Literature DB >> 28597374

Giving Patients a Meaningful Voice in United States Regulatory Decision Making: The Role for Health Preference Research.

F Reed Johnson1, Kathleen Beusterien2, Semra Özdemir3, Leslie Wilson4.   

Abstract

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Year:  2017        PMID: 28597374     DOI: 10.1007/s40271-017-0250-z

Source DB:  PubMed          Journal:  Patient        ISSN: 1178-1653            Impact factor:   3.883


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  4 in total

1.  The future of population-based postmarket drug risk assessment: a regulator's perspective.

Authors:  T A Hammad; G A Neyarapally; S Iyasu; J A Staffa; G Dal Pan
Journal:  Clin Pharmacol Ther       Date:  2013-06-05       Impact factor: 6.875

2.  Conjoint analysis applications in health--a checklist: a report of the ISPOR Good Research Practices for Conjoint Analysis Task Force.

Authors:  John F P Bridges; A Brett Hauber; Deborah Marshall; Andrew Lloyd; Lisa A Prosser; Dean A Regier; F Reed Johnson; Josephine Mauskopf
Journal:  Value Health       Date:  2011-04-22       Impact factor: 5.725

3.  Approving a Problematic Muscular Dystrophy Drug: Implications for FDA Policy.

Authors:  Aaron S Kesselheim; Jerry Avorn
Journal:  JAMA       Date:  2016-12-13       Impact factor: 56.272

4.  Incorporating patient-preference evidence into regulatory decision making.

Authors:  Martin P Ho; Juan Marcos Gonzalez; Herbert P Lerner; Carolyn Y Neuland; Joyce M Whang; Michelle McMurry-Heath; A Brett Hauber; Telba Irony
Journal:  Surg Endosc       Date:  2015-01-01       Impact factor: 4.584

  4 in total
  14 in total

1.  Towards Meaningful Engagement for the Patient Voice.

Authors:  Peter J Pitts
Journal:  Patient       Date:  2019-08       Impact factor: 3.883

2.  Incorporating Quantitative Patient Preference Data into Healthcare Decision Making Processes: Is HTA Falling Behind?

Authors:  David John Mott
Journal:  Patient       Date:  2018-06       Impact factor: 3.883

3.  Key Issues and Potential Solutions for Understanding Healthcare Preference Heterogeneity Free from Patient-Level Scale Confounds.

Authors:  Catharina G M Groothuis-Oudshoorn; Terry N Flynn; Hong Il Yoo; Jay Magidson; Mark Oppe
Journal:  Patient       Date:  2018-10       Impact factor: 3.883

4.  Engagement of Canadian Patients with Rare Diseases and Their Families in the Lifecycle of Therapy: A Qualitative Study.

Authors:  Andrea Young; Devidas Menon; Jackie Street; Walla Al-Hertani; Tania Stafinski
Journal:  Patient       Date:  2018-06       Impact factor: 3.883

5.  Advancing the Use of Patient Preference Information as Scientific Evidence in Medical Product Evaluation: A Summary Report of the Patient Preference Workshop.

Authors:  Heather L Benz; Ting-Hsuan Joyce Lee; Jui-Hua Tsai; John F P Bridges; Sara Eggers; Megan Moncur; Fadia T Shaya; Ira Shoulson; Erica S Spatz; Leslie Wilson; Anindita Saha
Journal:  Patient       Date:  2019-12       Impact factor: 3.883

6.  Do preferences differ based on respondent experience of a health issue and its treatment? A case study using a public health intervention.

Authors:  David J Mott; Laura Ternent; Luke Vale
Journal:  Eur J Health Econ       Date:  2022-06-18

7.  Treatment Preferences in Germany Differ Among Apheresis Patients with Severe Hypercholesterolemia.

Authors:  Axel C Mühlbacher; Andrew Sadler; Franz-Werner Dippel; Christin Juhnke
Journal:  Pharmacoeconomics       Date:  2018-04       Impact factor: 4.981

Review 8.  Evaluating Risk Tolerance from a Systematic Review of Preferences: The Case of Patients with Psoriasis.

Authors:  Juan Marcos Gonzalez
Journal:  Patient       Date:  2018-06       Impact factor: 3.883

9.  Research as an event: a novel approach to promote patient-focused drug development.

Authors:  Jui-Hua Tsai; Ellen Janssen; John Fp Bridges
Journal:  Patient Prefer Adherence       Date:  2018-05-03       Impact factor: 2.711

10.  Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis.

Authors:  Karin Schölin Bywall; Jorien Veldwijk; Mats G Hansson; Ulrik Kihlbom
Journal:  Patient       Date:  2019-06       Impact factor: 3.883

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