Sofia F Garcia1, Elizabeth A Hahn2, Susan Magasi3, Jin-Shei Lai2, Patrick Semik4, Joy Hammel3, Allen W Heinemann5. 1. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Psychiatry and Behavioral Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL; Institute for Public Health and Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL. Electronic address: sofia-garcia@northwestern.edu. 2. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL; Institute for Public Health and Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL. 3. Department of Occupational Therapy, University of Illinois at Chicago, Chicago, IL. 4. Rehabilitation Institute of Chicago, Chicago, IL. 5. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL; Institute for Public Health and Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL; Rehabilitation Institute of Chicago, Chicago, IL; Department of Physical Medicine and Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, IL.
Abstract
OBJECTIVE: To describe the development of new self-report measures of social attitudes that act as environmental facilitators or barriers to the participation of people with disabilities in society. DESIGN: A mixed-methods approach included a literature review; item classification, selection, and writing; cognitive interviews and field testing of participants with spinal cord injury (SCI), traumatic brain injury (TBI), or stroke; and rating scale analysis to evaluate initial psychometric properties. SETTING: General community. PARTICIPANTS: Individuals with SCI, TBI, or stroke participated in cognitive interviews (n=9); community residents with those same conditions participated in field testing (n=305). INTERVENTIONS: None. MAIN OUTCOME MEASURE: Self-report item pool of social attitudes that act as facilitators or barriers to people with disabilities participating in society. RESULTS: An interdisciplinary team of experts classified 710 existing social environment items into content areas and wrote 32 new items. Additional qualitative item review included item refinement and winnowing of the pool prior to cognitive interviews and field testing of 82 items. Field test data indicated that the pool satisfies a 1-parameter item response theory measurement model and would be appropriate for development into a calibrated item bank. CONCLUSIONS: Our qualitative item review process supported a social environment conceptual framework that includes both social support and social attitudes. We developed a new social attitudes self-report item pool. Calibration testing of that pool is underway with a larger sample to develop a social attitudes item bank for persons with disabilities.
OBJECTIVE: To describe the development of new self-report measures of social attitudes that act as environmental facilitators or barriers to the participation of people with disabilities in society. DESIGN: A mixed-methods approach included a literature review; item classification, selection, and writing; cognitive interviews and field testing of participants with spinal cord injury (SCI), traumatic brain injury (TBI), or stroke; and rating scale analysis to evaluate initial psychometric properties. SETTING: General community. PARTICIPANTS: Individuals with SCI, TBI, or stroke participated in cognitive interviews (n=9); community residents with those same conditions participated in field testing (n=305). INTERVENTIONS: None. MAIN OUTCOME MEASURE: Self-report item pool of social attitudes that act as facilitators or barriers to people with disabilities participating in society. RESULTS: An interdisciplinary team of experts classified 710 existing social environment items into content areas and wrote 32 new items. Additional qualitative item review included item refinement and winnowing of the pool prior to cognitive interviews and field testing of 82 items. Field test data indicated that the pool satisfies a 1-parameter item response theory measurement model and would be appropriate for development into a calibrated item bank. CONCLUSIONS: Our qualitative item review process supported a social environment conceptual framework that includes both social support and social attitudes. We developed a new social attitudes self-report item pool. Calibration testing of that pool is underway with a larger sample to develop a social attitudes item bank for persons with disabilities.
Keywords:
Environment; International classification of functioning, disability and health; Qualitative research; Questionnaires; Rehabilitation; Social environment; Social participation
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