Literature DB >> 19998120

The role of empirical research in bioethics.

Alexander A Kon1.   

Abstract

There has long been tension between bioethicists whose work focuses on classical philosophical inquiry and those who perform empirical studies on bioethical issues. While many have argued that empirical research merely illuminates current practices and cannot inform normative ethics, others assert that research-based work has significant implications for refining our ethical norms. In this essay, I present a novel construct for classifying empirical research in bioethics into four hierarchical categories: Lay of the Land, Ideal Versus Reality, Improving Care, and Changing Ethical Norms. Through explaining these four categories and providing examples of publications in each stratum, I define how empirical research informs normative ethics. I conclude by demonstrating how philosophical inquiry and empirical research can work cooperatively to further normative ethics.

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Year:  2009        PMID: 19998120      PMCID: PMC2826359          DOI: 10.1080/15265160902874320

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  47 in total

1.  Inequality in quality: addressing socioeconomic, racial, and ethnic disparities in health care.

Authors:  K Fiscella; P Franks; M R Gold; C M Clancy
Journal:  JAMA       Date:  2000-05-17       Impact factor: 56.272

2.  Psychological or physiological: why are tetraplegic patients content?

Authors:  Fátima de N Abrantes-Pais; Joyce K Friedman; William R Lovallo; Elliott D Ross
Journal:  Neurology       Date:  2007-04-25       Impact factor: 9.910

3.  Ethical considerations in executing and implementing advance directives.

Authors:  E H Loewy
Journal:  Arch Intern Med       Date:  1998-02-23

4.  Risk of post-traumatic stress symptoms in family members of intensive care unit patients.

Authors:  Elie Azoulay; Frédéric Pochard; Nancy Kentish-Barnes; Sylvie Chevret; Jérôme Aboab; Christophe Adrie; Djilali Annane; Gérard Bleichner; Pierre Edouard Bollaert; Michael Darmon; Thomas Fassier; Richard Galliot; Maité Garrouste-Orgeas; Cyril Goulenok; Dany Goldgran-Toledano; Jan Hayon; Mercé Jourdain; Michel Kaidomar; Christian Laplace; Jérôme Larché; Jérôme Liotier; Laurent Papazian; Catherine Poisson; Jean Reignier; Fayçal Saidi; Benoît Schlemmer
Journal:  Am J Respir Crit Care Med       Date:  2005-01-21       Impact factor: 21.405

5.  Improving the readability and processability of a pediatric informed consent document: effects on parents' understanding.

Authors:  Alan R Tait; Terri Voepel-Lewis; Shobha Malviya; Sandra J Philipson
Journal:  Arch Pediatr Adolesc Med       Date:  2005-04

6.  US and Canadian physicians' attitudes and experiences regarding disclosing errors to patients.

Authors:  Thomas H Gallagher; Amy D Waterman; Jane M Garbutt; Julie M Kapp; David K Chan; W Claiborne Dunagan; Victoria J Fraser; Wendy Levinson
Journal:  Arch Intern Med       Date:  2006 Aug 14-28

7.  Can patient-centered attitudes reduce racial and ethnic disparities in care?

Authors:  Mary Catherine Beach; Mary Rosner; Lisa A Cooper; Patrick S Duggan; John Shatzer
Journal:  Acad Med       Date:  2007-02       Impact factor: 6.893

8.  Patients' perceptions of physicians' recommendations for comfort care differ by patient age and gender.

Authors:  M F Johnson; M Lin; S Mangalik; D J Murphy; A M Kramer
Journal:  J Gen Intern Med       Date:  2000-04       Impact factor: 5.128

Review 9.  Challenges in end-of-life care in the ICU: statement of the 5th International Consensus Conference in Critical Care: Brussels, Belgium, April 2003: executive summary.

Authors:  B Taylor Thompson; Peter N Cox; Massimo Antonelli; Jean M Carlet; Joan Cassell; Nicholas S Hill; Charles J Hinds; Jorge M Pimentel; Konrad Reinhart; Lambertus G Thijs
Journal:  Crit Care Med       Date:  2004-08       Impact factor: 7.598

10.  Beyond "misunderstanding": written information and decisions about taking part in a genetic epidemiology study.

Authors:  Mary Dixon-Woods; Richard E Ashcroft; Clare J Jackson; Martin D Tobin; Joelle Kivits; Paul R Burton; Nilesh J Samani
Journal:  Soc Sci Med       Date:  2007-09-29       Impact factor: 4.634

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  37 in total

1.  Health Care Professionals' Attitudes About Physician-Assisted Death: An Analysis of Their Justifications and the Roles of Terminology and Patient Competency.

Authors:  Derek W Braverman; Brian S Marcus; Paul G Wakim; Mark R Mercurio; Gary S Kopf
Journal:  J Pain Symptom Manage       Date:  2017-07-15       Impact factor: 3.612

2.  Categorizing empirical research in bioethics: why count the ways?

Authors:  Jeremy Sugarman; Nancy Kass; Ruth Faden
Journal:  Am J Bioeth       Date:  2009       Impact factor: 11.229

3.  Monash editorial.

Authors:  Jonathan Ives; Veerle Provoost
Journal:  Monash Bioeth Rev       Date:  2015-03

4.  The French bioethics public consultation and the anonymity doctrine: empirical ethics and normative assumptions.

Authors:  Marta Spranzi; Laurence Brunet
Journal:  Monash Bioeth Rev       Date:  2015-03

Review 5.  Secondary use of empirical research data in medical ethics papers on gamete donation: forms of use and pitfalls.

Authors:  Veerle Provoost
Journal:  Monash Bioeth Rev       Date:  2015-03

Review 6.  Beyond integrating social sciences: Reflecting on the place of life sciences in empirical bioethics methodologies.

Authors:  Marcel Mertz; Jan Schildmann
Journal:  Med Health Care Philos       Date:  2018-06

7.  The Is-Ought Problem in Practical Ethics.

Authors:  Georg Spielthenner
Journal:  HEC Forum       Date:  2017-12

8.  Ethical rules for human subjects research: a case where the "is" must inform the "ought".

Authors:  Alexander A Kon
Journal:  Am J Bioeth       Date:  2010-06       Impact factor: 11.229

9.  Ethics in Psychiatric Research: A Review of 25 Years of NIH-funded Empirical Research Projects.

Authors:  James Dubois; Holly Bante; Whitney B Hadley
Journal:  AJOB Prim Res       Date:  2011-12-06

10.  Ancillary care in South African HIV vaccine trials: addressing needs, drafting protocols, and engaging community.

Authors:  Catherine M Slack
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

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