Literature DB >> 24933214

Tracking functional status across the spinal cord injury lifespan: linking pediatric and adult patient-reported outcome scores.

Feng Tian1, Pengsheng Ni2, M J Mulcahey3, Ronald K Hambleton4, David Tulsky5, Stephen M Haley2, Alan M Jette2.   

Abstract

OBJECTIVE: To use item response theory (IRT) methods to link scores from 2 recently developed contemporary functional outcome measures, the adult Spinal Cord Injury-Functional Index (SCI-FI) and the Pedi SCI (both the parent version and the child version).
DESIGN: Secondary data analysis of the physical functioning items of the adult SCI-FI and the Pedi SCI instruments. We used a nonequivalent group design with items common to both instruments and the Stocking-Lord method for the linking. Linking was conducted so that the adult SCI-FI and Pedi SCI scaled scores could be compared.
SETTING: Community. PARTICIPANTS: This study included a total sample of 1558 participants. Pedi SCI items were administered to a sample of children (n=381) with SCI aged 8 to 21 years, and of parents/caregivers (n=322) of children with SCI aged 4 to 21 years. Adult SCI-FI items were administered to a sample of adults (n=855) with SCI aged 18 to 92 years.
INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Five scales common to both instruments were included in the analysis: Wheelchair, Daily Routine/Self-care, Daily Routine/Fine Motor, Ambulation, and General Mobility functioning.
RESULTS: Confirmatory factor analysis and exploratory factor analysis results indicated that the 5 scales are unidimensional. A graded response model was used to calibrate the items. Misfitting items were identified and removed from the item banks. Items that function differently between the adult and child samples (ie, exhibit differential item functioning) were identified and removed from the common items used for linking. Domain scores from the Pedi SCI instruments were transformed onto the adult SCI-FI metric.
CONCLUSIONS: This IRT linking allowed estimation of adult SCI-FI scale scores based on Pedi SCI scale scores and vice versa; therefore, it provides clinicians with a means of tracking long-term functional data for children with an SCI across their entire lifespan.
Copyright © 2014 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Outcome assessment (health care); Psychometrics; Rehabilitation; Spinal cord injuries

Mesh:

Year:  2014        PMID: 24933214     DOI: 10.1016/j.apmr.2014.05.023

Source DB:  PubMed          Journal:  Arch Phys Med Rehabil        ISSN: 0003-9993            Impact factor:   3.966


  7 in total

Review 1.  Recommendations for the National Institute for Neurologic Disorders and Stroke spinal cord injury common data elements for children and youth with SCI.

Authors:  M J Mulcahey; L C Vogel; M Sheikh; J C Arango-Lasprilla; M Augutis; E Garner; E M Hagen; L B Jakeman; E Kelly; R Martin; J Odenkirchen; A Scheel-Sailer; J Schottler; H Taylor; C C Thielen; K Zebracki
Journal:  Spinal Cord       Date:  2016-11-15       Impact factor: 2.772

2.  Linkage between the PROMIS® pediatric and adult emotional distress measures.

Authors:  Bryce B Reeve; David Thissen; Darren A DeWalt; I-Chan Huang; Yang Liu; Brooke Magnus; Hally Quinn; Heather E Gross; Pamela A Kisala; Pengsheng Ni; Stephen Haley; M J Mulcahey; Susie Charlifue; Robin A Hanks; Mary Slavin; Alan Jette; David S Tulsky
Journal:  Qual Life Res       Date:  2015-09-30       Impact factor: 4.147

3.  Ability of PROMIS Pediatric Measures to Detect Change in Children With Cerebral Palsy Undergoing Musculoskeletal Surgery.

Authors:  Mary J Mulcahey; Stephen M Haley; Mary D Slavin; Pamela A Kisala; Pengsheng Ni; David S Tulsky; Alan M Jette
Journal:  J Pediatr Orthop       Date:  2016 Oct-Nov       Impact factor: 2.324

4.  Linking EORTC QLQ-C-30 and PedsQL/PEDQOL physical functioning scores in patients with osteosarcoma.

Authors:  Axel Budde; Katja Baust; Leonie Weinhold; Mark Bernstein; Stefan Bielack; Catharina Dhooge; Lars Hjorth; Katherine A Janeway; Meriel Jenney; Mark D Krailo; Neyssa Marina; Rajaram Nagarajan; Sigbjørn Smeland; Matthew R Sydes; Patricia De Vos; Jeremy Whelan; Andreas Wiener; Gabriele Calaminus; Matthias Schmid
Journal:  Eur J Cancer       Date:  2022-06-08       Impact factor: 10.002

5.  Measuring activity limitation outcomes in youth with spinal cord injury.

Authors:  M D Slavin; M J Mulcahey; C Calhoun Thielen; P Ni; L C Vogel; S M Haley; A M Jette
Journal:  Spinal Cord       Date:  2015-11-17       Impact factor: 2.772

6.  The Pediatric Measure of Participation (PMoP) short forms.

Authors:  M J Mulcahey; M D Slavin; P Ni; L C Vogel; C C Thielen; W J Coster; A M Jette
Journal:  Spinal Cord       Date:  2016-05-17       Impact factor: 2.772

7.  Central projections and connections of lumbar primary afferent fibers in adult rats: effectively revealed using Texas red-dextran amine tracing.

Authors:  Shi-de Lin; Tao Tang; Ting-Bao Zhao; Shao-Jun Liu
Journal:  Neural Regen Res       Date:  2017-10       Impact factor: 5.135

  7 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.