Literature DB >> 27086002

Integrating Adolescents and Young Adults into Adult-Centered Care for IBD.

Itishree Trivedi1,2, Jane L Holl3,4, Stephen Hanauer5, Laurie Keefer6.   

Abstract

Planned healthcare transition, initiated in pediatric care, is a gradual process aimed at fostering the adolescent patient's disease knowledge and skills with the ultimate objective of preparing patients and families for adult-centered care. The process is critical in inflammatory bowel diseases (IBD) where there is an increased risk of non-adherence, hospitalizations, and emergency department use as young adult patients graduate from pediatric to adult-centered care. While evidence for healthcare transition in IBD is mounting, important gaps remain in the understanding of this process from the perspective of the adult gastroenterologist. This paper summarizes what is known about healthcare transition in IBD and explores the unanswered questions-a conceptual and methodological framework for transition interventions, relevant outcomes that define successful transition, and key stakeholder perspectives. For the adult gastroenterologist managing the young adult patient population, this paper presents the paradigm of "care integration"-a process of ongoing, multi-modality support for the patient, initiated in the adult care setting, with the goal of improving self-management skills and active participation in medical decision-making.

Entities:  

Keywords:  Adolescents; Adult-centered care; Emerging adults; Healthcare transition; Inflammatory bowel disease; Pediatric to adult transition; Young adults

Mesh:

Year:  2016        PMID: 27086002     DOI: 10.1007/s11894-016-0495-z

Source DB:  PubMed          Journal:  Curr Gastroenterol Rep        ISSN: 1522-8037


  88 in total

1.  Emerging adulthood. A theory of development from the late teens through the twenties.

Authors:  J J Arnett
Journal:  Am Psychol       Date:  2000-05

2.  Current Transition Practices in Pediatric IBD: Findings from a National Survey of Pediatric Providers.

Authors:  Wendy N Gray; Michele H Maddux
Journal:  Inflamm Bowel Dis       Date:  2016-02       Impact factor: 5.325

3.  A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25 years.

Authors:  D J Holmes-Walker; A C Llewellyn; K Farrell
Journal:  Diabet Med       Date:  2007-05-29       Impact factor: 4.359

4.  Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine.

Authors:  R W Blum; D Garell; C H Hodgman; T W Jorissen; N A Okinow; D P Orr; G B Slap
Journal:  J Adolesc Health       Date:  1993-11       Impact factor: 5.012

Review 5.  Inflammatory bowel disease in pediatric and adolescent patients.

Authors:  R N Baldassano; D A Piccoli
Journal:  Gastroenterol Clin North Am       Date:  1999-06       Impact factor: 3.806

6.  Resource utilization during pediatric to adult transfer of care in IBD.

Authors:  Natasha Bollegala; Herbert Brill; John K Marshall
Journal:  J Crohns Colitis       Date:  2012-06-05       Impact factor: 9.071

7.  Transition to adult care for youths with diabetes mellitus: findings from a Universal Health Care System.

Authors:  Meranda Nakhla; Denis Daneman; Teresa To; Gilles Paradis; Astrid Guttmann
Journal:  Pediatrics       Date:  2009-11-23       Impact factor: 7.124

8.  Transition readiness in pediatric patients with inflammatory bowel disease: patient survey of self-management skills.

Authors:  Emily P Whitfield; Emily M Fredericks; Sally J Eder; Benjamin H Shpeen; Jeremy Adler
Journal:  J Pediatr Gastroenterol Nutr       Date:  2015-01       Impact factor: 2.839

9.  Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease.

Authors:  Laurie N Fishman; Sonja I Ziniel; Max E Adrichem; Susan M Fernandes; Janis Arnold
Journal:  J Pediatr Gastroenterol Nutr       Date:  2014-08       Impact factor: 2.839

10.  Measurement properties of questionnaires measuring continuity of care: a systematic review.

Authors:  Annemarie A Uijen; Claire W Heinst; Francois G Schellevis; Wil J H M van den Bosch; Floris A van de Laar; Caroline B Terwee; Henk J Schers
Journal:  PLoS One       Date:  2012-07-31       Impact factor: 3.240

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  2 in total

1.  Paediatric to Adult Transition of Care in IBD: Understanding the Current Standard of Care Among Canadian Adult Academic Gastroenterologists.

Authors:  Noor Jawaid; Thurarshen Jeyalingam; Geoffrey Nguyen; Natasha Bollegala
Journal:  J Can Assoc Gastroenterol       Date:  2019-08-03

2.  Empowered transitions: Understanding the experience of transitioning from pediatric to adult care among adolescents with inflammatory bowel disease and their parents using photovoice.

Authors:  Jordyn H Feingold; Halley Kaye-Kauderer; Michelle Mendiolaza; Marla C Dubinsky; Laurie Keefer; Ksenia Gorbenko
Journal:  J Psychosom Res       Date:  2021-02-17       Impact factor: 3.006

  2 in total

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