Literature DB >> 25326433

Genetic data sharing and privacy.

Marco D Sorani1, John K Yue, Sourabh Sharma, Geoffrey T Manley, Adam R Ferguson.   

Abstract

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Year:  2015        PMID: 25326433      PMCID: PMC5718357          DOI: 10.1007/s12021-014-9248-z

Source DB:  PubMed          Journal:  Neuroinformatics        ISSN: 1539-2791


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  48 in total

1.  Secure de-identification and re-identification.

Authors:  William Landi; R Bharat Rao
Journal:  AMIA Annu Symp Proc       Date:  2003

Review 2.  Balancing access to health data and privacy: a review of the issues and approaches for the future.

Authors:  Julia Lane; Claudia Schur
Journal:  Health Serv Res       Date:  2010-08-02       Impact factor: 3.402

3.  An evaluation of the current state of genomic data privacy protection technology and a roadmap for the future.

Authors:  Bradley A Malin
Journal:  J Am Med Inform Assoc       Date:  2004-10-18       Impact factor: 4.497

4.  Genetic privacy needs a more nuanced approach.

Authors:  Misha Angrist
Journal:  Nature       Date:  2013-02-07       Impact factor: 49.962

5.  Using global unique identifiers to link autism collections.

Authors:  Stephen B Johnson; Glen Whitney; Matthew McAuliffe; Hailong Wang; Evan McCreedy; Leon Rozenblit; Clark C Evans
Journal:  J Am Med Inform Assoc       Date:  2010 Nov-Dec       Impact factor: 4.497

Review 6.  Delivery of genomic medicine for common chronic adult diseases: a systematic review.

Authors:  Maren T Scheuner; Pauline Sieverding; Paul G Shekelle
Journal:  JAMA       Date:  2008-03-19       Impact factor: 56.272

7.  Acute biomarkers of traumatic brain injury: relationship between plasma levels of ubiquitin C-terminal hydrolase-L1 and glial fibrillary acidic protein.

Authors:  Ramon Diaz-Arrastia; Kevin K W Wang; Linda Papa; Marco D Sorani; John K Yue; Ava M Puccio; Paul J McMahon; Tomoo Inoue; Esther L Yuh; Hester F Lingsma; Andrew I R Maas; Alex B Valadka; David O Okonkwo; Geoffrey T Manley
Journal:  J Neurotrauma       Date:  2013-10-09       Impact factor: 5.269

8.  Neuroscience research on the addictions: a prospectus for future ethical and policy analysis.

Authors:  Wayne Hall; Lucy Carter; Katherine I Morley
Journal:  Addict Behav       Date:  2004-09       Impact factor: 3.913

9.  Transforming research and clinical knowledge in traumatic brain injury pilot: multicenter implementation of the common data elements for traumatic brain injury.

Authors:  John K Yue; Mary J Vassar; Hester F Lingsma; Shelly R Cooper; David O Okonkwo; Alex B Valadka; Wayne A Gordon; Andrew I R Maas; Pratik Mukherjee; Esther L Yuh; Ava M Puccio; David M Schnyer; Geoffrey T Manley
Journal:  J Neurotrauma       Date:  2013-09-24       Impact factor: 5.269

10.  The impact of previous traumatic brain injury on health and functioning: a TRACK-TBI study.

Authors:  Kristen Dams-O'Connor; Lisa Spielman; Ayushi Singh; Wayne A Gordon; Hester F Lingsma; Andrew I R Maas; Geoffrey T Manley; Pratik Mukherjee; David O Okonkwo; Ava M Puccio; David M Schnyer; Alex B Valadka; John K Yue; Esther L Yuh
Journal:  J Neurotrauma       Date:  2013-10-23       Impact factor: 5.269

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Review 1.  Neurotransmitter changes after traumatic brain injury: an update for new treatment strategies.

Authors:  Jennifer L McGuire; Laura B Ngwenya; Robert E McCullumsmith
Journal:  Mol Psychiatry       Date:  2018-09-13       Impact factor: 15.992

Review 2.  Precision and Personalized Medicine: How Genomic Approach Improves the Management of Cardiovascular and Neurodegenerative Disease.

Authors:  Oriana Strianese; Francesca Rizzo; Michele Ciccarelli; Gennaro Galasso; Ylenia D'Agostino; Annamaria Salvati; Carmine Del Giudice; Paola Tesorio; Maria Rosaria Rusciano
Journal:  Genes (Basel)       Date:  2020-07-06       Impact factor: 4.096

3.  Motives of contributing personal data for health research: (non-)participation in a Dutch biobank.

Authors:  R Broekstra; E L M Maeckelberghe; J L Aris-Meijer; R P Stolk; S Otten
Journal:  BMC Med Ethics       Date:  2020-07-25       Impact factor: 2.652

4.  Reinterpretation, reclassification, and its downstream effects: challenges for clinical laboratory geneticists.

Authors:  Julia El Mecky; Lennart Johansson; Mirjam Plantinga; Angela Fenwick; Anneke Lucassen; Trijnie Dijkhuizen; Annemieke van der Hout; Kate Lyle; Irene van Langen
Journal:  BMC Med Genomics       Date:  2019-11-29       Impact factor: 3.063

5.  Current Issues on Research Conducted to Improve Women's Health.

Authors:  Charalampos Siristatidis; Vasilios Karageorgiou; Paraskevi Vogiatzi
Journal:  Healthcare (Basel)       Date:  2021-01-17

6.  Genetic/genomic testing: defining the parameters for ethical, legal and social implications (ELSI).

Authors:  Tania Ascencio-Carbajal; Garbiñe Saruwatari-Zavala; Fernando Navarro-Garcia; Eugenio Frixione
Journal:  BMC Med Ethics       Date:  2021-11-23       Impact factor: 2.652

7.  Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic.

Authors:  Lingqiao Song; Hanshi Liu; Fiona S L Brinkman; Erin Gill; Emma J Griffiths; William W L Hsiao; Sarah Savić-Kallesøe; Sandrine Moreira; Gary Van Domselaar; Ma'n H Zawati; Yann Joly
Journal:  Front Genet       Date:  2022-03-24       Impact factor: 4.599

  7 in total

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