Literature DB >> 25560316

Electronic health records and transgender patients--practical recommendations for the collection of gender identity data.

Madeline B Deutsch1, David Buchholz.   

Abstract

Transgender (Trans, Trans*) persons may have a gender identity and a preferred name that differ from those assigned at birth, and/or those listed on their current legal identification (Gender ID, Birth-assigned Sex, Legal Sex). Transgender people who are referred to in a clinical setting using the wrong pronoun or name may suffer distress, ridicule or even assault by others in the waiting area, and may not return for further care. Furthermore, failure to accurately document (and therefore count) transgender identities has negative implications on quality improvement and research efforts, funding priorities and policy activities. The recent announcement that gender identity data may be included in Meaningful Use Stage 3 has accelerated the need for guidance for both vendors and local implementation teams on how to best record and store these data. A recent study demonstrated wide variation in current practices. This manuscript provides a description of identifiers associated with gender identity, and makes practical and evidence based recommendations for implementation and front-end functionality.

Entities:  

Mesh:

Year:  2015        PMID: 25560316      PMCID: PMC4441683          DOI: 10.1007/s11606-014-3148-7

Source DB:  PubMed          Journal:  J Gen Intern Med        ISSN: 0884-8734            Impact factor:   5.128


  10 in total

1.  Transgender health in Massachusetts: results from a household probability sample of adults.

Authors:  Kerith J Conron; Gunner Scott; Grace Sterling Stowell; Stewart J Landers
Journal:  Am J Public Health       Date:  2011-11-28       Impact factor: 9.308

2.  Sexual Orientation and Gender Identity Data Collection Update: U.S. Government Takes Steps to Promote Sexual Orientation and Gender Identity Data Collection Through Meaningful Use Guidelines.

Authors:  Sean Cahill; Harvey J Makadon
Journal:  LGBT Health       Date:  2014-07-02       Impact factor: 4.151

3.  A two-question method for assessing gender categories in the social and medical sciences.

Authors:  Charlotte Chuck Tate; Jay N Ledbetter; Cris P Youssef
Journal:  J Sex Res       Date:  2012-09-18

4.  Automatic generation of natural language nursing shift summaries in neonatal intensive care: BT-Nurse.

Authors:  James Hunter; Yvonne Freer; Albert Gatt; Ehud Reiter; Somayajulu Sripada; Cindy Sykes
Journal:  Artif Intell Med       Date:  2012-10-12       Impact factor: 5.326

5.  Collection of gender identity data using electronic medical records: survey of current end-user practices.

Authors:  Madeline B Deutsch; JoAnne Keatley; Jae Sevelius; Starley B Shade
Journal:  J Assoc Nurses AIDS Care       Date:  2014-04-12       Impact factor: 1.354

6.  Sexual Orientation and Gender Identity Data Collection in Clinical Settings and in Electronic Health Records: A Key to Ending LGBT Health Disparities.

Authors:  Sean Cahill; Harvey Makadon
Journal:  LGBT Health       Date:  2013-08-02       Impact factor: 4.151

7.  "I don't think this is theoretical; this is our lives": how erasure impacts health care for transgender people.

Authors:  Greta R Bauer; Rebecca Hammond; Robb Travers; Matthias Kaay; Karin M Hohenadel; Michelle Boyce
Journal:  J Assoc Nurses AIDS Care       Date:  2009 Sep-Oct       Impact factor: 1.354

8.  Patient and staff perspectives on the use of a computer counseling tool for HIV and sexually transmitted infection risk reduction.

Authors:  Sara L C Mackenzie; Ann E Kurth; Freya Spielberg; Anneleen Severynen; C Kevin Malotte; Janet St Lawrence; J Dennis Fortenberry
Journal:  J Adolesc Health       Date:  2007-03-26       Impact factor: 5.012

9.  Data-to-text summarisation of patient records: using computer-generated summaries to access patient histories.

Authors:  Donia Scott; Catalina Hallett; Rachel Fettiplace
Journal:  Patient Educ Couns       Date:  2013-06-05

10.  Electronic medical records and the transgender patient: recommendations from the World Professional Association for Transgender Health EMR Working Group.

