Literature DB >> 24991027

Palliative care and neurology: time for a paradigm shift.

Isabel Boersma1, Janis Miyasaki1, Jean Kutner1, Benzi Kluger2.   

Abstract

Palliative care is an approach to the care of patients and families facing progressive and chronic illnesses that focuses on the relief of suffering due to physical symptoms, psychosocial issues, and spiritual distress. As neurologists care for patients with chronic, progressive, life-limiting, and disabling conditions, it is important that they understand and learn to apply the principles of palliative medicine. In this article, we aim to provide a practical starting point in palliative medicine for neurologists by answering the following questions: (1) What is palliative care and what is hospice care? (2) What are the palliative care needs of neurology patients? (3) Do neurology patients have unique palliative care needs? and (4) How can palliative care be integrated into neurology practice? We cover several fundamental palliative care skills relevant to neurologists, including communication of bad news, symptom assessment and management, advance care planning, caregiver assessment, and appropriate referral to hospice and other palliative care services. We conclude by suggesting areas for future educational efforts and research.
© 2014 American Academy of Neurology.

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Year:  2014        PMID: 24991027      PMCID: PMC4142002          DOI: 10.1212/WNL.0000000000000674

Source DB:  PubMed          Journal:  Neurology        ISSN: 0028-3878            Impact factor:   9.910


  53 in total

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Review 3.  Palliative care concepts in respiratory disease.

Authors:  D F Heigener; K F Rabe
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5.  Dying trajectory in the last year of life: does cancer trajectory fit other diseases?

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6.  Failure to engage hospitalized elderly patients and their families in advance care planning.

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7.  Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: an exploratory qualitative study.

Authors:  Samar M Aoun; Sianne Lee Connors; Lynn Priddis; Lauren J Breen; Sue Colyer
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Journal:  Int J Palliat Nurs       Date:  2013-04

9.  Dementia and cancer: a comparison of spouse caregivers.

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Journal:  Parkinsonism Relat Disord       Date:  2007-11-26       Impact factor: 4.891

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  49 in total

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Review 2.  Teleneurology and mobile technologies: the future of neurological care.

Authors:  E Ray Dorsey; Alistair M Glidden; Melissa R Holloway; Gretchen L Birbeck; Lee H Schwamm
Journal:  Nat Rev Neurol       Date:  2018-04-06       Impact factor: 42.937

3.  The emerging partnership between palliative care and stroke.

Authors:  Robert G Holloway; James L Bernat
Journal:  Neurol Clin Pract       Date:  2017-06

Review 4.  Palliative Care for Movement Disorders.

Authors:  Christina L Vaughan; Benzi M Kluger
Journal:  Curr Treat Options Neurol       Date:  2018-02-21       Impact factor: 3.598

Review 5.  Neuropalliative Care: A Practical Guide for the Neurologist.

Authors:  K Brizzi; C J Creutzfeldt
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Review 6.  Palliative care for Parkinson's disease: has the time come?

Authors:  Janis M Miyasaki; Benzi Kluger
Journal:  Curr Neurol Neurosci Rep       Date:  2015-05       Impact factor: 5.081

7.  Development and psychometric evaluation of a new tool for measuring the attitudes of patients with progressive neurological diseases to ethical aspects of end-of-life care.

Authors:  Radka Bužgová; Radka Kozáková
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Review 8.  Palliative care in neonatal neurology: robust support for infants, families and clinicians.

Authors:  M E Lemmon; M Bidegain; R D Boss
Journal:  J Perinatol       Date:  2015-12-10       Impact factor: 2.521

9.  Parkinson disease patients' perspectives on palliative care needs: What are they telling us?

Authors:  Isabel Boersma; Jacqueline Jones; Julie Carter; David Bekelman; Janis Miyasaki; Jean Kutner; Benzi Kluger
Journal:  Neurol Clin Pract       Date:  2016-06

Review 10.  Need for palliative care for neurological diseases.

Authors:  Leandro Provinciali; Giulia Carlini; Daniela Tarquini; Carlo Alberto Defanti; Simone Veronese; Eugenio Pucci
Journal:  Neurol Sci       Date:  2016-06-14       Impact factor: 3.307

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