Literature DB >> 25202033

Palliative Care Issues in Amyotrophic Lateral Sclerosis: An Evidenced-Based Review.

Chafic Y Karam1, Sabrina Paganoni2, Nanette Joyce3, Gregory T Carter4, Richard Bedlack5.   

Abstract

As palliative care physicians become increasingly involved in the care of patients with amyotrophic lateral sclerosis (ALS), they will be asked to provide guidance regarding the use of supplements, diet, exercise, and other common preventive medicine interventions. Moreover, palliative care physicians have a crucial role assisting patients with ALS in addressing health care decisions to maximize quality of life and cope with a rapidly disabling disease. It is therefore important for palliative care physicians to be familiar with commonly encountered palliative care issues in ALS. This article provides an evidenced-based review of palliative care options not usually addressed in national and international ALS guidelines.
© The Author(s) 2014.

Entities:  

Keywords:  alternative medicine; amyotrophic lateral sclerosis; hospice; palliative care; quality of life

Mesh:

Year:  2014        PMID: 25202033      PMCID: PMC4439378          DOI: 10.1177/1049909114548719

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN: 1049-9091            Impact factor:   2.500


  76 in total

1.  Sensitivity to curare in patients with upper and lower motor neurone dysfunction.

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Review 2.  Statins and amyotrophic lateral sclerosis: a systematic review and meta-analysis.

Authors:  Zhenzhen Zheng; Liqin Sheng; Huifang Shang
Journal:  Amyotroph Lateral Scler Frontotemporal Degener       Date:  2012-10-24       Impact factor: 4.092

Review 3.  The use of botulinum toxin injections to manage drooling in amyotrophic lateral sclerosis/motor neurone disease: a systematic review.

Authors:  Nina Squires; Miles Humberstone; Adrian Wills; Antony Arthur
Journal:  Dysphagia       Date:  2014-05-22       Impact factor: 3.438

Review 4.  Creatine for amyotrophic lateral sclerosis/motor neuron disease.

Authors:  Daniel M Pastula; Dan H Moore; Richard S Bedlack
Journal:  Cochrane Database Syst Rev       Date:  2012-12-12

5.  [Use of sugammadex in a patient with amyotrophic lateral sclerosis].

Authors:  Mayuko Wachi; Kenji Uehara; Waso Fujinaka; Makoto Takatori; Keiichi Tada
Journal:  Masui       Date:  2011-12

6.  Efficacy of minocycline in patients with amyotrophic lateral sclerosis: a phase III randomised trial.

Authors:  Paul H Gordon; Dan H Moore; Robert G Miller; Julaine M Florence; Joseph L Verheijde; Carolyn Doorish; Joan F Hilton; G Mark Spitalny; Robert B MacArthur; Hiroshi Mitsumoto; Hans E Neville; Kevin Boylan; Tahseen Mozaffar; Jerry M Belsh; John Ravits; Richard S Bedlack; Michael C Graves; Leo F McCluskey; Richard J Barohn; Rup Tandan
Journal:  Lancet Neurol       Date:  2007-11-05       Impact factor: 44.182

7.  Severe hypercapnia after low-flow oxygen therapy in patients with neuromuscular disease and diaphragmatic dysfunction.

Authors:  P C Gay; L C Edmonds
Journal:  Mayo Clin Proc       Date:  1995-04       Impact factor: 7.616

Review 8.  Body mass index and dietary intervention: implications for prognosis of amyotrophic lateral sclerosis.

