Literature DB >> 25477745

Understanding Quality of Life in Adults with Spinal Cord Injury Via SCI-Related Needs and Secondary Complications.

Shane N Sweet1, Luc Noreau2, Jean Leblond2, Frédéric S Dumont2.   

Abstract

BACKGROUND: Understanding the factors that can predict greater quality of life (QoL) is important for adults with spinal cord injury (SCI), given that they report lower levels of QoL than the general population.
OBJECTIVES: To build a conceptual model linking SCI-related needs, secondary complications, and QoL in adults with SCI. Prior to testing the conceptual model, we aimed to develop and evaluate the factor structure for both SCI-related needs and secondary complications.
METHODS: Individuals with a traumatic SCI (N = 1,137) responded to an online survey measuring 13 SCI-related needs, 13 secondary complications, and the Life Satisfaction Questionnaire to assess QoL. The SCI-related needs and secondary complications were conceptualized into factors, tested with a confirmatory factor analysis, and subsequently evaluated in a structural equation model to predict QoL.
RESULTS: The confirmatory factor analysis supported a 2-factor model for SCI related needs, χ(2)(61, N = 1,137) = 250.40, P <.001, comparative fit index (CFI) = .93, root mean square error of approximation (RMSEA) = .05, standardized root mean square residual (SRMR) = .04, and for 11 of the 13 secondary complications, χ(2)(44, N = 1,137) = 305.67, P < .001, CFI = .91, RMSEA = .060, SRMR = .033. The final 2 secondary complications were kept as observed constructs. In the structural model, both vital and personal development unmet SCI-related needs (β = -.22 and -.20, P < .05, respectively) and the neuro-physiological systems factor (β = -.45, P < .05) were negatively related with QoL.
CONCLUSIONS: Identifying unmet SCI-related needs of individuals with SCI and preventing or managing secondary complications are essential to their QoL.

Entities:  

Keywords:  life satisfaction; needs; quality of life; secondary complications; spinal cord injury

Year:  2014        PMID: 25477745      PMCID: PMC4252132          DOI: 10.1310/sci2004-321

Source DB:  PubMed          Journal:  Top Spinal Cord Inj Rehabil        ISSN: 1082-0744


  19 in total

Review 1.  Associations between psychological factors and quality of life ratings in persons with spinal cord injury: a systematic review.

Authors:  C M C van Leeuwen; S Kraaijeveld; E Lindeman; M W M Post
Journal:  Spinal Cord       Date:  2011-11-01       Impact factor: 2.772

2.  Impact of fatigue on the health-related quality of life in persons with spinal cord injury.

Authors:  Nirupama Wijesuriya; Yvonne Tran; James Middleton; Ashley Craig
Journal:  Arch Phys Med Rehabil       Date:  2012-02       Impact factor: 3.966

3.  Sir Ludwig Guttmann Lecture: trends in spinal cord injury rehabilitation outcomes from model systems in the United States: 1973-2006.

Authors:  M J DeVivo
Journal:  Spinal Cord       Date:  2007-02-06       Impact factor: 2.772

4.  Predictors of health status and life satisfaction in spinal cord injury.

Authors:  M W Post; L P de Witte; F W van Asbeck; A J van Dijk; A J Schrijvers
Journal:  Arch Phys Med Rehabil       Date:  1998-04       Impact factor: 3.966

5.  Relationships between activities, participation, personal factors, mental health, and life satisfaction in persons with spinal cord injury.

Authors:  Christel M van Leeuwen; Marcel W Post; Paul Westers; Lucas H van der Woude; Sonja de Groot; Tebbe Sluis; Hans Slootman; Eline Lindeman
Journal:  Arch Phys Med Rehabil       Date:  2011-10-05       Impact factor: 3.966

6.  Spinal cord injury community survey: a national, comprehensive study to portray the lives of canadians with spinal cord injury.

