Literature DB >> 25552232

Incorporating patient-preference evidence into regulatory decision making.

Martin P Ho1, Juan Marcos Gonzalez2, Herbert P Lerner3, Carolyn Y Neuland4, Joyce M Whang5, Michelle McMurry-Heath6,7, A Brett Hauber8, Telba Irony9.   

Abstract

BACKGROUND: Patients have a unique role in deciding what treatments should be available for them and regulatory agencies should take their preferences into account when making treatment approval decisions. This is the first study designed to obtain quantitative patient-preference evidence to inform regulatory approval decisions by the Food and Drug Administration Center for Devices and Radiological Health.
METHODS: Five-hundred and forty United States adults with body mass index (BMI) ≥ 30 kg/m(2) evaluated tradeoffs among effectiveness, safety, and other attributes of weight-loss devices in a scientific survey. Discrete-choice experiments were used to quantify the importance of safety, effectiveness, and other attributes of weight-loss devices to obese respondents. A tool based on these measures is being used to inform benefit-risk assessments for premarket approval of medical devices.
RESULTS: Respondent choices yielded preference scores indicating their relative value for attributes of weight-loss devices in this study. We developed a tool to estimate the minimum weight loss acceptable by a patient to receive a device with a given risk profile and the maximum mortality risk tolerable in exchange for a given weight loss. For example, to accept a device with 0.01 % mortality risk, a risk tolerant patient will require about 10 % total body weight loss lasting 5 years.
CONCLUSIONS: Patient preference evidence was used make regulatory decision making more patient-centered. In addition, we captured the heterogeneity of patient preferences allowing market approval of effective devices for risk tolerant patients. CDRH is using the study tool to define minimum clinical effectiveness to evaluate new weight-loss devices. The methods presented can be applied to a wide variety of medical products. This study supports the ongoing development of a guidance document on incorporating patient preferences into medical-device premarket approval decisions.

Entities:  

Keywords:  Benefit-risk assessment; FDA; Obesity treatment; Patient preferences; Regulatory-approval decisions; Weight-loss devices

Mesh:

Year:  2015        PMID: 25552232     DOI: 10.1007/s00464-014-4044-2

Source DB:  PubMed          Journal:  Surg Endosc        ISSN: 0930-2794            Impact factor:   4.584


  6 in total

1.  Conjoint Analysis Applications in Health - How are Studies being Designed and Reported?: An Update on Current Practice in the Published Literature between 2005 and 2008.

Authors:  Deborah Marshall; John F P Bridges; Brett Hauber; Ruthanne Cameron; Lauren Donnalley; Ken Fyie; F Reed Johnson
Journal:  Patient       Date:  2010-12-01       Impact factor: 3.883

2.  Trends in use of bariatric surgery, 2003-2008.

Authors:  Ninh T Nguyen; Hossein Masoomi; Cheryl P Magno; Xuan-Mai T Nguyen; Kelly Laugenour; John Lane
Journal:  J Am Coll Surg       Date:  2011-05-31       Impact factor: 6.113

3.  Conjoint analysis applications in health--a checklist: a report of the ISPOR Good Research Practices for Conjoint Analysis Task Force.

Authors:  John F P Bridges; A Brett Hauber; Deborah Marshall; Andrew Lloyd; Lisa A Prosser; Dean A Regier; F Reed Johnson; Josephine Mauskopf
Journal:  Value Health       Date:  2011-04-22       Impact factor: 5.725

4.  Prevalence of obesity in the United States, 2009-2010.

Authors:  Cynthia L Ogden; Margaret D Carroll; Brian K Kit; Katherine M Flegal
Journal:  NCHS Data Brief       Date:  2012-01

Review 5.  Benefit-risk paradigm for clinical trial design of obesity devices: FDA proposal.

Authors:  Herbert Lerner; Joyce Whang; Rebecca Nipper
Journal:  Surg Endosc       Date:  2012-12-18       Impact factor: 4.584

6.  Constructing experimental designs for discrete-choice experiments: report of the ISPOR Conjoint Analysis Experimental Design Good Research Practices Task Force.

Authors:  F Reed Johnson; Emily Lancsar; Deborah Marshall; Vikram Kilambi; Axel Mühlbacher; Dean A Regier; Brian W Bresnahan; Barbara Kanninen; John F P Bridges
Journal:  Value Health       Date:  2013 Jan-Feb       Impact factor: 5.725

  6 in total
  63 in total

1.  Prioritizing outcome preferences in patients with ocular hypertension and open-angle glaucoma using best-worst scaling.

Authors:  Jimmy T Le; Amanda K Bicket; Ellen M Janssen; Davinder Grover; Sunita Radhakrishnan; Steven Vold; Michelle E Tarver; Malvina Eydelman; John F P Bridges; Tianjing Li
Journal:  Ophthalmol Glaucoma       Date:  2019-09-03

2.  Upper extremity prosthesis user perspectives on unmet needs and innovative technology.

Authors:  Heather L Benz; Laura Rose; Okan Olgac; Karen Kreutz; Anindita Saha; Eugene F Civillico
Journal:  Conf Proc IEEE Eng Med Biol Soc       Date:  2016-08

3.  Giving Patients a Meaningful Voice in United States Regulatory Decision Making: The Role for Health Preference Research.

Authors:  F Reed Johnson; Kathleen Beusterien; Semra Özdemir; Leslie Wilson
Journal:  Patient       Date:  2017-08       Impact factor: 3.883

4.  Symposium Title: Preference Evidence for Regulatory Decisions.

Authors:  Juan Marcos Gonzalez; F Reed Johnson; Bennett Levitan; Rebecca Noel; Holly Peay
Journal:  Patient       Date:  2018-10       Impact factor: 3.883

5.  "I Was Trying to Do the Maths": Exploring the Impact of Risk Communication in Discrete Choice Experiments.

Authors:  Caroline Vass; Dan Rigby; Katherine Payne
Journal:  Patient       Date:  2019-02       Impact factor: 3.883

6.  Incorporating Quantitative Patient Preference Data into Healthcare Decision Making Processes: Is HTA Falling Behind?

Authors:  David John Mott
Journal:  Patient       Date:  2018-06       Impact factor: 3.883

7.  The Ball is in Your Court: Agenda for Research to Advance the Science of Patient Preferences in the Regulatory Review of Medical Devices in the United States.

Authors:  Bennett Levitan; A Brett Hauber; Marina G Damiano; Ross Jaffe; Stephanie Christopher
Journal:  Patient       Date:  2017-10       Impact factor: 3.883

8.  Advancing the Use of Patient Preference Information as Scientific Evidence in Medical Product Evaluation: A Summary Report of the Patient Preference Workshop.

Authors:  Heather L Benz; Ting-Hsuan Joyce Lee; Jui-Hua Tsai; John F P Bridges; Sara Eggers; Megan Moncur; Fadia T Shaya; Ira Shoulson; Erica S Spatz; Leslie Wilson; Anindita Saha
Journal:  Patient       Date:  2019-12       Impact factor: 3.883

9.  Trading Health Risks for Glory: A Reformulation of the Goldman Dilemma.

Authors:  Juan Marcos González; F Reed Johnson; Matthew Fedoruk; Joshua Posner; Larry Bowers
Journal:  Sports Med       Date:  2018-08       Impact factor: 11.136

Review 10.  Neuroprosthetics and the science of patient input.

Authors:  Heather L Benz; Eugene F Civillico
Journal:  Exp Neurol       Date:  2016-07-22       Impact factor: 5.330

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