Authors:  S T Ngo; F J Steyn; P A McCombe
Journal:  J Neurol Sci       Date:  2014-03-03       Impact factor: 3.181

9.  Phase II trial of CoQ10 for ALS finds insufficient evidence to justify phase III.

Authors:  Petra Kaufmann; John L P Thompson; Gilberto Levy; Richard Buchsbaum; Jeremy Shefner; Lisa S Krivickas; Jonathan Katz; Yvonne Rollins; Richard J Barohn; Carlayne E Jackson; Ezgi Tiryaki; Catherine Lomen-Hoerth; Carmel Armon; Rup Tandan; Stacy A Rudnicki; Kourosh Rezania; Robert Sufit; Alan Pestronk; Steven P Novella; Terry Heiman-Patterson; Edward J Kasarskis; Erik P Pioro; Jacqueline Montes; Rachel Arbing; Darleen Vecchio; Alexandra Barsdorf; Hiroshi Mitsumoto; Bruce Levin
Journal:  Ann Neurol       Date:  2009-08       Impact factor: 10.422

10.  Vitamin D(3) at 50x AI attenuates the decline in paw grip endurance, but not disease outcomes, in the G93A mouse model of ALS, and is toxic in females.

Authors:  Alexandro Gianforcaro; Jesse A Solomon; Mazen J Hamadeh
Journal:  PLoS One       Date:  2013-02-06       Impact factor: 3.240

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  9 in total

Review 1.  Complementary and Alternative Therapies in Amyotrophic Lateral Sclerosis.

Authors:  Richard S Bedlack; Nanette Joyce; Gregory T Carter; Sabrina Paganoni; Chafic Karam
Journal:  Neurol Clin       Date:  2015-09-08       Impact factor: 3.806

Review 2.  Palliative care interventions for people with multiple sclerosis.

Authors:  Carolina Oc Latorraca; Ana Luiza C Martimbianco; Daniela V Pachito; Maria Regina Torloni; Rafael L Pacheco; Juliana Gomes Pereira; Rachel Riera
Journal:  Cochrane Database Syst Rev       Date:  2019-10-22

3.  Embedded Palliative Care for Amyotrophic Lateral Sclerosis: A Pilot Program and Lessons Learned.

Authors:  Kelly Fahrner-Scott; Carly Zapata; David L O'Riordan; Eve Cohen; Laura Rosow; Steven Z Pantilat; Catherine Lomen-Hoerth; Kara E Bischoff
Journal:  Neurol Clin Pract       Date:  2022-02

Review 4.  Comprehensive rehabilitative care across the spectrum of amyotrophic lateral sclerosis.

Authors:  Sabrina Paganoni; Chafic Karam; Nanette Joyce; Richard Bedlack; Gregory T Carter
Journal:  NeuroRehabilitation       Date:  2015       Impact factor: 2.138

5.  Exploring the Use of Educational Material About Shoulder Dysfunction: A Quality Improvement Project in People With Amyotrophic Lateral Sclerosis.

Authors:  Katherine Burke; Amy Swartz Ellrodt; Jason Levine; Taylor Adams; Rebecca Allis; Ian Macmurdie; Sabrina Paganoni
Journal:  Am J Phys Med Rehabil       Date:  2018-05       Impact factor: 2.159

6.  Palliative Care Nursing in Australia and the Role of the Registered Nurse in Palliative Care.

Authors:  Rajkumar Cheluvappa; Selwyn Selvendran
Journal:  Nurs Rep       Date:  2022-08-12

Review 7.  The effects of diet and sex in amyotrophic lateral sclerosis.

Authors:  J A Pape; J H Grose
Journal:  Rev Neurol (Paris)       Date:  2020-03-05       Impact factor: 2.607

8.  Alleviation of Psychological Distress and the Improvement of Quality of Life in Patients With Amyotrophic Lateral Sclerosis: Adaptation of a Short-Term Psychotherapeutic Intervention.

Authors:  Moritz Caspar Franz Oberstadt; Peter Esser; Joseph Classen; Anja Mehnert
Journal:  Front Neurol       Date:  2018-04-16       Impact factor: 4.003

Review 9.  Nursing care (palliative medicine) in patients with neuropsychiatric disorders.

Authors:  Fatemeh Rezaei; Nasibeh Reamazannezhad; Maedeh Faraji Douki; Fataneh Sabzalipour Shayadeh; Elahe Nejati; Zaynab Ahmadian
Journal:  J Family Med Prim Care       Date:  2020-01-28
  9 in total

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