Literature DB >> 19926973

Young adult survivors of childhood cancer; experiences affecting self-image, relationships, and present life.

Karin Enskär1, Carina Berterö.   

Abstract

Knowledge about how young adults experience being a childhood cancer survivor is limited, as most previous research concerning the quality of life in survivors of childhood cancer has been conducted using standardized questionnaires. The aim of the current study was to identify and describe young adults' own experiences of long-term effects of cancer treatment on their self-image, relationships, and present life related to the impact of being a survivor of childhood cancer. Interviews were held with 7 young adults, 20 to 23 years of age. The verbatim-transcribed interviews were analyzed using constant comparative analysis. The core category was identified as "compensated life picture." All the negative and difficult experiences are compensated for with a positive view on and positive expectations regarding life. This core category was grounded in 5 categories: living a normal life, bodily changes, relationships with and support from others nearby, sentient life, and personal growth. The findings in this study illustrate the importance for healthcare staff to be aware of young adult survivors' experiences of their childhood cancer and its long-term effects. Extra attention and support from the healthcare system after the concluded treatment period are needed via a support program or support group for young adults.

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Year:  2010        PMID: 19926973     DOI: 10.1097/NCC.0b013e3181b6365a

Source DB:  PubMed          Journal:  Cancer Nurs        ISSN: 0162-220X            Impact factor:   2.592


  12 in total

1.  Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Authors:  Alex W K Wong; Ting-Ting Chang; Katrina Christopher; Stephen C L Lau; Lynda K Beaupin; Brad Love; Kim L Lipsey; Michael Feuerstein
Journal:  J Cancer Surviv       Date:  2017-03-29       Impact factor: 4.442

2.  Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies.

Authors:  Chandylen L Nightingale; Gwendolyn P Quinn; Elizabeth A Shenkman; Barbara A Curbow; Bradley J Zebrack; Kevin R Krull; I-Chan Huang
Journal:  J Adolesc Young Adult Oncol       Date:  2011-09       Impact factor: 2.223

3.  Using three legacy measures to develop a health-related quality of life tool for young adult survivors of childhood cancer.

Authors:  I-Chan Huang; Gwendolyn P Quinn; Pey-Shan Wen; Elizabeth A Shenkman; Dennis A Revicki; Kevin Krull; Zhushan Li; Patricia D Shearer
Journal:  Qual Life Res       Date:  2011-11-20       Impact factor: 4.147

4.  Head-to-head comparisons of quality of life instruments for young adult survivors of childhood cancer.

Authors:  I-Chan Huang; Gwendolyn P Quinn; Kevin Krull; Katie Z Eddleton; Devin C Murphy; Elizabeth A Shenkman; Patricia D Shearer
Journal:  Support Care Cancer       Date:  2011-11-22       Impact factor: 3.603

5.  Barriers to the Use of Psychosocial Support Services Among Adolescent and Young Adult Survivors of Pediatric Cancer.

Authors:  Molly H Gardner; Margaux J Barnes; Shilpa Bopanna; Caroline S Davis; Pat B Cotton; Bethany L Heron; Alison Henninger; Elizabeth Alva; Michael W Gleason; Kimberly F Whelan; Avi Madan-Swain
Journal:  J Adolesc Young Adult Oncol       Date:  2014-09-01       Impact factor: 2.223

6.  How confident are young adult cancer survivors in managing their survivorship care? A report from the LIVESTRONG™ Survivorship Center of Excellence Network.

Authors:  Jacqueline Casillas; Karen L Syrjala; Patricia A Ganz; Emy Hammond; Alfred C Marcus; Kerry M Moss; Catherine M Crespi; Peiyun Lu; Mary S McCabe; Jennifer S Ford; Linda A Jacobs; Donna Pucci; Steven C Palmer; Amanda M Termuhlen; Lisa Diller; Marci Campbell; Barbara Jones; Debra L Friedman
Journal:  J Cancer Surviv       Date:  2011-11-02       Impact factor: 4.442

7.  Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients?

Authors:  Samantha J Anthony; Enid Selkirk; Lillian Sung; Robert J Klaassen; David Dix; Anne F Klassen
Journal:  Qual Life Res       Date:  2016-08-24       Impact factor: 4.147

8.  Romantic Relationships and Physical Intimacy Among Survivors of Childhood Cancer.

Authors:  Leena Nahata; Taylor L Morgan; Keagan G Lipak; Randal S Olshefski; Cynthia A Gerhardt; Vicky Lehmann
Journal:  J Adolesc Young Adult Oncol       Date:  2019-11-13       Impact factor: 2.223

9.  Quality of Life and Psychopathology in Adults Who Underwent Hematopoietic Stem Cell Transplantation (HSCT) in Childhood: A Qualitative and Quantitative Analysis.

Authors:  Francesco Sinatora; Annalisa Traverso; Silvia Zanato; Nicoletta Di Florio; Alessio Porreca; Marta Tremolada; Valentina Boscolo; Antonio Marzollo; Chiara Mainardi; Elisabetta Calore; Marta Pillon; Chiara Cattelan; Giuseppe Basso; Chiara Messina
Journal:  Front Psychol       Date:  2017-08-08

10.  Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden.

Authors:  Vicky Lehmann; Helena Grönqvist; Gunn Engvall; Malin Ander; Marrit A Tuinman; Mariët Hagedoorn; Robbert Sanderman; Elisabet Mattsson; Louise von Essen
Journal:  Psychooncology       Date:  2014-04-15       Impact factor: 3.894

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