Literature DB >> 25795037

Palliative care for Parkinson's disease: has the time come?

Janis M Miyasaki1, Benzi Kluger.   

Abstract

Although Parkinson's disease (PD) is traditionally viewed as a movement disorder which affects quality of life, recent literature has revealed an increased mortality, a high burden of difficult-to-manage non-motor symptoms (e.g., pain, fatigue), high caregiver distress, and a high utilization of medical services especially in the last year of life. Current medical systems have yet to adequately respond to this mounting evidence through the adoption of palliative care practices and through the provision of palliative care services to both PD patients and to affected families. This holistic, interdisciplinary approach to practice would enhance care delivery, identify and address unmet needs, and avoid interventions and hospitalizations especially in the last months of life. As we approach an era of increased life expectancy, increasing comorbidities among patients, and escalating healthcare costs, physicians must be proactive in focusing on quality of life, reducing medical interventions, and respecting patient autonomy.

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Year:  2015        PMID: 25795037     DOI: 10.1007/s11910-015-0542-4

Source DB:  PubMed          Journal:  Curr Neurol Neurosci Rep        ISSN: 1528-4042            Impact factor:   5.081


  30 in total

1.  Parkinson disease at the end of life: caregiver perspectives.

Authors:  Elizabeth R Goy; Julie H Carter; Linda Ganzini
Journal:  Neurology       Date:  2007-08-07       Impact factor: 9.910

2.  High rates and the risk factors for emergency room visits and hospitalization in Parkinson's disease.

Authors:  Anhar Hassan; Samuel S Wu; Peter Schmidt; Yunfeng Dai; Tanya Simuni; Nir Giladi; Bastiaan R Bloem; Irene A Malaty; Michael S Okun
Journal:  Parkinsonism Relat Disord       Date:  2013-07-05       Impact factor: 4.891

3.  Ten year survival and outcomes in a prospective cohort of new onset Chinese Parkinson's disease patients.

Authors:  Man Auyeung; T H Tsoi; Vincent Mok; C M Cheung; C N Lee; R Li; E Yeung
Journal:  J Neurol Neurosurg Psychiatry       Date:  2012-02-22       Impact factor: 10.154

4.  Sydney Multicenter Study of Parkinson's disease: non-L-dopa-responsive problems dominate at 15 years.

Authors:  Mariese A Hely; John G L Morris; Wayne G J Reid; Robert Trafficante
Journal:  Mov Disord       Date:  2005-02       Impact factor: 10.338

5.  Would people with Parkinson's disease benefit from palliative care?

Authors:  Peter L Hudson; Christine Toye; Linda J Kristjanson
Journal:  Palliat Med       Date:  2006-03       Impact factor: 4.762

6.  Insomnia and sleepiness in Parkinson disease: associations with symptoms and comorbidities.

Authors:  Seockhoon Chung; Nicolaas I Bohnen; Roger L Albin; Kirk A Frey; Martijn L T M Müller; Ronald D Chervin
Journal:  J Clin Sleep Med       Date:  2013-11-15       Impact factor: 4.062

7.  The status of undergraduate palliative medicine education in Canada: a 2001 survey.

Authors:  Doreen Oneschuk; Brent Moloughney; Elaine Jones-McLean; Andrea Challis
Journal:  J Palliat Care       Date:  2004       Impact factor: 2.250

8.  The Sydney multicenter study of Parkinson's disease: the inevitability of dementia at 20 years.

Authors:  Mariese A Hely; Wayne G J Reid; Michael A Adena; Glenda M Halliday; John G L Morris
Journal:  Mov Disord       Date:  2008-04-30       Impact factor: 10.338

Review 9.  Clinical problems in the hospitalized Parkinson's disease patient: systematic review.

Authors:  Oliver H H Gerlach; Ania Winogrodzka; Wim E J Weber
Journal:  Mov Disord       Date:  2011-01-31       Impact factor: 10.338

10.  What works in 'real life' to facilitate home deaths and fewer hospital admissions for those at end of life?: results from a realist evaluation of new palliative care services in two English counties.

Authors:  Lesley Wye; Gemma Lasseter; John Percival; Lorna Duncan; Bethany Simmonds; Sarah Purdy
Journal:  BMC Palliat Care       Date:  2014-07-28       Impact factor: 3.234

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  19 in total

1.  Palliative Care and Parkinson's Disease: Caregiver Perspectives.

Authors:  Isabel Boersma; Jacqueline Jones; Christina Coughlan; Julie Carter; David Bekelman; Janis Miyasaki; Jean Kutner; Benzi Kluger
Journal:  J Palliat Med       Date:  2017-05-18       Impact factor: 2.947

2.  Framing advance care planning in Parkinson disease: Patient and care partner perspectives.

Authors:  Hillary D Lum; Sarah R Jordan; Adreanne Brungardt; Roman Ayele; Maya Katz; Janis M Miyasaki; Anne Hall; Jacqueline Jones; Benzi Kluger
Journal:  Neurology       Date:  2019-04-26       Impact factor: 9.910

Review 3.  Palliative Care for Parkinson's Spectrum Disorders: an Emerging Approach.

Authors:  Maya Katz
Journal:  Neurotherapeutics       Date:  2021-01-13       Impact factor: 7.620

Review 4.  Palliative Care for Movement Disorders.

Authors:  Christina L Vaughan; Benzi M Kluger
Journal:  Curr Treat Options Neurol       Date:  2018-02-21       Impact factor: 3.598

5.  Age and Life-Sustaining Treatment Preferences in Parkinson Disease.

Authors:  Eric Jackowiak; Ashley Szpara; Vikas Kotagal
Journal:  Neurol Clin Pract       Date:  2021-06

6.  Parkinson disease patients' perspectives on palliative care needs: What are they telling us?

Authors:  Isabel Boersma; Jacqueline Jones; Julie Carter; David Bekelman; Janis Miyasaki; Jean Kutner; Benzi Kluger
Journal:  Neurol Clin Pract       Date:  2016-06

Review 7.  Need for palliative care for neurological diseases.

Authors:  Leandro Provinciali; Giulia Carlini; Daniela Tarquini; Carlo Alberto Defanti; Simone Veronese; Eugenio Pucci
Journal:  Neurol Sci       Date:  2016-06-14       Impact factor: 3.307

8.  Defining Palliative Care Needs in Parkinson's Disease.

Authors:  Benzi M Kluger; Jo Shattuck; Julie Berk; Kelly Sebring; Wallace Jones; Fabian Brunetti; Isabel Fairmont; Daniel W Bowles; Stefan Sillau; David B Bekelman
Journal:  Mov Disord Clin Pract       Date:  2018-11-16

9.  Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners.

Authors:  Sarah R Jordan; Benzi Kluger; Roman Ayele; Adreanne Brungardt; Anne Hall; Jacqueline Jones; Maya Katz; Janis M Miyasaki; Hillary D Lum
Journal:  Ann Palliat Med       Date:  2020-02-06

Review 10.  Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: a systematic review.

Authors:  Umer Akbar; Robert Brett McQueen; Julienne Bemski; Julie Carter; Elizabeth R Goy; Jean Kutner; Miriam J Johnson; Janis M Miyasaki; Benzi Kluger
Journal:  J Neurol Neurosurg Psychiatry       Date:  2021-03-31       Impact factor: 10.154

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