Authors:  Luc Noreau; Vanessa K Noonan; John Cobb; Jean Leblond; Frédéric S Dumont
Journal:  Top Spinal Cord Inj Rehabil       Date:  2014

7.  Association between unmet needs and quality of life of cancer patients: a population-based study.

Authors:  Dorte Gilså Hansen; Pia Veldt Larsen; Lise Vilstrup Holm; Nina Rottmann; Stinne Holm Bergholdt; Jens Søndergaard
Journal:  Acta Oncol       Date:  2012-12-17       Impact factor: 4.089

Review 8.  Exploring quality of life following high spinal cord injury: a review and critique.

Authors:  K Whalley Hammell
Journal:  Spinal Cord       Date:  2004-09       Impact factor: 2.772

Review 9.  Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application.

Authors:  Marika J Hess; Sigmund Hough
Journal:  J Spinal Cord Med       Date:  2012-07       Impact factor: 1.985

10.  Recovery of life satisfaction in persons with spinal cord injury during inpatient rehabilitation.

Authors:  Casper F van Koppenhagen; Marcel W Post; Luc H van der Woude; Sonja de Groot; Luc P de Witte; Floris W van Asbeck; Wim van den Heuvel; Eline Lindeman
Journal:  Am J Phys Med Rehabil       Date:  2009-11       Impact factor: 2.159

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  7 in total

1.  Prevalence of secondary medical complications and risk factors for pressure ulcers after traumatic spinal cord injury during acute care in South Africa.

Authors:  C Joseph; L Nilsson Wikmar
Journal:  Spinal Cord       Date:  2015-10-20       Impact factor: 2.772

2.  Development of the International Spinal Cord Injury Activities and Participation Basic Data Set.

Authors:  M W Post; S Charlifue; F Biering-Sørensen; A Catz; M P Dijkers; J Horsewell; V K Noonan; L Noreau; D G Tate; K A Sinnott
Journal:  Spinal Cord       Date:  2015-10-20       Impact factor: 2.772

3.  Treatment patterns of in-patient spasticity medication use after traumatic spinal cord injury: a prospective cohort study.

Authors:  Kaila A Holtz; Elena Szefer; Vanessa K Noonan; Brian K Kwon; Patricia B Mills
Journal:  Spinal Cord       Date:  2018-06-14       Impact factor: 2.772

4.  Relational empathy and holistic care in persons with spinal cord injuries.

Authors:  Sherri L LaVela; Allen W Heinemann; Bella Etingen; Ana Miskovic; Sara M Locatelli; David Chen
Journal:  J Spinal Cord Med       Date:  2015-12-17       Impact factor: 1.985

Review 5.  Integrating the perspectives of individuals with spinal cord injuries, their family caregivers and healthcare professionals from the time of rehabilitation admission to community reintegration: protocol for a scoping study on SCI needs.

Authors:  Alexander Moreno; Diana Zidarov; Chandhana Raju; Jill Boruff; Sara Ahmed
Journal:  BMJ Open       Date:  2017-08-04       Impact factor: 2.692

6.  Traumatic Spinal Cord Injury Care in Canada: A Survey of Canadian Centers.

Authors:  Vanessa K Noonan; Elaine Chan; Argelio Santos; Lesley Soril; Rachel Lewis; Anoushka Singh; Christiana L Cheng; Colleen O'Connell; Catherine Truchon; Jérôme Paquet; Sean Christie; Karen Ethans; Eve Tsai; Michael H Ford; Brian Drew; A Gary Linassi; Christopher S Bailey; Michael G Fehlings
Journal:  J Neurotrauma       Date:  2017-05-18       Impact factor: 5.269

7.  A Telerehabilitation Approach to Enhance Quality of Life Through Exercise Among Adults With Paraplegia: Study Protocol.

Authors:  Shane Norman Sweet; Meredith Rocchi; Kelly Arbour-Nicitopoulos; Dahlia Kairy; Brigitte Fillion
Journal:  JMIR Res Protoc       Date:  2017-10-19
  7 in total

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