona Stevenson
Journal:  Sociol Health Illn       Date:  2014-02

7.  Implementing, embedding and integrating self-management support tools for people with long-term conditions in primary care nursing: a qualitative study.

Authors:  Anne Kennedy; Anne Rogers; Robert Bowen; Victoria Lee; Tom Blakeman; Caroline Gardner; Rebecca Morris; Joanne Protheroe; Carolyn Chew-Graham
Journal:  Int J Nurs Stud       Date:  2013-11-27       Impact factor: 5.837

8.  Implementation of self management support for long term conditions in routine primary care settings: cluster randomised controlled trial.

Authors:  Anne Kennedy; Peter Bower; David Reeves; Tom Blakeman; Robert Bowen; Carolyn Chew-Graham; Martin Eden; Catherine Fullwood; Hannah Gaffney; Caroline Gardner; Victoria Lee; Rebecca Morris; Joanne Protheroe; Gerry Richardson; Caroline Sanders; Angela Swallow; David Thompson; Anne Rogers
Journal:  BMJ       Date:  2013-05-13

9.  From dictatorship to a reluctant democracy: stroke therapists talking about self-management.

Authors:  Meriel Norris; Cherry Kilbride
Journal:  Disabil Rehabil       Date:  2013-04-17       Impact factor: 3.033

Review 10.  A systematic review of self-management interventions for children and youth with physical disabilities.

Authors:  Sally Lindsay; Shauna Kingsnorth; Carolyn Mcdougall; Heather Keating
Journal:  Disabil Rehabil       Date:  2013-04-24       Impact factor: 3.033

View more
  20 in total

1.  Clinician's Commentary on Figueiredo et al.1.

Authors:  Samantha L Harrison
Journal:  Physiother Can       Date:  2017       Impact factor: 1.037

2.  An extended stroke rehabilitation service for people who have had a stroke: the EXTRAS RCT.

Authors:  Lisa Shaw; Nawaraj Bhattarai; Robin Cant; Avril Drummond; Gary A Ford; Anne Forster; Richard Francis; Katie Hills; Denise Howel; Anne Marie Laverty; Christopher McKevitt; Peter McMeekin; Christopher Price; Elaine Stamp; Eleanor Stevens; Luke Vale; Helen Rodgers
Journal:  Health Technol Assess       Date:  2020-05       Impact factor: 4.014

Review 3.  A Scoping Review of Self-Management Interventions Following Spinal Cord Injury.

Authors:  Amanda McIntyre; Stephanie L Marrocco; Samantha A McRae; Lindsay Sleeth; Sander Hitzig; Susan Jaglal; Gary Linassi; Sarah Munce; Dalton L Wolfe
Journal:  Top Spinal Cord Inj Rehabil       Date:  2020

Review 4.  Using digital interventions for self-management of chronic physical health conditions: A meta-ethnography review of published studies.

Authors:  Katherine Morton; Laura Dennison; Carl May; Elizabeth Murray; Paul Little; Richard J McManus; Lucy Yardley
Journal:  Patient Educ Couns       Date:  2016-10-20

5.  Factors influencing access to education, decision making, and receipt of preferred dialysis modality in unplanned dialysis start patients.

Authors:  Anna Machowska; Mark Dominik Alscher; Satyanarayana Reddy Vanga; Michael Koch; Michael Aarup; Abdul Rashid Qureshi; Bengt Lindholm; Peter A Rutherford
Journal:  Patient Prefer Adherence       Date:  2016-11-02       Impact factor: 2.711

6.  Evaluation of nurses' changing perceptions when trained to implement a self-management programme for dual sensory impaired older adults in long-term care: a qualitative study.

Authors:  Lieve M Roets-Merken; Myrra J F J Vernooij-Dassen; Sytse U Zuidema; Marianne K Dees; Pieter G J M Hermsen; Gertrudis I J M Kempen; Maud J L Graff
Journal:  BMJ Open       Date:  2016-11-17       Impact factor: 2.692

7.  Management of Cancer and Health After the Clinic Visit: A Call to Action for Self-Management in Cancer Care.

Authors:  Doris Howell; Deborah K Mayer; Richard Fielding; Manuela Eicher; Irma M Verdonck-de Leeuw; Christoffer Johansen; Enrique Soto-Perez-de-Celis; Claire Foster; Raymond Chan; Catherine M Alfano; Shawna V Hudson; Michael Jefford; Wendy W T Lam; Victoria Loerzel; Gabriella Pravettoni; Elke Rammant; Lidia Schapira; Kevin D Stein; Bogda Koczwara
Journal:  J Natl Cancer Inst       Date:  2021-05-04       Impact factor: 13.506

8.  Patient-Centred Care for Patients With Diabetes and HIV at a Public Tertiary Hospital in South Africa: An Ethnographic Study.

Authors:  Edna N Bosire; Emily Mendenhall; Shane A Norris; Jane Goudge
Journal:  Int J Health Policy Manag       Date:  2021-09-01

9.  Brief encounters: what do primary care professionals contribute to peoples' self-care support network for long-term conditions? A mixed methods study.

Authors:  Anne Rogers; Ivaylo Vassilev; Helen Brooks; Anne Kennedy; Christian Blickem
Journal:  BMC Fam Pract       Date:  2016-02-17       Impact factor: 2.497

10.  Effectiveness of a nurse-supported self-management programme for dual sensory impaired older adults in long-term care: a cluster randomised controlled trial.

Authors:  Lieve M Roets-Merken; Sytse U Zuidema; Myrra J F J Vernooij-Dassen; Steven Teerenstra; Pieter G J M Hermsen; Gertrudis I J M Kempen; Maud J L Graff
Journal:  BMJ Open       Date:  2018-01-24       Impact factor: 2.692

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.