Jacqueline Casillas1,2, Anju Goyal3, Jason Bryman4, Faisal Alquaddoomi5, Patricia A Ganz6,3,7, Emma Lidington8, Joshua Macadangdang9, Deborah Estrin10,11. 1. Department of Pediatrics, Hematology-Oncology, UCLA David Geffen School of Medicine, Los Angeles, CA, USA. jcasillas@mednet.ucla.edu. 2. Division of Cancer Prevention and Control Research, UCLA Jonsson Comprehensive Cancer Center, Los Angeles, CA, USA. jcasillas@mednet.ucla.edu. 3. UCLA David Geffen School of Medicine, Los Angeles, CA, USA. 4. University of Illinois College of Medicine at Peoria, Peoria, IL, USA. 5. Department of Computer Science, UCLA, Los Angeles, CA, USA. 6. Division of Cancer Prevention and Control Research, UCLA Jonsson Comprehensive Cancer Center, Los Angeles, CA, USA. 7. Department of Health Policy and Management, UCLA Fielding School of Public Health, Los Angeles, CA, USA. 8. London School of Hygiene and Tropical Medicine, London, Eng, UK. 9. Department of Pediatrics, Hematology-Oncology, UCLA David Geffen School of Medicine, Los Angeles, CA, USA. 10. Department of Computer Science, Cornell Tech, New York, NY, USA. 11. Department of Healthcare Policy and Research, Weill Cornell Medical College in New York City, New York, NY, USA.
Abstract
PURPOSE: This study aimed to develop and examine the acceptability, feasibility, and usability of a text messaging, or Short Message Service (SMS), system for improving the receipt of survivorship care for adolescent and young adult (AYA) survivors of childhood cancer. METHODS: Researchers developed and refined the text messaging system based on qualitative data from AYA survivors in an iterative three-stage process. In stage 1, a focus group (n = 4) addressed acceptability; in stage 2, key informant interviews (n = 10) following a 6-week trial addressed feasibility; and in stage 3, key informant interviews (n = 23) following a 6-week trial addressed usability. Qualitative data were analyzed using a constant comparative analytic approach exploring in-depth themes. RESULTS: The final system includes programmed reminders to schedule and attend late effect screening appointments, tailored suggestions for community resources for cancer survivors, and messages prompting participant feedback regarding the appointments and resources. Participants found the text messaging system an acceptable form of communication, the screening reminders and feedback prompts feasible for improving the receipt of survivorship care, and the tailored suggestions for community resources usable for connecting survivors to relevant services. Participants suggested supplementing survivorship care visits and forming AYA survivor social networks as future implementations for the text messaging system. CONCLUSIONS: The text messaging system may assist AYA survivors by coordinating late effect screening appointments, facilitating a partnership with the survivorship care team, and connecting survivors with relevant community resources. IMPLICATIONS FOR CANCER SURVIVORS: The text messaging system has the potential to improve the receipt of survivorship care.
PURPOSE: This study aimed to develop and examine the acceptability, feasibility, and usability of a text messaging, or Short Message Service (SMS), system for improving the receipt of survivorship care for adolescent and young adult (AYA) survivors of childhood cancer. METHODS: Researchers developed and refined the text messaging system based on qualitative data from AYA survivors in an iterative three-stage process. In stage 1, a focus group (n = 4) addressed acceptability; in stage 2, key informant interviews (n = 10) following a 6-week trial addressed feasibility; and in stage 3, key informant interviews (n = 23) following a 6-week trial addressed usability. Qualitative data were analyzed using a constant comparative analytic approach exploring in-depth themes. RESULTS: The final system includes programmed reminders to schedule and attend late effect screening appointments, tailored suggestions for community resources for cancer survivors, and messages prompting participant feedback regarding the appointments and resources. Participants found the text messaging system an acceptable form of communication, the screening reminders and feedback prompts feasible for improving the receipt of survivorship care, and the tailored suggestions for community resources usable for connecting survivors to relevant services. Participants suggested supplementing survivorship care visits and forming AYA survivor social networks as future implementations for the text messaging system. CONCLUSIONS: The text messaging system may assist AYA survivors by coordinating late effect screening appointments, facilitating a partnership with the survivorship care team, and connecting survivors with relevant community resources. IMPLICATIONS FOR CANCER SURVIVORS: The text messaging system has the potential to improve the receipt of survivorship care.
Entities:
Keywords:
Adolescent and young adult; Late effects; Mobile device; SMS; Survivorship; Text message
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