Literature DB >> 25783454

The French bioethics public consultation and the anonymity doctrine: empirical ethics and normative assumptions.

Marta Spranzi1, Laurence Brunet.   

Abstract

The French bioethics laws of 1994 contain the principles of the anonymity and non commodification of all donations of body parts and products including gametes in medically assisted reproduction. The two revisions of the law, in 2004 and 2011 have upheld the rule. In view of the latest revision process, the French government organized a large public consultation in 2009 ("Etats généraux de la bioéthique"). Within the event a "consensus conference" was held in Rennes about different aspects of assisted reproduction (access, anonymity, gratuity and surrogacy). In what follows we shall first describe the anonymity clause for gamete donations in the French law and the debates surrounding it. We shall then analyse the procedure used for the 2009 public consultation and the related consensus conference, as well as its upshot concerning the anonymity doctrine. In this respect we shall compare the citizens' own recommendations on the gamete anonymity issue and its translation in the consultation's final report drafted by a philosopher mandated by the organizing committee. Whereas the final report cited some fundamental ethical arguments as reason for upholding the provisions of the law-most notably the refusal of the 'all biological' approach to reproductive issues-citizens were more careful and tentative in their position although they also concluded that for pragmatic reasons the anonymity rule should continue to hold. We shall argue that the conservative upshot of the public consultation is due to some main underlying presuppositions concerning the citizens' role and expertise as well as to the specific design of the consensus conference. Our conclusion will be that public consultations and consensus conferences can only serve as an empirical support for devising suitable bioethics norms by using second-order normative assumptions.

Mesh:

Year:  2015        PMID: 25783454     DOI: 10.1007/s40592-015-0021-3

Source DB:  PubMed          Journal:  Monash Bioeth Rev        ISSN: 1321-2753


  8 in total

Review 1.  Public consultation in bioethics. What's the point of asking the public when they have neither scientific nor ethical expertise?

Authors:  Mairi Levitt
Journal:  Health Care Anal       Date:  2003-03

2.  Clinical ethics and values: how do norms evolve from practice?

Authors:  Marta Spranzi
Journal:  Med Health Care Philos       Date:  2013-02

3.  Gamete donation in France: the future of the anonymity doctrine.

Authors:  Laurence Brunet; Jean-Marie Kunstmann
Journal:  Med Health Care Philos       Date:  2013-02

4.  The ethics of anonymous gamete donation: is there a right to know one's genetic origins?

Authors:  Inmaculada De Melo-Martín
Journal:  Hastings Cent Rep       Date:  2014-02-14       Impact factor: 2.683

5.  Personal identity as a form of freedom.

Authors:  Marta Spranzi; Laurence Brunet
Journal:  Hastings Cent Rep       Date:  2014-09       Impact factor: 2.683

6.  The role of empirical research in bioethics.

Authors:  Alexander A Kon
Journal:  Am J Bioeth       Date:  2009       Impact factor: 11.229

7.  The experiences of adolescents and adults conceived by sperm donation: comparisons by age of disclosure and family type.

Authors:  Vasanti Jadva; Tabitha Freeman; Wendy Kramer; Susan Golombok
Journal:  Hum Reprod       Date:  2009-04-27       Impact factor: 6.918

8.  'In a completely different light'? The role of 'being affected' for the epistemic perspectives and moral attitudes of patients, relatives and lay people.

Authors:  Silke Schicktanz; Mark Schweda; Martina Franzen
Journal:  Med Health Care Philos       Date:  2007-07-06
  8 in total
  1 in total

1.  The ECOUTER methodology for stakeholder engagement in translational research.

Authors:  Madeleine J Murtagh; Joel T Minion; Andrew Turner; Rebecca C Wilson; Mwenza Blell; Cynthia Ochieng; Barnaby Murtagh; Stephanie Roberts; Oliver W Butters; Paul R Burton
Journal:  BMC Med Ethics       Date:  2017-04-04       Impact factor: 2.652

  1 in total

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