Literature DB >> 14510306

Public consultation in bioethics. What's the point of asking the public when they have neither scientific nor ethical expertise?

Mairi Levitt1.   

Abstract

With the rapid development of genetic research and applications in health care there is some agreement among funding and regulatory bodies that the public(s) need to be equipped to deal with the choices that the new technologies will offer them, although this does not necessarily include a role for the public in influencing their development and regulation. This paper considers the methods and purpose of public consultations in the area of genetics including large-scale surveys of opinion, consensus conferences and focus groups. Consultation has been undertaken to enable the researchers/policy makers to see what the public do not know and plan more public education to make up the deficiency, to check on areas of concern so that public education can be used to address them or to gain a public mandate for a planned policy. An alternative and more recent approach is to find out what the public(s) do know and understand and to see how experts can learn from them in order to get a fuller view of technology in use.

Entities:  

Keywords:  Analytical Approach; Bioethics and Professional Ethics; Empirical Approach

Mesh:

Year:  2003        PMID: 14510306     DOI: 10.1023/A:1025381828650

Source DB:  PubMed          Journal:  Health Care Anal        ISSN: 1065-3058


  2 in total

1.  Drawing the line: an analysis of lay people's discussions about the new genetics.

Authors:  Anne Kerr; Sarah Cunningham-Burley; Amanda Amos
Journal:  Public Underst Sci       Date:  1998-04

2.  What we know and what we don't about cloning and society.

Authors:  S Franklin
Journal:  New Genet Soc       Date:  1999
  2 in total
  6 in total

1.  Representation or reason: consulting the public on the ethics of health policy.

Authors:  Caroline Mullen
Journal:  Health Care Anal       Date:  2007-10-06

2.  The French bioethics public consultation and the anonymity doctrine: empirical ethics and normative assumptions.

Authors:  Marta Spranzi; Laurence Brunet
Journal:  Monash Bioeth Rev       Date:  2015-03

3.  The ethics of 'public understanding of ethics'--why and how bioethics expertise should include public and patients' voices.

Authors:  Silke Schicktanz; Mark Schweda; Brian Wynne
Journal:  Med Health Care Philos       Date:  2012-05

4.  Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research.

Authors:  Katharina Beier; Mark Schweda; Silke Schicktanz
Journal:  BMC Med Inform Decis Mak       Date:  2019-04-25       Impact factor: 2.796

5.  From 'implications' to 'dimensions': science, medicine and ethics in society.

Authors:  Martyn D Pickersgill
Journal:  Health Care Anal       Date:  2013-03

Review 6.  Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.

Authors:  Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2016-03-03       Impact factor: 8.929

  6 in total

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