Authors:  Madeline B Deutsch; Jamison Green; JoAnne Keatley; Gal Mayer; Jennifer Hastings; Alexandra M Hall
Journal:  J Am Med Inform Assoc       Date:  2013-04-30       Impact factor: 4.497

  10 in total
  45 in total

1.  Provider Perspectives on the Application of Patient Sexual Orientation and Gender Identity in Clinical Care: A Qualitative Study.

Authors:  Melissa E Dichter; Shannon N Ogden; Kathryn L Scheffey
Journal:  J Gen Intern Med       Date:  2018-05-31       Impact factor: 5.128

Review 2.  Agreement between medical records and self-reports: Implications for transgender health research.

Authors:  Joseph Gerth; Tracy Becerra-Culqui; Andrew Bradlyn; Darios Getahun; Enid M Hunkeler; Timothy L Lash; Andrea Millman; Rebecca Nash; Virginia P Quinn; Brandi Robinson; Douglas Roblin; Michael J Silverberg; Vin Tangpricha; Suma Vupputuri; Michael Goodman
Journal:  Rev Endocr Metab Disord       Date:  2018-09       Impact factor: 6.514

3.  A novel method for estimating transgender status using electronic medical records.

Authors:  Douglas Roblin; Joshua Barzilay; Dennis Tolsma; Brandi Robinson; Laura Schild; Lee Cromwell; Hayley Braun; Rebecca Nash; Joseph Gerth; Enid Hunkeler; Virginia P Quinn; Vin Tangpricha; Michael Goodman
Journal:  Ann Epidemiol       Date:  2016-02-04       Impact factor: 3.797

4.  Opening the door to transgender care.

Authors:  Edward J Callahan
Journal:  J Gen Intern Med       Date:  2015-06       Impact factor: 5.128

5.  Transforming Primary Care for Lesbian, Gay, Bisexual, and Transgender People: A Collaborative Quality Improvement Initiative.

Authors:  Bruce W Furness; Hilary Goldhammer; Wanda Montalvo; Kelly Gagnon; Lauren Bifulco; Daniel Lentine; Daren Anderson
Journal:  Ann Fam Med       Date:  2020-07       Impact factor: 5.166

Review 6.  The Importance of Human Immunodeficiency Virus Research for Transgender and Gender-Nonbinary Individuals.

Authors:  Sara Gianella; J Sonya Haw; Jill Blumenthal; Brooke Sullivan; Davey Smith
Journal:  Clin Infect Dis       Date:  2018-04-17       Impact factor: 9.079

7.  LGBTQ Bullying: Translating Research to Action in Pediatrics.

Authors:  Valerie A Earnshaw; Sari L Reisner; Jaana Juvonen; Mark L Hatzenbuehler; Jeff Perrotti; Mark A Schuster
Journal:  Pediatrics       Date:  2017-10       Impact factor: 7.124

8.  Healthcare Utilization among Transgender Individuals in California.

Authors:  Jesse M Ehrenfeld; Del Ray Zimmerman; Gilbert Gonzales
Journal:  J Med Syst       Date:  2018-03-16       Impact factor: 4.460

9.  A Blueprint for Planning and Implementing a Transgender Health Program.

Authors:  Anna M Morenz; Hilary Goldhammer; Cei A Lambert; Ruben Hopwood; Alex S Keuroghlian
Journal:  Ann Fam Med       Date:  2020-01       Impact factor: 5.166

Review 10.  The Perioperative Care of the Transgender Patient.

Authors:  Luis Etienne Tollinche; Chasity Burrows Walters; Asa Radix; Michael Long; Larissa Galante; Zil Garner Goldstein; Yvonne Kapinos; Cindy Yeoh
Journal:  Anesth Analg       Date:  2018-08       Impact factor: 5.108

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