Literature DB >> 27299428

Need for palliative care for neurological diseases.

Leandro Provinciali1, Giulia Carlini2, Daniela Tarquini3, Carlo Alberto Defanti4, Simone Veronese5, Eugenio Pucci6.   

Abstract

The new concept of palliative care supports the idea of palliation as an early approach to patients affected by disabling and life-limiting disease which focuses on the patient's quality of life along the entire course of disease. This model moves beyond the traditional concept of palliation as an approach restricted to the final stage of disease and widens the fields of intervention. There is a growing awareness of the importance of palliative care not only in oncological diseases but also in many other branches of medicine, and it appears particularly evident in the approach to many of the most frequent neurological diseases that are chronic, incurable and autonomy-impairing illnesses. The definition and implementation of palliative goals and procedures in neurology must take into account the specific features of these conditions in terms of the complexity and variability of symptoms, clinical course, disability and prognosis. The realization of an effective palliative approach to neurological diseases requires specific skills and expertise to adapt the concept of palliation to the peculiarities of these diseases; this approach should be realized through the cooperation of different services and the action of a multidisciplinary team in which the neurologist should play a central role to identify and face the patient's needs. In this view, it is paramount for the neurologist to be trained in these issues to promote the integration of palliative care in the care of neurological patients.

Entities:  

Keywords:  Neurological disease; Palliative care; Specific expertise

Mesh:

Year:  2016        PMID: 27299428     DOI: 10.1007/s10072-016-2614-x

Source DB:  PubMed          Journal:  Neurol Sci        ISSN: 1590-1874            Impact factor:   3.307


  45 in total

1.  Dyskinesias and motor fluctuations in Parkinson's disease. A community-based study.

Authors:  A Schrag; N Quinn
Journal:  Brain       Date:  2000-11       Impact factor: 13.501

2.  Simultaneous care: disease treatment and palliative care throughout illness.

Authors:  Frederick J Meyers; John Linder
Journal:  J Clin Oncol       Date:  2003-04-01       Impact factor: 44.544

3.  Palliative care--a shifting paradigm.

Authors:  Amy S Kelley; Diane E Meier
Journal:  N Engl J Med       Date:  2010-08-19       Impact factor: 91.245

Review 4.  A consensus review on the development of palliative care for patients with chronic and progressive neurological disease.

Authors:  D J Oliver; G D Borasio; A Caraceni; M de Visser; W Grisold; S Lorenzl; S Veronese; R Voltz
Journal:  Eur J Neurol       Date:  2015-10-01       Impact factor: 6.089

5.  Specialist palliative care improves the quality of life in advanced neurodegenerative disorders: NE-PAL, a pilot randomised controlled study.

Authors:  Simone Veronese; G Gallo; A Valle; C Cugno; A Chiò; A Calvo; P Cavalla; M Zibetti; C Rivoiro; D J Oliver
Journal:  BMJ Support Palliat Care       Date:  2015-07-16       Impact factor: 3.568

6.  Mental symptoms in Parkinson's disease are important contributors to caregiver distress.

Authors:  D Aarsland; J P Larsen; K Karlsen; N G Lim; E Tandberg
Journal:  Int J Geriatr Psychiatry       Date:  1999-10       Impact factor: 3.485

7.  Simultaneous care: a model approach to the perceived conflict between investigational therapy and palliative care.

Authors:  Frederick J Meyers; John Linder; Laurel Beckett; Scott Christensen; Joan Blais; David R Gandara
Journal:  J Pain Symptom Manage       Date:  2004-12       Impact factor: 3.612

8.  The clinical course of advanced dementia.

Authors:  Susan L Mitchell; Joan M Teno; Dan K Kiely; Michele L Shaffer; Richard N Jones; Holly G Prigerson; Ladislav Volicer; Jane L Givens; Mary Beth Hamel
Journal:  N Engl J Med       Date:  2009-10-15       Impact factor: 91.245

Review 9.  Palliative care provision in Huntington's disease.

Authors:  Elizabeth Travers; Kate Jones; Jacqueline Nichol
Journal:  Int J Palliat Nurs       Date:  2007-03

10.  Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial.

