Literature DB >> 25276494

Barriers to the Use of Psychosocial Support Services Among Adolescent and Young Adult Survivors of Pediatric Cancer.

Molly H Gardner1, Margaux J Barnes1, Shilpa Bopanna1, Caroline S Davis2, Pat B Cotton3, Bethany L Heron3, Alison Henninger3, Elizabeth Alva2, Michael W Gleason2, Kimberly F Whelan2, Avi Madan-Swain2.   

Abstract

Purpose: Adolescent and young adult (AYA) survivors of pediatric cancer commonly report both functional and emotional difficulties, yet many of their mental health needs are not met. Given the unique needs of these survivors, this study examined barriers to psychosocial support service utilization in this population, including accessibility, personal preferences, and practical barriers such as insurance and transportation.
Methods: Thirty-six adolescent and young adult survivors of pediatric cancer (aged 15-29) with mental health difficulties (i.e., anxiety or depression) completed surveys assessing access and utilization of services and barriers to utilization. Services assessed included the use of mental health professionals, a pastor or someone in a place of worship, and support groups.
Results: Half of the participants utilized a mental health professional, but other forms of support were used less frequently. Utilization of services was related to insurance status and use of prescription medication. Greater time since completion of treatment was a barrier to utilizing psychosocial support services.
Conclusion: Use of psychosocial support services is linked closely with use of other healthcare services, including taking prescription medication for mood difficulties. Results have implications for how primary care and oncology providers address barriers to these services among AYA survivors of pediatric cancer.

Entities:  

Keywords:  barriers; healthcare utilization; psychosocial support services; survivorship

Year:  2014        PMID: 25276494      PMCID: PMC4170808          DOI: 10.1089/jayao.2013.0036

Source DB:  PubMed          Journal:  J Adolesc Young Adult Oncol        ISSN: 2156-5333            Impact factor:   2.223


  21 in total

1.  Psychological functioning of adolescent and young adult survivors of pediatric malignancy.

Authors:  T D Elkin; S Phipps; R K Mulhern; D Fairclough
Journal:  Med Pediatr Oncol       Date:  1997-12

2.  Insurance coverage and the treatment of mental illness: effect on medication and provider use.

Authors:  Gillian Mulvale; Jeremiah Hurley
Journal:  J Ment Health Policy Econ       Date:  2008-12

3.  Young adult survivors of childhood cancer; experiences affecting self-image, relationships, and present life.

Authors:  Karin Enskär; Carina Berterö
Journal:  Cancer Nurs       Date:  2010 Jan-Feb       Impact factor: 2.592

4.  Adolescent behavior and adult health status in childhood cancer survivors.

Authors:  Kevin R Krull; Sujuan Huang; James G Gurney; James L Klosky; Wendy Leisenring; Amanda Termuhlen; Kirsten K Ness; Deo Kumar Srivastava; Ann Mertens; Marilyn Stovall; Leslie L Robison; Melissa M Hudson
Journal:  J Cancer Surviv       Date:  2010-04-11       Impact factor: 4.442

5.  Posttraumatic stress and related impairment in survivors of childhood cancer in early adulthood compared to healthy peers.

Authors:  Lisa Schwartz; Dennis Drotar
Journal:  J Pediatr Psychol       Date:  2005-03-23

6.  Unemployment among adult survivors of childhood cancer: a report from the childhood cancer survivor study.

Authors:  Anne C Kirchhoff; Wendy Leisenring; Kevin R Krull; Kirsten K Ness; Debra L Friedman; Gregory T Armstrong; Marilyn Stovall; Elyse R Park; Kevin C Oeffinger; Melissa M Hudson; Leslie L Robison; Thomas Wickizer
Journal:  Med Care       Date:  2010-11       Impact factor: 2.983

7.  Use of formal and informal mental health resources by cancer survivors: differences between rural and nonrural survivors and a preliminary test of the theory of planned behavior.

Authors:  Michael A Andrykowski; Jessica L Burris
Journal:  Psychooncology       Date:  2010-11       Impact factor: 3.894

8.  Quality of life, self-esteem and worries in young adult survivors of childhood cancer.

Authors:  N E Langeveld; M A Grootenhuis; P A Voûte; R J de Haan; C van den Bos
Journal:  Psychooncology       Date:  2004-12       Impact factor: 3.894

9.  Mental health service use among young children receiving pediatric primary care.

Authors:  J V Lavigne; R Arend; D Rosenbaum; H J Binns; K K Christoffel; A Burns; A Smith
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  1998-11       Impact factor: 8.829

Review 10.  An international review of the patterns and determinants of health service utilisation by adult cancer survivors.

Authors:  Charlene Treanor; Michael Donnelly
Journal:  BMC Health Serv Res       Date:  2012-09-13       Impact factor: 2.655

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  3 in total

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Authors:  Jacqueline Casillas; Anju Goyal; Jason Bryman; Faisal Alquaddoomi; Patricia A Ganz; Emma Lidington; Joshua Macadangdang; Deborah Estrin
Journal:  J Cancer Surviv       Date:  2017-03-31       Impact factor: 4.442

2.  Guided internet-administered self-help to reduce symptoms of anxiety and depression among adolescents and young adults diagnosed with cancer during adolescence (U-CARE: YoungCan): a study protocol for a feasibility trial.

Authors:  Malin Ander; Anna Wikman; Brjánn Ljótsson; Helena Grönqvist; Gustaf Ljungman; Joanne Woodford; Annika Lindahl Norberg; Louise von Essen
Journal:  BMJ Open       Date:  2017-01-27       Impact factor: 2.692

3.  Insurance Coverage, and Having a Regular Provider, and Utilization of Cancer Follow-up and Noncancer Health Care Among Childhood Cancer Survivors.

Authors:  Michael R Cousineau; Sue E Kim; Ann S Hamilton; Kimberly A Miller; Joel Milam
Journal:  Inquiry       Date:  2019 Jan-Dec       Impact factor: 2.099

  3 in total

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