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Literature DB >> 25043364

Have we asked too much of consent?

Barbara A Koenig.

Abstract

Entities: Gene Species

Mesh：

Year: 2014 PMID： 25043364 PMCID： PMC4249719 DOI： 10.1002/hast.329

Source DB: PubMed Journal: Hastings Cent Rep ISSN： 0093-0334 Impact factor: 2.683

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4 in total

Review 1. Is informed consent broken?

Authors: Gail E Henderson
Journal: Am J Med Sci Date: 2011-10 Impact factor: 2.378

2. From consent to institutions: designing adaptive governance for genomic biobanks.

Authors: Kieran C O'Doherty; Michael M Burgess; Kelly Edwards; Richard P Gallagher; Alice K Hawkins; Jane Kaye; Veronica McCaffrey; David E Winickoff
Journal: Soc Sci Med Date: 2011-07-02 Impact factor: 4.634

3. Fixing research subjects protection in the United States: moving beyond consent.

Authors: Barbara A Koenig
Journal: Mayo Clin Proc Date: 2013-05 Impact factor: 7.616

4. The Mayo Clinic Biobank: a building block for individualized medicine.

Authors: Janet E Olson; Euijung Ryu; Kiley J Johnson; Barbara A Koenig; Karen J Maschke; Jody A Morrisette; Mark Liebow; Paul Y Takahashi; Zachary S Fredericksen; Ruchi G Sharma; Kari S Anderson; Matthew A Hathcock; Jason A Carnahan; Jyotishman Pathak; Noralane M Lindor; Timothy J Beebe; Stephen N Thibodeau; James R Cerhan
Journal: Mayo Clin Proc Date: 2013-09 Impact factor: 7.616

4 in total

33 in total

1. Grudging Trust and the Limits of Trustworthy Biorepository Curation.

Authors: Karen M Meagher; Eric T Juengst; Gail E Henderson
Journal: Am J Bioeth Date: 2018-04 Impact factor: 11.229

2. Start me up: ways to encourage sharing of genomic information with research participants.

Authors: Misha Angrist
Journal: Nat Rev Genet Date: 2015-08 Impact factor: 53.242

3. National survey and community advisory board development for a bipolar disorder biobank.

Authors: Mark A Frye; Allen Doederlein; Barbara Koenig; Susan L McElroy; Malik Nassan; Lisa R Seymour; Joanna M Biernacka; Allen S Daniels
Journal: Bipolar Disord Date: 2015-08-20 Impact factor: 6.744

4. Seeing Beyond the Margins: Challenges to Informed Inclusion of Vulnerable Populations in Research.

Authors: Sarah Gehlert; Jessica Mozersky
Journal: J Law Med Ethics Date: 2018-03-27 Impact factor: 1.718

5. From "Personalized" to "Precision" Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.

Authors: Eric Juengst; Michelle L McGowan; Jennifer R Fishman; Richard A Settersten
Journal: Hastings Cent Rep Date: 2016-09 Impact factor: 2.683

6. Effect of deliberation on the public's attitudes toward consent policies for biobank research.

Authors: Tom Tomlinson; Raymond G De Vries; H Myra Kim; Linda Gordon; Kerry A Ryan; Chris D Krenz; Scott Jewell; Scott Y H Kim
Journal: Eur J Hum Genet Date: 2018-01-18 Impact factor: 4.246

7. The ethics of genetic testing for kidney diseases.

Authors: Maya Sabatello; Hila Milo Rasouly
Journal: Nat Rev Nephrol Date: 2020-05-01 Impact factor: 28.314

8. Ethically sustainable governance in the biobanking of eggs and embryos for research.

Authors: Karla Stroud; Kieran C O'Doherty
Journal: Monash Bioeth Rev Date: 2015-12

9. Health Research with Big Data: Time for Systemic Oversight.

Authors: Effy Vayena; Alessandro Blasimme
Journal: J Law Med Ethics Date: 2018-03-27 Impact factor: 1.718

10. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Authors: Robert C Green; Katrina A B Goddard; Gail P Jarvik; Laura M Amendola; Paul S Appelbaum; Jonathan S Berg; Barbara A Bernhardt; Leslie G Biesecker; Sawona Biswas; Carrie L Blout; Kevin M Bowling; Kyle B Brothers; Wylie Burke; Charlisse F Caga-Anan; Arul M Chinnaiyan; Wendy K Chung; Ellen W Clayton; Gregory M Cooper; Kelly East; James P Evans; Stephanie M Fullerton; Levi A Garraway; Jeremy R Garrett; Stacy W Gray; Gail E Henderson; Lucia A Hindorff; Ingrid A Holm; Michelle Huckaby Lewis; Carolyn M Hutter; Pasi A Janne; Steven Joffe; David Kaufman; Bartha M Knoppers; Barbara A Koenig; Ian D Krantz; Teri A Manolio; Laurence McCullough; Jean McEwen; Amy McGuire; Donna Muzny; Richard M Myers; Deborah A Nickerson; Jeffrey Ou; Donald W Parsons; Gloria M Petersen; Sharon E Plon; Heidi L Rehm; J Scott Roberts; Dan Robinson; Joseph S Salama; Sarah Scollon; Richard R Sharp; Brian Shirts; Nancy B Spinner; Holly K Tabor; Peter Tarczy-Hornoch; David L Veenstra; Nikhil Wagle; Karen Weck; Benjamin S Wilfond; Kirk Wilhelmsen; Susan M Wolf; Julia Wynn; Joon-Ho Yu
Journal: Am J Hum Genet Date: 2016-05-12 Impact factor: 11.025