Authors:  Alessandra Solari; Andrea Giordano; Maria Grazia Grasso; Paolo Confalonieri; Francesco Patti; Alessandra Lugaresi; Lucia Palmisano; Roberta Amadeo; Giovanni Martino; Michela Ponzio; Giuseppe Casale; Claudia Borreani; Renzo Causarano; Simone Veronese; Paola Zaratin; Mario Alberto Battaglia
Journal:  Trials       Date:  2015-04-23       Impact factor: 2.279

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  10 in total

1.  Palliative care education in U.S. adult neuro-oncology fellowship programs.

Authors:  Ambereen K Mehta; Natalie May; Sarah Verga; Camilo E Fadul
Journal:  J Neurooncol       Date:  2018-08-02       Impact factor: 4.130

2.  Combining drug and music therapy in patients with moderate Alzheimer's disease: a randomized study.

Authors:  Anna Rita Giovagnoli; Valentina Manfredi; Letizia Schifano; Chiara Paterlini; Annalisa Parente; Fabrizio Tagliavini
Journal:  Neurol Sci       Date:  2018-03-17       Impact factor: 3.307

3.  Ensuring Quality in Online Palliative Care Resources.

Authors:  Jennifer Tieman
Journal:  Cancers (Basel)       Date:  2016-12-13       Impact factor: 6.639

4.  Quality of life and religious-spiritual coping in palliative cancer care patients.

Authors:  Ticiane Dionizio de Sousa Matos; Silmara Meneguin; Maria de Lourdes da Silva Ferreira; Helio Amante Miot
Journal:  Rev Lat Am Enfermagem       Date:  2017-07-10

5.  Randomized controlled trial of a home-based palliative approach for people with severe multiple sclerosis.

Authors:  Alessandra Solari; Andrea Giordano; Francesco Patti; Maria Grazia Grasso; Paolo Confalonieri; Lucia Palmisano; Michela Ponzio; Claudia Borreani; Rosalba Rosato; Simone Veronese; Paola Zaratin; Mario Alberto Battaglia
Journal:  Mult Scler       Date:  2017-04-06       Impact factor: 6.312

6.  Neurological Symptoms in Palliative Care Patients.

Authors:  Johanna Anneser; Victoria Arenz; Gian Domenico Borasio
Journal:  Front Neurol       Date:  2018-04-25       Impact factor: 4.003

7.  Symptom dimensions in people affected by long-term neurological conditions: a factor analysis of a patient-centred palliative care outcome symptom scale.

Authors:  Rebecca Wilson; Nilay Hepgul; Romi A Saha; Irene J Higginson; Wei Gao
Journal:  Sci Rep       Date:  2019-03-21       Impact factor: 4.379

8.  Experiences of health services and unmet care needs of people with late-stage Parkinson's in England: A qualitative study.

Authors:  Joy Read; Sarah Cable; Charlotte Löfqvist; Susanne Iwarsson; Gergely Bartl; Anette Schrag
Journal:  PLoS One       Date:  2019-12-30       Impact factor: 3.240

9.  The impact of the COVID-19 pandemic on people with neurological disorders: an urgent need to enhance the health care system's preparedness.

Authors:  Silvia Zullo; Francesca Ingravallo; Vittorio Crespi; Marta Cascioli; Roberto D'Alessandro; Marcella Gasperini; Chiara Lalli; Alessandra Lugaresi; Maura Marogna; Maurizio Mori; Ilaria Pesci; Francesca Pistoia; Corinna Porteri; Marcella Vedovello; Simone Veronese; Eugenio Pucci; Alessandra Solari
Journal:  Neurol Sci       Date:  2021-03       Impact factor: 3.307

Review 10.  Advance Care Planning in Neurodegenerative Disorders: A Scoping Review.

Authors:  Andrea Giordano; Ludovica De Panfilis; Marta Perin; Laura Servidio; Marta Cascioli; Maria Grazia Grasso; Alessandra Lugaresi; Eugenio Pucci; Simone Veronese; Alessandra Solari
Journal:  Int J Environ Res Public Health       Date:  2022-01-12       Impact factor: 3.390

  10 in total

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